Arthritis Life

In this episode, parents Leeza Broome and Courtney Bruce share why arthritis-specific summer camps have been such a lifeline to their families over the years. As volunteers, they helped start the very first Pacific Northwest family camp for kids with arthritis, “KAT-Fish Camp,” which has historically been put on by the Arthritis Foundation. 

Cheryl also shares her experiences volunteering at the camp. All three speakers share their favorite camp memories from the last two decades and explore the importance of community and belonging in chronic illness communities.

• Diagnosis story: Courtney shares her daughter’s diagnosis story at 18 months, which started with a swollen knee and a misdiagnosis.
• Diagnosis story: Leeza shares her son’s diagnosis story, which started with difficulty getting out of the toddler bed and swollen fingers.
• Why is it important to have family camps for kids with juvenile idiopathic arthritis? Leeza and Courtney share what they’ve learned in the parent education sessions, from advocacy to emotional tips for coping with injecting a child who’s afraid of needles. Cheryl, Leeza and Courtney explore the emotions that parents, children with JIA and siblings experience at these camps including: relief, shared anger at similar negative experiences people have gone through, envy, hope and more.
• Favorite camp memories: all three speakers share their favorite memories, from S’Mores and campfire songs to talent shows.
• Where can you sign up to volunteer at a camp or attend one? Links below!

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Go to the show page on the Arthritis Life website.

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Dr. Codd and Cheryl share specific tips for coping with how an inflammatory arthritis condition (like psoriatic arthritis, rheumatoid arthritis or ankylosing spondylitis) can lead to difficulties adjusting to one’s new role as a parent, in addition to other important roles.

*Celebrating 50,000 downloads of the Arthritis Life Podcast: now through July 15th, enter for a chance to win a Arthritis Friendly Prize Package Giveaway - full details here or at bit.ly/arthritis50 

Episode at a glance:

• Research: Review of Dr Codd’s research on how inflammatory arthritis (rheumatoid, psoriatic, ankylosing spondylitis, etc) affects important life roles including parenting
• Becoming a Parent with Inflammatory Arthritis: A conversation about the complexity of asking for help and how it relates to control, grieving, ableism and independence
• Play is important: how to play with your child when you have pain and tips for coming to terms with how your condition affects your ability to parent.
• Why it’s important for health professionals to address life roles, not just symptom management: Dr. Codd explains how occupational therapists help people with inflammatory arthritis participate in meaningful daily roles and activities and bring joy back to their lives
• Dr. Codd’s best advice for the newly diagnosed

Medical disclaimer:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors
Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode show notes including a full transcript: 

See the episode page on the Arthritis Life Website. 

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

 Dr. Saimun Singla shares her journey first becoming a pediatric rheumatologist (a Pediatrician who further specializes in rheumatology), then becoming diagnosed with adult rheumatoid arthritis after the birth of her second child.  

Dr. Singla’s experiences as a patient changed her approach to her patients, and led her to pursue a fellowship in integrative medicine. She shares what’s in her personal RA management toolbox, from sleep and meditation to medication and exercise. She also reflects on how her experiences ultimately led her to open up her own private practice in Houston, TX.

• How Dr Singla became a pediatric rheumatologist
• Diagnosis: Dr Singla gets diagnosed with adult rheumatoid arthritis after the birth of her second child
• Pregnancy: What it was like to be pregnant before rheumatoid arthritis and after her RA diagnosis
• Integrative Medicine: How Dr Singla’s personal journey with RA led her to pursue Integrative medicine
• What’s in Dr. Singla’s personal RA management toolbox: lifestyle factors like nutrition, sleep ,exercise, medication and other mind-body approaches in addition to medications
• Being both patient and doctor: Dr Singla describes how humbling it’s been to be a patient and how that’s led her to be a more empathetic doctor
• Pivoting career due to RA: how she started her own integrative pediatric rheumatology practice, Rheum to Grow, in Houston, TX which allows her to control her schedule and accommodates her RA needs
• Culture and the patient experience: Dr Singla reflects on how her South Asian identity and culture affects her patient experience
• Dr Singla’s words of wisdom for the newly diagnosed

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

##Full Episode Details & Transcript:
Go to the episode page at www.MyArthritisLife.Net for all links and details!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

People living with rheumatoid arthritis (RA)  and related autoimmune forms of arthritis (such as psoriatic arthritis and ankylosing spondylitis) are at greater risk of developing hypermobility, Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). 

