Dementia Untangled

When Charnele Brown’s mom was diagnosed with Alzheimer’s disease, Charnele knew that as an actress, director and producer at the height of her career, she had a decision to make. Choosing to be her mother’s caregiver to ensure her comfort and happiness became her new priority, and like so many other caregivers, it consumed her. After her time caring for her mom, she chose to channel her experience into her play, “For All We Know,” sharing her stories and lessons learned about the journey and herself while ensuring others that they are not alone.  

Physical activity not only helps improve mood, increase energy levels, and decrease depression and anxiety, but could it be the most transformative thing you can do for brain health? After feeling the need to add more physical activity in her own life, Dr. Wendy Suzuki, dean of the College of Arts & Science at New York University, became interested in how powerful exercise could be for people with all levels of cognition. We explore the science behind her findings and how her personal experience inspires her to help us make our brains “fat and fluffy,” to stay as cognitively healthy for as long as we can. 

Exploring socioeconomic, environmental, and cultural effects on a person’s health can help us identify some of the contributing factors to what ails us. We investigate this topic further with medical anthropologist and Professor Emeritus at the University of Minnesota Medical School, Dr. J. Neil Henderson, to learn more about connecting non-biological factors like stress to dementia and other diseases, as well as cultural perspective on aging and cognitive changes. We learn about health disparities in Native Americans, and how Dr. Henderson has helped create culturally relevant resources for family caregivers across the country. 

Join us for an inspiring conversation from life partners on a shared dementia journey, Leonard Chayrez and Mark Garrity. When Leonard was diagnosed with early onset Alzheimer’s, the process was so long that once he had an answer about his health issues, he was ready to empower himself and get active in the community. Their experience led them to become local and national advocates for people living with dementia and their care partners, and led Leonard and Mark to embrace their decision to live social, enriched, happy lives. 

Season 9 has revealed interesting themes along with inspirational and educational stories. Our hosts with special guest Amber Ayers once again discuss which episodes surprised them, which ones they felt a connection with, and what they took away from the entire season. Don’t miss this special revisited episode to gain insight into what made this season so unique, and which surprises you will have to revisit for yourself. 

When Kathy Norris-Wilhelm's wife, Jean, was diagnosed with mild cognitive impairment, they knew how vital connecting with the dementia community would be for them to find their way. Kathy quickly became an Alzheimer’s ambassador and advocate, discovering the importance of building their own community of support and publicly sharing their story to raise awareness. Her inspirational story continues in her advocacy work as she honors Jean’s legacy. 

In the second part of our conversation with Richard Lui, a veteran journalist, filmmaker, author, and family caregiver, we untangle the challenges and joys of being a working professional while caregiving for someone with dementia. His unique perspective creates an amazing storytelling experience for listeners. His advice for caregivers, and emphasis on acknowledging your role as one, give invaluable insight for balancing and managing those responsibilities. 

In this two-part conversation with Richard Lui, a veteran journalist, filmmaker, author, and family caregiver, we first discuss his documentaries “Unconditional” and “Sky Blossom,” in which he explores real stories of caregiving and mental health. Focused on closing a cultural gap and finding joy despite difficulty, he takes us through his evolving journey to bring these stories to the world, all while exploring his own caregiving experience for his father.  

As we age, safety becomes a growing concern – not only at home, but also out in the world. Creating a safe environment while maintaining our independence can be challenging, but not impossible. We invited back Lori Nisson, a social worker for Banner Alzheimer’s Institute and Banner Sun Health Research Institute, to talk about how important considerations can be made for someone with dementia whose ability to assess risk and danger decreases as the disease progresses. She helps identify the top three possible scenarios to address first when making a plan with your loved one. 

Dementia is often referred to as a “family disease” because of the effect it has on not only the person living with it, but also the people who care for and about them. As the disease progresses, relationships and family dynamics can change. We connected with Dr. R. Amanda Cooper, a family communication researcher and an assistant professor at the University of Connecticut, to discuss this further. Through her research, she was able to identify four main stages of relational changes on the dementia journey and in turn, learn how to better manage them.