Arthritis Life

Topics include:

• Joel shares what it was like to grow up with juvenile idiopathic arthritis
• Joel explores the vulnerability of doctor patient interactions and the concern chronic illness patients often have of being perceived as hypochondriacs.
• Joel and Cheryl discuss the imperfections of our current health systems, and the fact that “No Established Cause doesn’t mean No Problem.”
• A group Pain Management program helps Joel rewire how he thinks about pain
• Cheryl & Joel share tips and exercises for mental wellbeing despite chronic illness

Speaker Bios:

Joel Nelson: Writer. Arthritis Advocate. Dad. Sharing my story of Juvenile Idiopathic Arthritis to raise awareness. Specialising in pain, parenting and mental health. Also writes for leading charities and organisations.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Episode links:

• Joel links:
  • Blog: https://joelvsarthritis.co.uk/
  • Joel’s Facebook: https://www.facebook.com/joelvsarthritis.
  • Joe’s Twitter: https://www.twitter.com/joelvsarthritis.
  • Joe’s Instagram: https://www.instagram.com/joelvsarthritis.
  • Joel’s Youtube Channel: https://www.youtube.com/channel/UCZrEJm2eWSSpXx8qMTjdgWA?view_as=subscriber
• Books and resources
  • The Happiness Trap book explaining Acceptance and Commitment Therapy concepts
  • Versus Arthritis nonprofit with helpful resources
• Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Arthritis Life Program Links
  • Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. 
  • Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
• Cheryl’s Arthritis Life social media pages:
  • Cheryl &  Arthritis Life on Instagram
  • Cheryl’s website: Arthritis Life
  • Arthritis Life Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
  • Arthritis Life Youtube channel

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

1:00 - Introduction and Joel’s diagnosis story.

3:00-11:30 - Joel reads from his blog post, “No established cause doesn’t mean no problem.”

11:45 - Cheryl & Joel discuss the vulnerability of seeing new specialist doctors. Joel expands on his experiences with the neurologist who had not reviewed his medical chart.

15:15 - Cheryl & Joel discuss being worried about being perceived as a hypochondriac, and the challenges of filtering what information you share with a doctor / medical provider.

22:45 - Joel expands on his emotional response to the test results letter he received from the neurologist with his test results.  Cheryl & Joel discuss the imperfections of our current health system.

28:00 - Cheryl expands on how patients who have difficulty functioning in daily life deserve access to care, for example occupational therapy, even if there is “no known cause.”

30:00 - Joel explains what his GP (primary care) said after his neurological test results were normal. He went through pain management therapy which included disability adjustment training. He made a conscious choice to put his energy into adapting to it and making peace with it, yet continues living in fear that a neurological episode will happen again. 

35:30 - Joel talks about his Pain Management program, which included group therapy, individual therapy, occupational therapy, physical therapy, learning about pain and special wellbeing topics. It helps him “rewire how he thought.” 

40:00 -  Cheryl’s perspective about finding a balance between trying to heal or eliminate pain, and building our capacity to adapt to our life as it is, even including pain.

42:30 - Joel describes a helpful exercise from his pain management program: writing down the biggest issues with your current situation and recognizing that pain wasn’t necessarily the biggest problem, it was partly the spiraling thoughts around it. 

46:30 - Cheryl’s analogy for positive versus negative thoughts - like a radio station you can choose to fight them, try to constantly turn them up or down or drown them out, or we can just acknowledge that they are simply there, sometimes they’re helpful, sometimes not and I can continue going where I want to go despite them. 

48:00 - Joel’s realization that he might not be able to turn “off” the negative thoughts, but he can let them have less power over him. Example of his work as an IT manager and how he struggles with guilt when he takes time off.  

51:30 - Cheryl and Joel reflect on how having to say no and take sick days challenges your sense of self. Discuss the challenges of activity pacing when you are a parent.

55:00- Concluding thoughts - link between physical and mental health. Don’t be afraid to ask your medical providers questions and be involved with decision making.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Episode at a glance:

• Renee’s diagnosis journey after a decade of mystery symptoms
• How rheumatoid arthritis has affected Renee’s parenting and homeschooling
• Renee’s Christian faith helps her cope with challenging times
• Cheryl and Renee share their different treatment choices (western medicine and natural only approaches) and how important it is to respect each other despite different choices
• How Renee adopts an anti-inflammatory lifestyle
• The dark side of focusing on wellness and diet: Renee shares about orthorexia, an unhealthy obsession with healthy food
• Why Renee started her Rheumatoid Arthritis Mamas Sisterhood Facebook group

Speaker Bios:

Renee is a former middle school teacher turned homeschooling mom of three. She’s been married for 17 years and lives in West Michigan. She started The Rheumatoid Arthritis Mama after her RA diagnosis in late 2017 when she began sharing her journey, faith, and experiences with RA openly and authentically on Instagram and Facebook. 

Since then, Renee has been interviewed by and featured in media outlets such as Healthline, Health Central, CreakyJoints, WEGO Health, Self Magazine, and more. Her Facebook support group, The Rheumatoid Arthritis Mamas Sisterhood, has nearly 2,000 members and she uses the group as a space for all women to come together regardless of their treatment choices to support one another, share their experiences, and connect with other autoimmune disease warriors. 

