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Summary

In this conversation, Dr Zeest Khan speaks with Dr. Katie Brown, who shares her journey as a family doctor and a patient with ME/CFS. She discusses the complexities of diagnosing and treating long COVID, particularly focusing on the role of cranio-cervical instability (CCI) and its impact on patients' health. Dr. Brown emphasizes the importance of understanding the symptoms, the challenges in accessing proper care, and the need for collaboration among healthcare providers to improve patient outcomes. She also offers insights into treatment options and encourages both patients and doctors to take ownership of their health and care.

Bio
Dr Katie Brown: Katie Brown, MD has dedicated her career to learning how to treat ME/CFS and related conditions, including Long COVID. Her interest stems from her own experience with the disease which she developed during her first year of medical school. She is very grateful to now be in remission and have the chance to use all she has learned, both as a doctor and a patient, to support others with ME/CFS. The clinical uncertainty around ME/CFS should not mean that patients don't get help. In order to educate and encourage other doctors to treat ME/CFS, she is writing a book outlining best practices for primary care doctors. You can sign up to her newsletter to be notified when the book is published. 

Sign up for Dr Brown's newsletter: https://www.katiebrownmd.com/newsletter

Dr Brown's CFS website: https://chronicfatiguedoctornearme.com/

Dr Brown's notes on UCI, updated regularly: https://publish.obsidian.md/gsdpc/Publish/Patient+Resources/Cervical+Instability   

Additional Resources:

Project ECHO

Ressek et al Presentation and physical therapy management of upper cervical instability 

The Sick Times article on craniocervical instability

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