All Home Care Matters was honored to welcome the team from Savvy Cooperative to learn how they are helping to revolutionize and improve healthcare and the patient experience.

Joining the show was Jen Horonjeff, Eriel Brown, and Vivek Krishnaswamy.

About Savvy Cooperative:

Savvy Cooperative is the first (and only!) patient-owned co-op. At Savvy, we believe that patients and caregivers should be involved in every aspect of creating a healthcare product or service. We do this by giving patients and caregivers direct ways to share their experiences with health innovators through gigs, and advocating that they be fairly compensated for their contributions. We empower patients and caregivers to co-create new solutions, and see that their voices and experiences not only are valuable, but are of critical importance to the healthcare industry.

Visit their Official Website:

https://www.savvy.coop/

All Home Care Matters was honored to welcome a distinguished guest, Mr. Alban Maino the founder and CEO of Memory Lane TV.

Alban Maino is a noted Franco-American media producer passionate about integrative health. After personal experiences in his family with palliative care, he embarked on a social impact mission to help people living with memory loss. After several years of product development in Europe and New England, he launched in 2022 the first streaming platform for people living with dementia: www.memory-lane.tv.

Passionate about mindfulness and philosophy, cinematography and photography, goat cheese and wine, hiking and walking in noble silence, music and poetry...among other things…Alban believes that life’s purpose is to remain optimistic on all levels and do your best to make other people feel good. 

Memory Lane TV is the Netflix of dementia care! A unique streaming platform using multi-sensory tools (even aromatherapy) to alleviate symptoms of dementia and increase well being or both people living with dementia & their caregivers. Memory Lane TV is a digital health tool that induces sensory stimulation to both activate memory and to mitigate many of the behavioral and psychological symptoms that often accompany Alzheimer’s and other forms of dementia. It is effectively a media streaming service (like Netflix or Hulu) so it is very easy to use and is widely available, but all of the content is scientifically designed to be therapeutically helpful for managing these symptoms.

All Home Care Matters is honored to welcome the Founder & CEO of Busy Minds Box, Kristina Lubofsky.

Kristina Lubofsky, MS, is a gerontologist certified in brain health and dedicated to enriching the lives of older adults. After the third Alzheimer’s diagnosis in her family, she founded a company that distributes activities designed to promote learning, better brain health, and quality of life to older adults every month and this company is named Busy Minds Box.

As a caregiver, she would bring activities to her grandmother as a way to connect. She knew her fellow caregivers were constantly searching for ways to connect with their own loved ones with dementia. She understood that those living with dementia deserve a better quality of life, one where they feel like they have a purpose. She came to learn that older adults, with or without cognitive challenges, often find themselves homebound but still want to find ways to fill their time in a meaningful way.

Busy Minds Boxes fill these underserved needs, all while promoting better brain health by targeting different areas of the brain with each month’s collection of activities. Each Busy Minds Box features a fresh new theme each month and hours' worth of fun and engaging activities designed to target different areas of the brain. Activities include custom-designed arts and crafts, puzzles, games, books, and more!

All Home Care Matters is honored to welcome Bianca Padilla the Co-Founder of Carewell to the show. Bianca and Carewell are helping to revolutionize the caregiving space for caregivers and their loved ones.

Bianca became her grandmother’s caregiver after major surgery left her nearly immobile. She felt overwhelmed without guidance regarding the products she needed and where to find them. She also had no one to turn to for advice. This experience led her to create Carewell with her now-husband, Jon Malgonick.

She graduated from New York University with a bachelor's degree in economics. Before founding Carewell, she worked as a software engineer at LiveNinja and as an analyst for CCMP Capital Advisors and Pantheon Ventures. She also founded the Charlotte chapter of Aging 2.0, to which she currently serves as an ambassador, and attended the Disney Institute. In 2022, she made the Forbes 30 under 30 list.

All Home Care Matters was privileged to welcome Dr. Jennifer Bute to the show to discuss her story about how as a medical doctor she came to diagnosis herself with dementia.

Dr Jennifer Bute, lives in a Dementia supportive retirement village having previously lived in a Dementia inclusive one for 11 years She worked in Africa as a doctor before working as a GP for 25 years involved in medical education. She resigned early as she realised things were not right, and was diagnosed with dementia twelve years ago.

Jennifer speaks at conferences and on radio, has been involved in television programs raising awareness and understanding of dementia around the world. She passionately believes more can be done to improve both the present and the future for those living with dementia. Jennifer's book ‘Dementia from the Inside A Doctors Personal Journey of Hope’ is her story and explains these principles and has recently been translated into Chinese.

Jennifer has a Website www.gloriousopportunity.org containing many free resources including short educative videos and a short children’s cartoon about a dragon with dementia. She also posts weekly blogs explaining different aspects of dementia as she never stops learning www.facebook.com/gloriousopportunity

This panel discussion examines and explores the ethical challenges and issues that arise with the rising influence of social media and how it can present challenges for deciding what is appropriate and what is not appropriate when sharing, recording, and posting individuals who have dementia.