Renee has a passion to support and encourage other women (especially moms) who are battling autoimmune diseases. Her goal is to provide others with encouragement and hope, feel less alone, and inspire them to live their best lives despite battling autoimmune disease. Her newest endeavor, a podcast called Every Day with Autoimmune, is set to launch during the summer of 2021!

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for eighteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Episode links:

• Things discussed in episode
  • https://www.nationaleatingdisorders.org/learn/by-eating-disorder/other/orthorexia
  • ACR guidelines
  • “Food freedom” Elizabeth Dahl - woman of wellness -
• Renee links
  • Instagram: https://www.instagram.com/the_rheumatoid_arthritis_mama/
  • FB: https://www.facebook.com/TheRheumatoidArthritisMama/
  • FB Support Group: http://www.facebook.com/groups/TheRheumatoidArthritisMamasSisterhood
  • 
     
• Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Arthritis Life Program Links
  • Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.
  • Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
• Cheryl’s Arthritis Life social media pages:
  • Cheryl &  Arthritis Life on Instagram
  • Cheryl’s website: Arthritis Life
  • Arthritis Life Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
  • Arthritis Life Youtube channel

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the detailed show breakdown:

2:14 - Renee’s journey getting her RA diagnosis after a decade of mystery symptoms. 

5:23 - Renee has mixed emotions after her diagnosis: fear and confusion, mixed with relief that she finally had a definitive answer. 

6:45: Discussion about how common it is for people with autoimmune symptoms to be dismissed by medical professionals.

8:30 - How Renee’s three children have become more compassionate and sensitive as a result of mommy’s rheumatoid arthritis. How she initially tried to hide her diagnosis from them, and how she then realized she needed to be open with her children and husband.  

13:15 - Renee opens up about her infertility journey and what she learned about communication, stress management and how to relinquish control.

15:40 - How Renee structures her daily routine to suit her RA needs and her family’s needs.

18:10  - How Renee’s Christian faith and eternal perspective helps her cope with RA.

20:00 - Cheryl reflects on how, despite being an agnostic / atheist now, she carries forward lessons she learned as a child about the importance of unconditional love and the idea that everyone is worthy even if they have a health challenge.

21:55 - Cheryl & Renee discuss how different people have different treatment paths and the divides within the RA community at times between a “natural” and a “western medication” approach. How Renee explored lifestyle and diet and worked with a functional medicine doctor. 

26:35 - While Renee is able to control her RA with lifestyle and diet, she will never fault or judge anyone for taking medication.

27:35 - Cheryl’s perspective as someone on three RA medications. The importance of differentiating as patients between sharing our experiences and then making the leap that *because* it worked for me, it 100% will work for you. Important to remember the current scientific evidence at the population level favors an early aggressive medication approach. 

29:20 - How Renee’ focuses on an overall anti inflammatory lifestyle; an integrative approach - not “either/or” but “both.” 

30:00 - How Renee’s experience with unkindness and negativity in Facebook groups inspired her to start her own group: the Rheumatoid Arthritis Mamas Sisterhood.

34:05 - The dark side to obsessing over “healthy food,” you can become orthorexic - obsessive with eating only healthy or “clean” foods.

36:35 - Patients are the expert on our own patient journeys but that doesn’t mean that we know what will work for another patient. 

37:10  Renee shares the foods that trigger *her* inflammation. 

38:45 - How Renee healed herself from her negative emotions around food and has built a healthy relationship with food through Elizabeth Dahl, a food coach. How to learn food is not the enemy. Learning to be careful about what she eats without being militant has helped her.

43:35 - Discussion of disease-specific Facebook groups, how it’s important to have a place to vent sometimes but it’s also important to find groups that suit your needs, and if you’d like a more supportive and positive place there are groups for that too.

47:25 - Concluding thoughts.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Specific topics include:

• Julie’s experience with multiple knee surgeries 
• Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 months
• How a trip to Disney World led to Julie’s epiphany that she should share her story and start a blog
• How Julie put her Information Technology (IT) degree to use while tracking her symptoms and discovering her unique inflammation triggers
• How Julie discovered the most important tools for living a healthy, full life with PSA
• Julie’s current role as a patient advocate with WEGO health
• How PSA affected Julie’s dating life and how she met her now husband
• Julie’s experiences with pregnancy and parenting with PSA

This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Speaker Bios:

Julie Croner, a psoriatic arthritis patient leader, is on a mission to advocate for ALL advocates. She's the Vice President of the Patient Leader Network at WEGO Health and was named to MM&M's inaugural class of 40 Under 40 in 2020. Julie has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. 

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Episode links:

• Julie’s sites:
  • Blog: Itsjustabadday.com 
  • Twitter: twitter.com/justagoodlife 
  • Facebook: Facebook.com/itsjustabaddaynotlife
  •  Instagram: Instagram.com/itsjustabaddaynotlife 
  • LinkedIn: www.linkedin.com/in/juliecerrone  
  • Blog Email: [email protected] 
  • Work email: [email protected]  
• Organizations mentioned in this interview:
  • WEGO Health
  • MothertoBaby - research studies of medications and pregnancy / breastfeeding
  • Mindful Mamas App
• Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Arthritis Life Program Links
  • Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. 
  • Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
• Cheryl’s Arthritis Life social media pages:
  • Cheryl &  Arthritis Life on Instagram
  • Cheryl’s website: Arthritis Life
  • Arthritis Life Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
  • Arthritis Life Youtube channel

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

1:00 - Introduction to Julie.