Emily and Cheryl discuss ways for people living with arthritis and EDS or POTS to manage the day to day of their conditions and cope with the ups and downs and uncertainties that come with fluctuating chronic illnesses. They also discuss the role of occupational therapists in helping people with these conditions improve their self-management abilities and confidence in building a meaningful life despite health challenges.

• Emily’s diagnosis story for EDS and POTS at age 14: joint pain, feeling like passing out, digestive symptoms and more
• What is POTS?
• Autoimmune conditions, Covid-19 and POTS: Emily and Cheryl discuss the connections between these conditions
• EDS and Hypermobility Spectrum Disorder and General hypermobility: Emily explains the difference between hypermobility and EDS (which includes one of 13 subtypes being hypermobile type)
• Who diagnoses EDS and POTS?
• Connection to arthritis: Emily and Cheryl review the data about the incidence of POTS and EDS amongst people with rheumatoid arthritis and other related conditions
• Tips for coping when you have both arthritis and EDS: the fluctuation and the uncertainty;  whack a mole - live in the moment, acceptance
• What’s in Emily’s toolbox for coping with POTS and EDS: sleep routines, hand splints, planning ahead, energy conservation and more
• What is the occupational therapist’s role in helping people manage dysautonomia and EDS? Sleep hygiene, energy conservation, fatigue management, pain tools, teaching strategies and more
• Self-Management for Chronic Conditions: Emily and Cheryl share insights into this often overlooked area of need for many patients.
• Emily’s best advice for people newly diagnosed with EDS and/or POTS

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

For full episode show notes, including links discussed in the episode and a full transcript, go to the show page on the Arthritis Life website: www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Kori and Cheryl discuss ways to approach assessing the risks versus benefits of medications from the "shared decision making" model. They also explore how insurance barriers in the United States can make medication decisions all the more complex. Kori shares her tips for getting prescription medication support, as well as her words of wisdom for diagnosed patients.  The conversation concludes with a discussion of the latest research developments Kori is most excited about in the world of rheumatology.

• What is an Advanced Registered Nurse Practitioner (ARNP)? What is the role of the nurse practitioner on the rheumatology team?
• Tips for making medical decisions: Kori explains how she helps her patients assess the risks of treating (like medication side effects) versus the risks of undertreating (like disease progression).
• What to do if you have insurance barriers to medication: Kori discusses insurance barriers and gives tips including copay cards, patient assistance programs, ways to proactively research medication costs, and what the deal is with prior authorizations and specialty pharmacies
• Advocacy: Cheryl and Kori discuss how patients can support reforms to healthcare through sharing their stories
• Newly Diagnosed: Kori’s words of wisdom for newly diagnosed patients
• Latest research developments: What recent innovations in the field of rheumatology Kori is most excited about?

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Go to the Arthritis Life Website at: www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Melissa shares how she learned to be a more effective advocate over time, and provides insights into how she copes with the ups and downs of chronic illness life.

