
Sign up to save your podcasts
Or


Cystic Fibrosis (or 65 Roses to kids with CF who can't quite pronounce such a scientific term) is a progressive terminal illness that is genetically transmitted. CF primarily affects the lungs and digestive system. The body produces thick and sticky mucus that can clog the lungs and obstruct the pancreas. Cystic Fibrosis can be life-threatening, and people with the condition tend to have a shorter-than-normal life span.
This is a basic definition of Cystic Fibrosis. The scientific definition. A definition that fails to even scrape the surface of this illness.
In order to better explain just what CF is and how it affects the lives of the patients who live with it and the people who love them - I decided to speak to two families who have been directly impacted by this illness: The Higginbothams and The Corrys.
The Higginbothams you will be hearing from: Steve, Ellen Ann, Kate, Meg, Matthew and Sandra (Matthew's wife)
The Corrys you will be hearing from: Jack, Toni, John-Patrick, Ryan, Mary and Kaitlyn (Me! - Ryan's wife)
Each person has a unique perspective on CF and is here to share their personal experiences and raise awareness!
The 65 Roses Series will be 5 parts:
Chapter I • A Mother's Love ft. Ellen Ann Higginbotham & Toni Corry
Chapter II • A Father's Bond ft. Steve Higginbotham & Jack Corry
Chapter III • My First Friends: A Sibling's Perspective ft. Kate Higginbotham, Meg Higginbotham, John-Patrick Corry & Mary (Corry) Field
Chapter IV • In Sickness and In Health: A Wife's Persective ft. Sandra Higginbotham & Kaitlyn Corry
Chapter V • The Trilogy: Direct from the Patient ft. Matthew Higginbotham & Ryan Corry
Lexci Mack joins WonderFilledWeek in the fourth installment of the LIFE SERIES. Lexci shares deeply personal experiences of growing up as a Black woman in this country and offers sound advice on how to be an effective ally. Join us as we discuss white privilege, racial bias and protecting our mental health to avoid burnout (Activism is a marathon, not a sprint!). We also offer resources including books, movies, programs and podcasts to check out to better educate ourselves on TRUE American History, what it's like to be Black in America and how to help moving forward.
Follow Lexci on Instagram & Twitter: @lexcimercedes_
Resources Referenced:
1. Books
*There is a great, age-appropriate breakdown (starting as early as 0-1 year old) about how children perceive race & when to discuss race with your children online - on IG @TheConsciousKid written by the Children’s Community School.
2. Movies/Programming:
3. Podcasts:
4. Organizations to Donate to:
1. Black Lives Matter
2. NAACP
3. George Floyd Memorial Fund
4. Minnesota Freedom Fund
5. Black Visions Collective
6. Reclaim The Block
7. Campaign Zero
8. Unicorn Riot
STOP. LISTEN. LEARN. DO.
ACTIVISM IS A VERB.
#BLACKLIVESMATTER
New mom, Danielle Bond, joins WonderFilledWeek in the third installment of the LIFE SERIES. Danielle details her journey to motherhood and the steps it took to find, meet and bring home her daughter, Lulu James, from China. Join us as we discuss what life is like as a first-time mommy and how Danielle and Lulu are faring during quarantine. Follow Danielle & Lulu's adventures on Instagram: @ExtraChromieHomieLuluJames and on Facebook: @BringingHomeLuluJames.
Instagram: @WonderFilledWeek
Facebook: https://www.facebook.com/WonderFilledWeek/
Merch: https://wonderfilledweek.myshopify.com/
Guest: Julie Rackauskas
Topic - Escape From The Heavy: Light chat about what we've been up to in quarantine.
THANK YOU! to each and every essential worker on the front lines making the world go round -- You are the true heroes!
Sending love & light to all.
From the publisher's feed