2:00 - Julie’s winding journey to a psoriatic arthritis diagnosis: knee surgeries / swelling from fifth grade until after college and during work as an Information Technology (IT) consultant.

4:55 - Julie gets the adult diagnosis of psoriatic arthritis (PSA) and her rheumatologist helps get it under control. She’s able to connect the dots of her chronic health issues in retrospect and see how it all relates to psoriatic arthritis (PSA).

8:24 -  Julie also experiences avascular necrosis in the femur bone (leg) which led to complex regional pain syndrome (CRPS). She started connecting to other patients online, got medication for PSA and started exploring diet and lifestyle. 

9:48: Julie researches anti-inflammation lifestyle approaches, and uses her IT consultant skills to make an excel spreadsheet to track everything (food, movement, mood, medications, etc) for 6 months and discovered her unique inflammation and flare  triggers.

 10:55 The BEST thing she did in her journey!

11:20 - Julie discovers that her body is sensitive to food triggers. She discovers that gentle movement, meditation and mindfulness helps her. She continues going on and off medications when needed. 

12:40 - Cheryl reflects on the importance of discovering your own unique triggers and not thinking there is a one size all solution. 

14:00 - Julie’s worst food triggers for joint inflammation. (15:12) 

15:44 - Julie is bedridden for 6 months due to her Avasular Necrosis and is depressed. Her parents take her to DisneyWorld and she has an epiphany after doing a singing competition!  She decides to share her story through starting a blog: “It’s just a bad day not a bad life.”

19:20 - After being on disability for four years, she decides to focus on a career in patient advocacy rather than IT consulting.

20:30 - Julie starts working for WEGO Health, a network of patient leaders. She helps patients and loved ones use their story and get connected to companies wanting their insights.

23:40 - Why Julie thinks it’s so important for patients to share our stories: how she found an answer to her avascular necrosis due to seeing another patient’s story online.

26:50 - How Julie’s health conditions affected her dating life, and how she met her husband. Her husband said, “You talk like you USED to be great, and the person I see IS really great! (28:13)”

30:00 - How did PSA affect her family planning with her spouse who is in the army. When pregnant she felt very nervous and overwhelmed.  She signed up for a MothertoBaby study.

33:45 - During her first pregnancy PSA went into remission, psoriasis in 1st trimester. Second pregnancy didn’t go into remission. 

35:15 - What helped her when babies were little: asking for help, planning ahead, pacing yourself. 

37:15: How Julie copes with big emotions while parenting: Headspace app and Mindful Mamas app. 

39:36 - Julie’s best advice for newly diagnosed patients - empower yourself and be a partner with your medical team.

40:45 - Cheryl and Julie’s advice to patients who are overwhelmed when “doing their own research” - how to evaluate which resources are high quality information and which are low quality or dangerous. Reflections on how to navigate disease-specific Facebook groups.

44:15: Julie’s concluding thoughts: if you are dealing with an autoimmune disease, you are not alone.

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Episode at a glance:

• Eileen shares her rocky road to an RA diagnosis when he son was two years old
• How Eileen's blog led her to patient advocacy and research 
• How symptom tracking helped Eileen reduce pain and improve fatigue
• How exercise helps Eileen reduce pain and improve fatigue
• What it's like to be a single mom with RA
• Reflections on  mental health while living with chronic illness

Speaker bios:

Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver British Columbia Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador. When not advocating she is writing about her experience with arthritis through Creaky Joints, Chronic Eileen or can be found being a mom to her son Jacob.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

This episode is brought to you by Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. 

Episode links:

• Find Elieen’s writing on:
  • Chronic Eileen - Eileen’s blog and website
  • Arthritis Society - Canadian nonprofit 
  • Arthritis Research Canada 
  • CreakyJoints - research opportunities and Eileen’s writing
  • Arthritis Power app from CreakyJoints
  • Arthritis Foundation - research and advocacy opportunities
  • American College of Rheumatology - patient advocacy and engagement opportunities
  • What it’s like to have a mom with arthritis: Article written by Eileen’s son Jacob
  • Example article of Eileen’s from Healthline
  • Eileen on Instagram: @chroniceileen 
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
  • Facebook group: Arthritis Life Podcast, Practical Tips and Positive, Realistic Support
• Arthritis Life Program Links
  • Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. 
  • Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
• Cheryl’s Arthritis Life pages:
  • Cheryl &  Arthritis Life on Instagram
  • Cheryl’s website: Arthritis Life
  • Arthritis Life Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
  • Arthritis Life Youtube channel

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

1:40 - Eileen’s diagnosis story: many years of symptoms prior to her diagnosis when her son was two years old. 

5:50 - How Eileen’s symptoms affected her ability to take care of her baby. 

8:16 - Eileen’s devastation after receiving her diagnosis due to seeing her aunt suffer from severe rheumatoid arthritis and pass away the same week.

10:00 - How Eileen learned to trust her medical providers.

11:20 - What helped Eileen learn to cope with her RA and share her story publicly; how others responded to her story and how  writing introduced her to advocacy efforts.

