Share 12th National Paediatric Bioethics Conference 2021: Respecting refusal. Check your privacy settings: should a child’s illness journey be shared on social media?

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January 19, 2022

12th National Paediatric Bioethics Conference 2021: Respecting refusal. Check your privacy settings: should a child’s illness journey be shared on social media?

23 minutes

This session explores the challenges of respecting a child’s privacy in the age of social media. The phenomenon of ‘sharenting’, whereby parents share news and images of their child on social media is becoming increasingly common among families where children have chronic illness and disability, and some families manage a public social media account dedicated to their child’s medical journey. This highlights a clash between the rights of parents and children: does the parent’s right and responsibility to manage their child’s care override the child’s right to privacy and confidentiality as a patient? Our speaker, Elise Burn from Queensland Children’s Hospital Centre for Children’s Health Ethics and Law, won the Patron’s Prize for the best conference paper.

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