We examine the ethical dilemma of asking if a person with dementia should have their likeness, video, and image shared on social media without their consent and how can you determine if consent is provided if it is informed and able to be given?

If a post is shared on social media of an individual with dementia and it is positive, educational, and/or helpful is that ok if no consent if given? Is consent not still required regardless of the purpose and motive of the social media post? We welcomed 9 of the world's most influential dementia experts, influencers, educators, and advocates to discuss this very important topic and to try and determine what is and what is not appropriate when it comes to sharing images, posts, and videos of individuals with dementia.

Our objective for this discussion was to help bring attention to an issue that has seldom been considered in hopes of furthering the conversation and to help protect individuals with dementia from the potential for abuse, exploitation, and having their images being shared on social media without their knowledge and consent.

All Home Care Matters is featuring a 9 person panel of the world's leading dementia advocates, influencers, educators, and experts to discuss the "Ethics of Dementia and Social Media."

The "Ethics of Dementia & Social Media" came about after having asked the question as to whether a person with dementia should have images and/or videos of themselves posted to social media if they are unable to provide consent?

If the post is done in a positive way, does this change one's opinion as to whether it should be posted or not?

Isn't consent still consent regardless of the purpose and perspective of what is being posted?

Should there be guidelines, policies, and safeguards in place protecting these individuals with dementia from having their images posted to social media either as a photo or video?

The 9 person panel discussion we hosted addressing these questions and this issue will be released on February 14th, 2023 on our Official YouTube channel and on any of your favorite podcast streaming platforms.

All Home Care Matters was honored to welcome Joe Hausch, John Wright, and Roger Anunsen to the show to discuss Photavia.

Photavia is is a unique video content company.

We are time travelers. We are movie makers with purpose. PHOTAVIA creates all-inclusive short video experiences via art/photography, part video/musical experience, part education and part history.

Science: We follow the science that shows pleasant thoughts invoked by visual memory triggers can be of therapeutic benefit to individuals, caregivers and families dealing with dementia, Alzheimer’s, and PTSD, among others.

Art: Our lifelong learning tools that we are developing continuously can reduce anxiety and stress, create reminiscence, and ignite inter-generational conversations with "art that triggers memories”.

Edutainment: Our unique licensing agreements and focus on the The LIFE Picture Collection™ and photos from LIFE Magazine provides incredible iconic content for our G-Rated short two-minute programs that engage, educate and enhance environments. We create Reminisce with Relevance.

Cognitive Enhancement and Engagement Tool: With the specific cognitive benefits of Photo Reminiscence Therapy through all of our programming, we are perfect for seniors in any continuum of care, great in discovery meetings, important for families and extremely good for many living with Dementia or Alzheimer’s.

We can harness the power to Reminisce and there are so many positive health outcomes being discovered every day. In our recent “new world” presentations of new programs with various clients and communities, we are experiencing the Health & Social Benefits of Reminiscing with Relevance™ in real time. We watch better living through imagery happen every day. We’re changing caregiving and lives.

All Home Care Matters was honored to welcome the founder & CEO of Givers, Max Mayblum and the Director of Marketing, Katie Wilkinson as our guest to share how they are helping families and caregivers with resources and financial support.

Max Mayblum is the founder and CEO of Givers. Motivated by his personal exposure to family caregiving and his background in healthtech, he started the company on a mission to help caregivers get long overdue support and resources. Max is a Certified Senior Advisor (CSA)® and is passionate about helping caregivers find joy and connection in their role. 

Katie Wilkinson is the Head of Marketing at Givers. Watching her dad take care of her mom when she was sick gave her a front-row seat to witness the weight of being an unpaid caregiver. Katie is passionate about the intersection of healthcare and technology, and making sure that unpaid family caregivers get the care and compensation they deserve.

Imagine that you were scrolling through a social media site and someone you worked with or one of your family members posted an image or video of you that was less than flattering. Everyone not only saw it but started commenting on it and sharing it. How would this make you feel?

Now consider a person who not only never sees something like this posted about them but doesn’t even understand that they are being ridiculed or exploited. This is what it is like for someone living with dementia. They don’t have the ability to approve or consent to have images, videos and other identifying posts to be shared in this social media-crazed world. These people need to be protected.

It could be you. Every 3 seconds a new case of dementia is diagnosed somewhere in the world, joining the already more than 55 million people living with the disease. Dementia, a general term for a group of similar diseases including Alzheimer’s, is a progressive disease that destroys memory and other important mental functions. While there is no cure, medications and management strategies may temporarily improve symptoms.

We live in a world now where anyone can take a photo or record a video of someone and put it out on social media. But I am capable of making that decision because I understand what is being posted and shared and I understand what social media is. A person suffering with dementia does not and they need to be protected. We need to remember that every person with dementia is still a person and deserves and is entitled to respect and dignity. 

This topic will be the subject of an upcoming “Ethics of Dementia and Social Media” forum featuring nine of the world’s leading dementia experts on the ethics of dementia and social media and will air on YouTube and other podcast providers worldwide on Feb. 14.