15:00 - How others’ negativity motivated Eileen, and Eileen shares some of the positive responses to her writing.

17:45 - Eileen describes participating in arthritis research on symptom tracking using a FitBit, with a physiotherapist. Through tracking she started seeing patterns between menstrual cycle, sleep, exercise, rest.

22:30 -  Eileen learned the benefits of strength training and helped researchers explore barriers to patients participating in strength training. 

26:00 - Physical activity doesn’t have to look like formal exercise, it can be as simple as gardening, Zumba, yoga, or dancing.

29:00 - How the pandemic affected Eileen’s exercise routine and pain levels.

31:30 - How exercise helps Eileen with fatigue. 

34:00 - Eileen shares her journey with depression and mental health.

36:20- What’s helped Eileen cope with depression and anxiety from rheumatoid arthritis & pain.

38:00 - Eileen’s advice to other parents with rheumatoid arthritis and reflections on what her son has learned from having a mom with a disability.  

41:00 - How her rheumatoid arthritis has made her a better mom and changed her priorities

44:20 - The different forms patient advocacy can take.

46:00 - Eileen’s final message: if you’re interested in getting involved in research, don’t hesitate! 

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this episode, Cheryl & Jamie discuss:

• Jamie’s challenging diagnosis journey
• The difference between her pre-psoriatic arthritis pregnancy and parenting experience and her experience being pregnant with psoriatic arthritis, including a discussion of medications
• The difficulties of being a young person with rheumatic disease
• The challenges of family planning with rheumatic disease: whether to have another child or not?
• What it’s like to live with anxiety along with rheumatic disease
• Balancing gratitude and grief
• Learning to overcome “mom guilt”
• Our children need us to be present not perfect

Speaker bios:

Jamie lives in Gloucestershire, England, with her husband and their two children; Harper aged 4 and Kit who is almost 5 months. She was diagnosed with psoriatic arthritis in early 2019 and is still in the process of “learning” her condition. She is a freelance writer and self proclaimed coffee addict who is passionate about combining traditional and holistic approaches to find the best combination to manage her chronic illness.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. 

Episode links:

• Resources mentioned in the episode:
  • American College of Rheumatology clinical guidelines for pregnancy with rheumatic disease
  • Mamas Facing Forward - website
    • Books for children to learn about parents with a chronic illness
    • Social media accounts: Instagram  https://www.instagram.com/MamasForward/
  • Versus Arthritis website
  • Fooled by Randomness book
• Jamie’s Socials
  • Instagram @mama.bear.squares
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Cheryl’s Arthritis Life social media pages:
  • Cheryl on Instagram
  • Cheryl’s website: Arthritis Life
  • Cheryl’s Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
• Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Medical disclaimer:

All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

01:00 – Jamie’s introduction and her initial health issues: consistent pain in her fingers, spine, and neck after her first child was around two years old. 

05:00 – Jamie struggles to get treated seriously by doctors. She’s diagnosed with psoriatic arthritis after originally her doctors said she was “too young” for it. 

5:35 - She and Cheryl discuss their similar diagnosis journeys with medical gaslighting, how both of them had to have their parents advocate for them and spend money on additional doctors before they got their diagnoses. 

7:30 - Discussion of anxiety as a result of untreated / undiagnosed chronic illness. Jamie & Cheryl discuss their experiences getting therapy for anxiety and coming to terms with it.

9:45 – Jamie’s first pregnancy without psoriatic arthritis, as compared to her second pregnancy with it. Discussion about medication decisions and how difficult it was to decide whether to have another child or not.

12:08 - What was it like to be pregnant with psoriatic arthritis during COVID19 pandemic (in 2020)? Includes a discussion about the pregnancy-induced remission she experienced. 

14:30 Jamie discusses her experiences breastfeeding and difficult postpartum medication decisions. Cheryl and Jamie discuss how complicated medical decisions are in the context of a family system, not just what’s “best” for the baby. 

16:30 - Jamie discusses comfortable ways to hold the baby during breastfeeding and the ways in which aspects of the newborn process are easier due to lockdown.

18:00 - Jamie discusses her mixed feelings about using adaptive aids or gadgets in the home, as a young person with arthritis.

20:00 - Balancing gratitude and grief as a mom with a disability.

22:00 - The importance of learning how to adapt continuously, rather than seeing your chronic illness as having an “end point.” 

23:15 - How Jamie’s flare up affects her ability to parent her “big kid” (her 4 year old) and her feelings of mom guilt, complicated by the fact that she’s experienced parenting her child prior to her diagnosis.

26:10 - Cheryl and Jamie discuss how difficult it can be to decide whether to have additional children when you have a rheumatic disease, and how to spread out the space between your children. 

34:45 - Cheryl parenting mantra: “My son needs me to be present, not perfect.”

36:00 - Learning to enjoy the simple pleasures with your children.

39:00 - How Cheryl & Jamie explain their conditions to their children and how it’s helped their children develop empathy.

42:00 - Coping with feelings of “unfairness” when you get diagnosed with an autoimmune disease when you had previously been healthy and had healthy behaviors.

45:00 - Fears of passing your autoimmune condition on to your children. 