Episode at a glance:

• Melissa’s Diagnosis story for Lupus & Type 1 Diabetes as a nine year old
• Melissa becomes a mental health occupational therapist while managing her conditions
• Melissa shares her treatment ups and downs for lupus, including medications and lifestyle factors such as exercise and stress management
• Advocacy: Melissa shares her journey towards becoming a health advocate
• What to do when your supporters or caregivers don’t “get it?”
• Melissa’s Best Advice for people newly diagnosed with Lupus and/or Type 1 Diabetes
• Melissa’s Mental health / coping tips for chronic illness life

Medical disclaimer:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors
Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

• How Cristina’s postpartum flare up and difficulty with pain control led her to delve into medical cannabis; helped especially with fibromyalgia. 
• Cannabis, CBD & THC 101: 
  • How the endocannibinoid system (within our body) helps with homeostasis, memory, pain, mood, inflammation and even skin.
  • The difference between cannabis, help, THC, CBD, endocannabinoids and phytocannabinoids
• What people with arthritis might want to know about how cannabis affects pain, inflammation, sleep, anxiety, appetite and mood (including a discussion of what risks there are versus benefits) 
• What are the different methods of consumption for cannabis (Sublingual, Topical creams, Transdermal patch, Oral Suppositories (vaginal), inhalation, IV and more)
• Where to find valid information about CBD and chronic pain
• Where to find a dispensary: - check the laws in your area; five things Cristina looks for in a cannabis dispensary
• Communication to medical team: Cristina discusses the importance of this
• Cristina answers listener questions
• How to learn more from Cristina

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadma

p, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

##Full Episode Details + Transcript

See the Arthritis Life Website at www.MyArthritisLife.Net for full details, including a transcript!

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Meaghan shares her journey growing up with juvenile idiopathic arthritis, which turned into psoriatic arthritis (PSA) in her twenties. She busts common myths about PSA and delves into the importance of advocacy, mental health, sharing our stories and more.

##Episode at a glance:

• Meaghan’s Diagnosis story / saga for JIA and then PsA: medical gaslighting, delays in care, learning to advocate for herself and more
• What does Meggie Wish People Knew about PSA? Dispelling common misconceptions
• Meggie’s advocacy journey: from insurance step therapy to formal advocacy
• Relationships: Meggie reflects on dating with arthritis and shares how her husband supports her
• Meggie reflects on the importance of mental health & how being open about her diagnosis helped her
• What’s it been like to share your story online? Meggie shares her story writing for Bezzy PSA from Healthline and sharing her story on social media
• Meggie’s advice for newly diagnosed patients
• Where to find Meggie: Instagram: @Arthritis_Meggie 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. 

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. The next group starts in April 2022!

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

As a child and teenager growing up with juvenile idiopathic arthritis, Jen Blair often felt lonely, isolated and "broken."  Fast forward to the present: Jen is a  mother of three, accepts her "new normal" and has come to see herself as strong rather than broken. 

This episode delves into Jen’s story and includes details about her different prescription treatments, how she came to embrace exercise and dietary contributions to her health, her pregnancy and parenting journey and her experiences both with working and being on disability.
Episode at a glance:

• Jen’s diagnosis story of juvenile idiopathic arthritis
• Jen’s treatment journey over the years: biologics, exercises, nutrition, serial casting (which is no longer done for JIA) and more
• Pregnancy with JIA & RA
• What is it like being a mom of three children while living with JIA? 
• Jen’s emotional journey: as a teenager and young adult, experiences loneliness, isolation, yearning for acceptance, and feelings of being “broken.”
• Jen’s experiences working in different environments and then going on disability
• Jen’s advice for people newly diagnosed with inflammatory arthritis

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Rheum to THRIVE, a community support & education program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Join the waitlist for the next group, which starts in September 2022!

Rheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis.

Go to www.MyArthritisLife.Net

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Emily Johnson, the Arthritis Foodie, shares her journey from medical gaslighting to a diagnosis of seronegative arthritis during her university years. She and Cheryl discuss how they combine lifestyle changes with western medication to manage rheumatoid arthritis. 

Emily also explains how her experiences inspired her to write a book about lifestyle changes for rheumatoid arthritis, called “Beat Arthritis Naturally.” Cheryl and Emily discuss the wisdom of a “both/and” rather than an “either/or” approach to combining pharmaceutical with lifestyle approaches to disease and symptom management. They also share insights on how they cope with fluctuating symptoms and difficult times with self-kindness.

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Please go to the show page on MyArthritisLife.Net for full episode show notes and a transcript.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.