Our conversation with Susan Dickinson, Chief Executive Officer of the Association for Frontotemporal Degeneration (AFTD), explores frontotemporal dementia (FTD), a lesser known but devastating form of dementia that primarily affects behavior and executive function rather than memory. 

Susan helps us understand the distinctive signs of FTD, including personality changes, social inappropriateness, and diminished decision-making abilities that often appear in patients’ 40s and 50s — decades earlier than typical Alzheimer's onset. She clearly explains the critical differences between FTD and Alzheimer's disease, emphasizing why an accurate diagnosis is essential for proper treatment, family support, and planning. 

We sit down with Rev. Dr. Jade Angelica, a compassionate minister, spiritual director, and pioneering dementia educator who brings a unique perspective to understanding Alzheimer's disease. Dr. Angelica challenges conventional narratives about dementia by exploring the unexpected gifts that can emerge from the caregiving journey. 

Our conversation delves into the profound concept of "the grace of diminishments" and examines the critical distinction between cure and healing. Dr. Angelica shares insights from her extensive work with the dementia community, highlighting the remarkable strength and resilience she's witnessed among both caregivers and those living with cognitive decline. 

There's nothing more powerful than storytelling, so we asked Marcy Silva, her mother’s daughter and a caregiver, to share her experience of caring for her mother who lives with dementia. Marcy opens up about the unique challenges of caregiving in a rural tribal community, including how she incorporates cultural practices and beliefs into her routine. 

As a natural storyteller, Marcy takes us through her emotional journey from first noticing changes in her mother's behavior to becoming her primary advocate. She discusses how cultural traditions have supported her experience, while offering practical advice on balancing family responsibilities with caregiving duties, finding support networks, and advocating effectively within healthcare systems. Her resilience and wisdom offer hope and guidance to anyone who is walking a similar path.  

In this special Season 11 Revisited episode of Dementia Untangled, we sit down with our editor and producer, Amber Ayers, to reflect on the powerful conversations and insights shared throughout the season. Together, we explore the themes, stories, and expertise our guests brought to the table—and how these experiences have shaped our own perspectives both professionally and personally. 

From innovative care approaches to deeply human stories of resilience, we untangle what resonated most and how we continue to carry these lessons forward in our work and lives. Join us for a behind-the-scenes conversation full of heartfelt moments, laughter, and renewed appreciation for the journey through dementia education and support. 

Helping us explore a transformative approach to dementia care grounded in creativity, empathy, and presence, is Dr. Anne Basting, Professor Emeritus at the University of Wisconsin-Milwaukee and the visionary founder of TimeSlips. She shares her groundbreaking work using creative care techniques that help professional and family caregivers build meaningful connections with people living with dementia. We dive into the power of "beautiful questions," improvisation, and storytelling as tools to engage memory loss with curiosity rather than correction. We learn how shifting from memory-based questions to open-ended prompts can spark joy, connection, and dignity in dementia care. 

In this deeply moving and insightful episode, we sit down with Dr. Rebecca Chopp—renowned author, former university president, activist, and theologian—who is now navigating life with Alzheimer’s disease. Dr. Chopp shares how she continues to nurture her spirit on the dementia journey, using spiritual practices, theological insight, and a deep commitment to living with presence and purpose. 

Together, we untangle how to find your story and reframe your identity after a dementia diagnosis, ways to stay spiritually grounded while facing memory loss and emotional shifts and practicing awe, mindfulness, and presence in everyday life. Her perspective is both honest and uplifting—a reminder that while memory may fade, the soul remains deeply alive. 

Understanding the convergence and divergence of Alzheimer’s disease can be challenging, so we talked to Dr. Crystal M. Glover, an applied social psychologist and mixed methodologist, to untangle this complicated topic. We learn how it affects different communities in different ways, and what that reveals about the broader landscape of health and aging. 

We dive deep into the individual determinants of health—from genetics and environment to socioeconomic status—and how these factors influence the aging process. Dr. Glover shares invaluable guidance on what all people can do to facilitate healthy aging, with an emphasis on equity, inclusion, and cultural understanding. Listeners will also learn about the most impactful social, physical, and cognitive activities that promote brain health and reduce the risk of cognitive decline.  

We talk with Stephanie Brown, LMSW, a hospice and palliative care expert, to explore the delicate and compassionate world of dementia care. She helps us untangle the differences between home health care, palliative care and hospice care, and unpack the philosophies guiding these services. She sheds light on holistic approaches to dementia care, emphasizing the importance of addressing the emotional, psychological, and physical needs of both patients and their families. Learn how to navigate these critical stages with empathy and understanding. 

We welcome back to the podcast Dr. Jeremy Pruzin, a cognitive behavioral neurologist, to explore the modifiable lifestyle factors that can significantly reduce your risk of dementia. From exercise and nutrition to sleep hygiene and mental stimulation, he shares practical, evidence-based strategies to boost cognitive health and protect against neurodegenerative diseases like Alzheimer's. Whether you're looking to improve brain function, slow cognitive decline, or take preventive steps to lower dementia risk, this episode is packed with actionable tips for a healthier brain.  

We’re joined by Cyndy Luzinski, an advanced practice nurse and the executive director of Dementia Together, for an enlightening conversation about dementia care. Cyndy introduces us to the SPECAL Method, a groundbreaking approach to dementia care that focuses on person-centered care and views dementia as a simple disability, rather than a complex and intimidating condition. We explore the concept of the SPECAL Photograph Album, a tool designed to enhance understanding, as well as the Three Golden Rules of dementia care, and how caregivers can positively improve their attitudes to provide better, more compassionate care. This episode emphasizes the importance of empathy in dementia care, where feelings take precedence over facts, offering insight into how this shift in perspective can transform both caregiving and the quality of life for those living with dementia.