47:45 - Mamas Facing Forward - resource for moms and moms to be living with chronic illness. Includes books for children about parents that have disabilities.

50:00 - The importance of having clear expectations to your partner and delegating if possible when raising children.

55:00 - The role social media plays in Jamie & Cheryl’s lives; a blessing and a curse. It can be confusing as the diseases differ drastically between people.

58:00 - What the word “progressive” meant to Jamie when diagnosed and how that has changed over time with the modern treatment options and medication. 

1:01:00 - Cheryl’s experience when newly diagnosed, having faith in the medications.

1:05:00 - The importance of considering how representative the stories that you’re looking at on social media are. When things are going well, people aren’t on the disease-specific social media groups.

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In this episode Cheryl explains how Acceptance and Commitment Therapy (ACT) has been key for her to build a life she loves despite chronic illnesses. She also shares how she’s found a balance between ways to minimize pain and ways to live a good life despite pain. Additionally she urges listeners to ask, “Can I live a good life despite rheumatoid arthritis?” rather than “Can I live a normal life with rheumatoid arthritis?” 

Speaker bio:

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare she say) FUN patient education and self-management resources. 

Links to things discussed in the podcast episode:

• Rheum to THRIVE membership - sign up today (registration closes on March 31)!
• Articles mentioned in this episode:
  • Summary of research article: “Rheumatoid arthritis: 80% of sufferers can now live a “normal” life
  • JAMA article: Diagnosis and Management of Rheumatoid Arthritis: A Review
  • Marcel the Shell with Shoes on (“Compared to what?”)
  • Russ Harris: The Happiness Trap
  • Acceptance and Commitment Therapy info page
  • 8 Lessons Learned Postpartum - my blog post from 2014
  • 10 years with RA - what’s the impact? - blog post from 2013
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Cheryl’s Arthritis Life social media pages:
  • Cheryl on Instagram
  • Cheryl’s website: Arthritis Life
  • Cheryl’s Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
• Free Facebook group to discuss the podcast and connect further with others: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Show notes:

• 1:20 - Why I chose this topic for today’s episode.
• 3:00 - Does “normal” mean lack of severe joint damage? Research study showed 80% of people with rheumatoid arthritis can live a “normal life.”
• 5:00 - What is your definition of normal - compared to what?
• 7:00 Is a “normal life” the exact life I imagined for myself pre-diagnosis?
• 7:55 - Is a “normal life” one where I can experience things that are important and achieve meaningful goals and life experiences?
• 10:05 - Can you live a normal life with RA? It depends on what your definition is, and what your hopes and dreams are underneath your concept of normal.
• 10:35:  You may not get the normal you wanted or expected, but can you find a NEW normal you can learn to love?
• 12:40 - There is no guarantee for anyone of a pain free life. Confronting that reality head on can free us from pressure and energy to try to achieve a perfectly pain free life, which is impossible for most.
• 15:00 - How my therapists taught me the futility of trying to avoid pain and anxiety.
• 15:45: “The hope is that you can still live a good life despite inevitable pain and suffering, that’s the hope, the hope isn’t that you can avoid it, because avoidance is not a long term sustainable strategy .”
• 16:00 - We can and should gather evidence based tools to manage and minimize our pain and function on a daily basis, however: “If we ONLY focus on the tools to MINIMIZE pain, the problem can be the expectation or belief that we attach to the idea that if we JUST have the right tools we are going to 100% be guaranteed to avoid all pain, and I do wish that were true, but realistically it’s just not true for most people because, pain, physical or mental, is an inevitable part of the human experience.”
• 17:15 - Difference between pain and suffering.
• 17:55 - I was dragged “kicking and screaming” into acceptance. If you are confused, you’re not alone!
• 18:45: True acceptance of the PRESENT moment is completely different than giving up or resignation.
• 20:10 - When we’ve done everything we can to reduce pain, instead of struggling with that, we can focus on: what can we still do in the present moment?  What can I still DO that ’s important or valuable to me, DESPITE the pain? I eventually learned to let go of the illusion that if I just do the RIGHT THING I could ALWAYS avoid pain, and once I let go, I was  set free.
• 21:30 - Balancing act between plan A (using tools to minimize symptoms) and plan B (tools to “workaround” symptoms and function despite them).
• 22:20 - We spend a lot of time running away from pain and running away from our disease, but what if we spent more time running TOWARDS things we can still do that are valuable?
• 23:05 - What I  dislike about a “normal” life being defined as one without disease -  feels ableist to me
• 24:15 - My old optimism: if I just find the right solution my pain will go away, RA will have no affect on my life. New optimism: me and people with it can still live rich, meaningful lives DESPITE discomfort.
• 27:15 - My new mission: finding a balance between controlling symptoms/minimizing symptoms *and* focusing on maximizing our quality of life despite it.
• 27:30 - Why I developed Rheum to THRIVE membership community and what it stands for.
• 28:45 - So many people get stuck in this mentality that they have to WAIT until their symptoms are fully controlled before attempting to thrive or live a full life, and I really encourage you to see what is still possible in your life. What can you still do and enjoy and accomplish despite your condition?
• 29:25: Can you live a normal life with RA? Depends on your definition of normal!
• 29:45 - The question I like to ask more than “can I live a normal life with RA:” Can I live a GOOD life with RA? Can I be of service to others, can I leave the world better when I leave it than when I found it?  I think YES.

