NeurologyLive® Mind Moments®

118: Gaining Patient Perspectives on Impact of Narcolepsy


Listen Later

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice.


In this episode, Anne Marie Morse, DO, FAAN, a pediatric neurologist and sleep medicine specialist at Geisinger Medical Center, sat down at the 2024 SLEEP Annual Meeting to discuss a poster presentation highlighting a listening analysis that characterized the struggles and unmet needs of people with narcolepsy. in the discussion, Morse outlined some of the major findings, including the rates of missed and misdiagnosis, how cataplexy impacts daily life, and some of the other comorbidities associated with the condition. She spoke on the value of gaining patient perspectives and using their descriptions for their disorders helps in understanding true unmet needs. Furthermore, she spoke on the importance of a strong patient-clinician relationship, the ability to communicate openly, and the steps following diagnosis to ensure effective long-term treatment outcomes. 


Looking for more sleep disorders discussion? Check out the NeurologyLive® sleep disorders clinical focus page.

Episode Breakdown:
  • 1:10 – Motivations behind conducting listening analysis
  • 3:15 – Major clinical takeaways from study; notable quality of life impairments in narcolepsy
  • 7:00 – Impact of cataplexy and patients' overreaction
  • 9:50 – Neurology News Minute
  • 12:20 – Reasons for missed and misdiagnosis
  • 14:50 – Early tips to pathing patients towards treatment success

    The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here:

    • FDA Grants Traditional Approval to Elevidys Gene Therapy for Ambulatory DMD, Accelerated Approval for Nonambulatory Patients
    • FDA Approves Efgartigimod as New Treatment for Chronic Inflammatory Demyelinating Polyneuropathy
    • FDA Approves Pitolisant for Excessive Daytime Sleepiness in Pediatric Narcolepsy

    • Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.
      ...more
      View all episodesView all episodes
      Download on the App Store

      NeurologyLive® Mind Moments®By NeurologyLive

      • 4.6
      • 4.6
      • 4.6
      • 4.6
      • 4.6

      4.6

      10 ratings


      More shows like NeurologyLive® Mind Moments®

      View all
      The Clark Howard Podcast by Clark Howard

      The Clark Howard Podcast

      5,390 Listeners

      Neurology® Podcast by American Academy of Neurology

      Neurology® Podcast

      283 Listeners

      NEJM This Week by NEJM Group

      NEJM This Week

      318 Listeners

      Practical Neurology Podcast by BMJ Group

      Practical Neurology Podcast

      45 Listeners

      JAMA Neurology Author Interviews by JAMA Network

      JAMA Neurology Author Interviews

      14 Listeners

      BMJ Best Practice Podcast by BMJ Group

      BMJ Best Practice Podcast

      28 Listeners

      Neurology Today in 5 by American Academy of Neurology

      Neurology Today in 5

      22 Listeners

      Neurology Minute by American Academy of Neurology

      Neurology Minute

      132 Listeners

      Dateline NBC by NBC News

      Dateline NBC

      48,007 Listeners

      The Ezra Klein Show by New York Times Opinion

      The Ezra Klein Show

      15,316 Listeners

      Chanticleer by Australian Financial Review

      Chanticleer

      20 Listeners

      Movers and Shakers: a podcast about life with Parkinson's by Podot

      Movers and Shakers: a podcast about life with Parkinson's

      104 Listeners

      The Top Line by Fierce Life Sciences

      The Top Line

      12 Listeners

      Continuum Audio by American Academy of Neurology

      Continuum Audio

      77 Listeners

      The Economics Show by Financial Times

      The Economics Show

      96 Listeners