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James and Cheryl discuss in detail how they manage fluctuating symptoms and pain from chronic rheumatic diseases. James also explains how his patient journey led him to create his innovative 3-D symptom tracker app, Chronic Insights.

Speaker bios:

James Allen is 39, and has lived with ankylosing spondylitis (AS) for 22 years. He likes to think of arthritis as a clumsy housemate who moved in without permission, who he used to hate but over the years he’s grown to kind of like. It forced him to leave his job as an IT consultant, which in retrospect has been a positive development, because now he’s doing something he really loves - developing a symptom diary app called Chronic Insights.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. 

Episode links:

• Where to follow James:
  • James’ Chronic Insights Instagram: @chronicinsights
  • Email James: [email protected]
  • Website: https://chronicinsights.com/
• Book James Recommends: “Practicing Mindfulness” audio book
• Cheryl’s free webinar on March 26th - Sign up here
• Wait list for Rheum to THRIVE membership 
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Cheryl’s Arthritis Life social media pages:
  • Cheryl on Instagram
  • Cheryl’s website: Arthritis Life
  • Cheryl’s Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
• Free Facebook group to discuss the podcast and connect further with others: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support

Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

• 02:30 - James shares his relationship to his Ankylosing Spondylitis (AS), it’s like someone who moves into your house who at first you try to make go away, then you make peace with it.
• 05:30- Cheryl and James discuss how metaphors and Acceptance and Commitment Therapy (ACT) help them cope with chronic illness.
• 10:00 - James’ journey getting his initial diagnosis of Ankylosing Spondylitis quickly due to his dad’s help.
• 12:20 - James’ journey managing his AS; initially it was pushed to the back of his mind, then it gradually worsened over time and he sought therapy to help with the struggle.
• 17:10 - Cheryl and James’ important lessons/insights about the importance of communicating your pain levels to your providers. How hard it can be to admit you are in a lot of pain.
• 19:40 - James’ switch to his first biologic, Humira and how it changed his life for the better.
• 21:00 - Cheryl and James discuss the phenomenon that many patients are scared of medications, and how the risk / benefit analysis is different for each patient.
• 23:50 - James enjoys activities like running a half marathon while his medication worked.  Then, experiences his medication wearing off after years of success, which was a massive blow mentally.
• 25:50 -  James starting over with medications, trying different biologics. He experiences progressive deterioration of his health which negatively affects his work life.
• 30:50 - James’ condition progresses to where he has difficulty getting out of bed and his partner has to help him with daily living tasks. He hits rock bottom.
• 32:50 - James comes across meditation and mindfulness, leading to breakthroughs in his ability to manage and cope with pain. He learns to be curious about his pain and develops the ability to observe himself and empathize with his experiencing pain, and eventually accept it.
• 36:50 - Cheryl explains the importance of the developing mental tools to cope with the uncertainties that come with chronic pain and chronic illness.
• 39:50 - James discovers slow and gentle somatic exercise, which helps him relax and relieves joint stiffness and tension.
• 41:50 - The benefits of the reclined exercise bike and a sit/standing desk for James’ back and hip pain.
• 43:50 - How James sometimes allows himself to have a “bad day” and wallow to help his mental wellbeing.
• 46:50 - Cheryl dives into acceptance and commitment therapy.
• 48:50 - James’ challenges with difficulty rating his pain on a scale of 1-10, and why that inspired him to create an app for tracking symptoms.
• 51:20 - Cheryl and James explain the difficulties of rating pain.
• 53:00 – James elaborating on how he developed his symptom diary app, Chronic Insights, which allows you to draw your symptoms onto an interactive 3-D model.
• 57:00 - James’ shares the impact of  having a visual representation of your pain (via his app), and shares the feedback from others who’ve been using the app.
• 1:04:00 - Where you can find James

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Speaker biographies: 

Dr. Micah Yu is double board-certified in internal medicine and lifestyle medicine. He obtained his MD from Chicago Medical School and holds a Masters in Healthcare Administration and Biomedical sciences. He completed his internal medicine residency and rheumatology fellowship at Loma Linda University in Southern California. He has been accepted with a full scholarship to the Andrew Weil Integrative Medicine Fellowship at the University of Arizona.   Dr. Yu has a very unique perspective on autoimmune disease and arthritis as he is both a patient with arthritis and a physician.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. 

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Links to things discussed in the episode:

• Dr Micah Yu website /socials
  • Clinic website: www.drlifestyle.org
  • TikTok: @myautoimmunemd http://tiktok.com/@myautoimmunemd
  • Instagram  @myautoimmunemd  http://instagram.com/myautoimmunemd
  • Youtube: Dr Lifestyle https://www.youtube.com/channel/UCxUp6EwvcIntKm6o4jn6sIA
  • Facebook: https://www.facebook.com/MYAutoimmuneMD/
  • Twitter: https://twitter.com/myautoimmunemd
• Dr Yu’s Recommended reading / viewing:
  • Documentary - Forks over Knives
  • Book - How Not to Die
  • Dr. Andrew Weil
  • U of Arizona Integrative Medicine
• Arthritis Foundation episode on CBD
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Cheryl’s Arthritis Life social media pages:
  • Cheryl on Instagram
  • Cheryl’s website: Arthritis Life
  • Cheryl’s Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
• Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
• This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Here's the show breakdown:

•  01:15 - Rheumatologist Dr. Yu’s journey first with gout, then diffuse joint pain while in medical school, then a diagnosis of spondyloarthritis during his fellowship.
•  4:30 - What made Dr. Yu want to pursue Rheumatology.
•  6:00 - Dr. Yu pursues Integrative Medicine and the 6 pillars of Lifestyle Medicine with the help of his wife, also a physician. He adopts a whole food, plant based vegan diet and experiences huge improvements shown in lab work, pain levels and overall weight within 2-3 months.  
• 8:28 - Dr. Yu explains what “Integrative Medicine” is and explains the process he’s going through to get board certified in it, including learning about Chinese medicine, ayurveda, herbal medicine and more.
• 9:51 - Dr. Yu explains what the newer field of “Lifestyle Medicine” is, and the overlap between the two.
• 10:30 - How can an appointment with an integrative medicine Rheumatologist differ from an appointment with a typical Rheumatologist? Discussions of nutrition, sleep, stress and whether medications are necessary. 
• 12:00 - Cheryl and Dr. Yu discuss the importance of each patient’s treatment plan being individualized and customized to them, and how it can be a source of confusion for newly diagnosed patients when they see that someone else with their “same” diagnosis has a different treatment plan. For example, one person with severe disease who is afraid of medication might be confused why another patient (with more mild disease) was told they could avoid meds.
• 15:08 - Dr. Yu answers some of the most frequently asked questions about diet and rheumatic disease (vegan diet, plant based, Mediterranean, Paleo and more). Explanation of the influence of the gut microbiome on autoimmune disease
• 18:50 - Dr. Yu explains which supplements can help with rheumatic diseases and inflammation.
• 20:15- Dr. Yu shares tips for fatigue. 
• 21:30- Definition of “Functional Medicine” and his recommendations on finding a provider with valid credentials. 
• 23:35 - Cheryl and Dr. Yu discuss the importance of sleep, ruling out a sleep disorder and how poor sleep contributes to fatigue and inflammation.
• 24:45 - Dr. Yu discusses evidence for THC and CBD for it’s anti-inflammatory and pain relief properties. 
• 26:00 - Is it hard being a patient and provider in Rheumatology? How Dr. Yu’s passion pushes him through the long hours!
• 28:45 - If Dr. Yu could change anything about Medical School, what would he do?
• 30:00 - Reflections on how the gray areas in between Integrative / Natural medicine and Western Medicine can be difficult for patients who have anxiety about their condition. How Dr. Yu finds a middle ground with his patients - combining medicines and natural alternatives. 
• 31:30 - Dr. Yu’s message to patients who are afraid of medications.
• 33:25 - How do you find a Rheumatologist who also has an Integrative Medicine board certification? 
• 34:45 - Where can people find Dr. Yu online?

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Dr. Kara Wada is an Assistant Clinical Professor and Associate Fellowship Program Director of Allergy/Immunology at the Ohio State University in Columbus, Ohio. She graduated from the University of Illinois College of Medicine and completed her Internal Medicine and Pediatrics Residency and Allergy/Immunology Fellowship at the Ohio State University and Nationwide Children’s Hospital. 

After having completed additional fellowship training in medical education, Dr. Wada is passionate about building meaningful connection and therapeutic relationships with her patients and inspiring future physicians to do the same. She seeks to empower her patients and coaching clients with a naturally-minded and scientifically-grounded approach to care.  She speaks nationally on topics including medical education, allergic and immunologic conditions. Outside of her work, she is an autoimmune patient, a food allergy mom of 2 spunky daughters, and wife to another Dr. Wada.  

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. 

Links to things discussed in the episode:

• Where to find Dr. Kara Wada
  • www.crunchyallergist.com
  • www.instagram.com/crunchyallergist
  • www.facebook.com/groups/crunchyallergist
  • www.twitter.com/crunchyallergy
  • Clubhouse @crunchyallergy
• What is a Allergist Immunologist? 
• DR. Kara’s Recommendations:
  • Sleep book
  • University of Arizona Integrative Medicine website -
  • Book - Nourish 
• Cheryl's Free Handout: Cheryl’s Master Checklist for Managing RA
• Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
• Cheryl on Instagram
• Cheryl’s website: Arthritis Life
• Cheryl’s Tiktok: @ArthritisLife 
• Arthritis Life Facebook Page
• Cheryl’s Twitter: @realcc 
• This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

• 01:25 - Introduction: Dr. Kara’s job as an Allergist Immunologist doctor at an academic medical center, journey with the autoimmune disease Sjogren's syndrome, and her role as a mother to a child with food allergy.
• 4:10 - Dr. Kara’s experience having to advocate to get the blood testing and labs drawn for Sjogren’s disease while she was a medical intern.
• 6:30 - Reflections on the power dynamics in physician - patient relationships and the importance of two way communication.
• 8:38 - Dr. Kara’s tips on how to develop a trusting relationship with a physician.
• 13:48 - How Dr. Kara uses a shared decision making to work together with patients, rather than the old model where the doctor told patients what to do.
• 16:28- Dr. Kara explains the difference between an Allergist Immunologist and a Rheumatologist, and explains how allergist immunologists do more than “just” allergies.
• 20:25 - How Dr. Kara manages her Sjogren’s currently, with an emphasis on the word “and” (western medicine and other “crunchy” alternatives). An explanation of Dr. Kara’s anti-inflammatory living techniques: food, meditation, and most importantly sleep to support health and healing.
• 25:10 - How Dr. Kara un-learned her perfectionist tendencies, and Cheryl & Dr. Kara reflect on how parenting helped them lean into “progress over perfection.”
• 26:28: Reflections on how to accept the reality: you can do everything right, and sometimes your body is going to have a mind of its own. How to accept the element of randomness and move on with an empowered and self-compassionate mindset rather than letting it get us down.
• 27:00 - Dr. Kara explains how she finds a balance between conventional and complementary alternative treatments: “weeding out the woo.”
• 31:10 - The warning signs to look out for when looking at different complementary alternative treatment options
• 33:10 - Dr. Kara explains how the supplement industry is not regulated and can be dangerous and shares her own experience of experiencing liver abnormalities after taking a “superfood” supplement.
• 36:44 - The importance of a personalized care plan and getting a variety of specialists on your care team.
• 38:43 - Just because it’s natural doesn’t mean that it’s healthy. Dr. Kara and Cheryl dive into the balance between being open minded and skeptical about alternative methods of managing rheumatic diseases like rheumatoid arthritis and Sjogren’s.
• 41:00 - Dr. Kara and Cheryl’s discuss the importance of an individualized risk / benefit analysis when trying any new approach (including financial risks / investments, time risks / investments and health risks / investments / benefits).
• 45:02 - Dr. Kara’s recommended resources for patients looking into alternative options: University of Arizona’s Website.
• 46:55- Dr. Kara’s advice about lab tests that are marketed as “the tests your doctor doesn’t know to give you,” particularly for “food sensitivities” or food intolerances.
• 48:33 - Cheryl & Dr. Wada reflect on how to still feel empowered when facing the truth that there may be no “magic wand” solution for rheumatic diseases.
• 49:05 - Importance of making your ordinary routine fun in small ways to add up to larger gains in health over time. Reflections that many people with rheumatic diseases don’t need many supplements.

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Christa Fairbrother is a skilled and experienced water aerobics and aqua yoga instructor who also lives with multiple chronic illnesses. For Christa, living with arthritis and teaching yoga are integrated.  She credits her lack of pain to aqua yoga practice.  Being passionate about aqua yoga, she wants to see aqua yoga in more communities worldwide.

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. 

Here's the show breakdown:

01:15 - Christa’s diagnosis journey: symptoms of RA and Lupus symptoms started at age 12, initial diagnosis of Mixed Connective Tissue Disease (MCTD) after the birth of her 2nd son.

05:05 - Christa’s MCTD symptoms (including Raynaud’s) and why it’s so hard to get this rare diagnosis.

8:00 - Christa and Cheryl reflect on what it’s like to live with multiple chronic conditions, not knowing at times what is causing which symptom.

10:40 - Christa’s up and down journey managing her conditions over many years.

15:30 - Cheryl and Christa explain what connective tissue and fascia are.

17:33 - Christa’s journey with yoga, which started when she had back pain being a farrier (a craftsperson who trims and shoes horses' hooves). 

19:40 - After 20 years of doing yoga, Christa became a yoga instructor.

22:11 - What is aqua yoga, and how Christa discovered and fell in love with it.

25:33 - The numerous medical benefits of exercise in the water for healthy people and those living with arthritis. 

32:15 - Christa’s explanation of the offloading of gravity in the water due to buoyancy and how it gives your muscles a more balanced effort.

34:55 - Christa discusses how accessible swimming pools are in the US. 

38:55 - Thoughts around safety and germs with aqua yoga and swimming during the COVID-19 pandemic. 

41:55 - Interested in the Arthritis Foundation’s aqua therapy program? Here is how you can find it at a local water center!

44:40 - Christa describes what happens in an aqua aerobics class.  

47:43 - Cheryl and Christa’s insights on why group classes make people feel empowered, especially during COVID-19. 

50:56 - Cheryl and Christa’s views on how the sensory elements of water can help regulate our mood, from prenatal experiences to adulthood.

55:25 - Christa’s advice on what to do if your joints hurt in the water.

1:01:30 - Salt water pools VS. Chlorine pools and water safety advice that you may not be aware of. 

Episode links:

• Christa’s website
• Christa’s Facebook
• Christa’s Instagram
• Christa’s Pinterest
• Book Christa recommended: Vivek Murphy - “Together” 
• A handout about the AFAP - Arthritis Foundation Aquatic Program
• https://arthritis.yoga/
• Resources from the aquatic therapy and rehab institute- plus this article 
• Free Handout: Cheryl’s Master Checklist for Managing RA
• Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
• Cheryl on Instagram
• Cheryl’s website: Arthritis Life
• Cheryl’s Tiktok: @ArthritisLife 
• Arthritis Life Facebook Page
• Cheryl’s free Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
• Free Handout: Cheryl’s Master Checklist for Managing RA
• Cheryl’s Twitter: @realcc 
• This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.

Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.  

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.