This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Marion Winkler, PhD, RD, and Swapna Kakani, MPH, focusing on quality of life in adult patients with short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

This podcast is supported by Ironwood.

QOL Resources:

HPN-PRQOL: hpn_proq_.pdf

The Gutsy Perspective: project news | the gutsy perspective

Oley Foundation: www.oley.org

Short Bowel Syndrome: Where to find support, information, and community

Let's Talk SBS Conversation Guide PDF

Let's Talk SBS Appointment Checklist PDF

QOL References:

Fu M, Shi M, Li M, He G. The experience and needs of living with home parenteral nutrition in adult patients: A meta-synthesis of qualitative studies. Journal of Clinical Nursing. 2024;33:4468-4483.

Winkler MF, Machan JT, Xue Z, Compher C. Home parenteral nutrition patient-reported outcome questionnaire: sensitive to quality of life differences among chronic and prolonged acute intestinal failure patients. J Parenter Enteral Nutr. 2021;45(7):1475-1483.

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February 2025

The February 2025 podcast celebrates the 50th anniversary of ASPEN and interviews Dr. Albert Barrocas, an Adjunct Professor of Surgery at Tulane University School of Medicine, the retired Chief Medical Officer at WellStar Atlanta Medical Center in Atlanta, GA., and a Charter Member of ASPEN since 1976. Dr. Barrocas shares his perspectives on the history of nutrition support and the need for improved documentation of malnutrition. He highlights the concept of The Troubling Trichotomy which he uses to describe what Can, what Should, and what Legally should occur with the management of nutrition support.

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February 2025

In this podcast, JPEN Editor-in-Chief Dr. Kenneth Christopher, interviews Dr. Sarah Fleet, Director of the Growth and Nutrition Program and Program Director, of the Advanced Nutrition Fellowship from the Boston Children’s Hospital. Dr. Fleet is a pediatrician and gastroenterologist with a research focus on nutrition education scholarship. Dr. Fleet is the first author of the research article “Knowledge assessment tool for pediatric parenteral nutrition: A validation study”.

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January 2025

This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Vanessa Kumpf, PharmD, Swapna Kakani, MPH, and Marie Neumann, MA, focusing on the patient and family-centered approach in the management of short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

This podcast is supported by Ironwood.

Recommended Patient Resources:

National Cancer Institute's Patient-Centered Communication in Cancer Care – Promoting Healing and Reducing Suffering

SBS Conversation Guide:

Let's Talk SBS Conversation Guide PDF

Let's Talk SBS Appointment Checklist PDF

G.U.T. Gain Understanding of Transitions – A Guide to Key Milestones in Short Bowel Syndrome:

• Key milestones include with the addition of a glossary and several resources:

• Basics of Short Bowel Syndrome

• Going home (ie Discharge Checklist, Adjusting to Life at Home)

• Off to School (ie Communicating with School Staff & Preparing for Emergencies)

• Adolescence (ie Addressing Concerns and Emotional Struggles and Fostering

• Independence with Healthcare Team)

• Transitioning to Adult Healthcare

The Gutsy Perspective: community-driven research on life with SBS | the gutsy perspective

Patient-Centered Outcomes Research Institute (PCORI): https://www.pcori.org/

The Promise of Patient-Led Research Integration into Clinical Registries and Research Scorecard:

Patient Engagement Management (PEM) Suite: https://pemsuite.org

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January 2025

This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Dr. Ankita Sisselman, focusing on medication management of short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

This podcast is supported by Ironwood.

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December 2024

This podcast explores the syndromes of frailty, sarcopenia and cachexia and how they relate to and intersect with malnutrition. Dr. Jensen offers key aspects of each of these syndromes and the importance of including them as part of the malnutrition assessment process.

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December 2024

This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. Episode 5 features Dr. David Mercer, focusing on surgical considerations in the management of short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

This podcast is supported by Ironwood.

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December 2024

This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. Episode 4 features Carol Rees Parrish, MS, RDN, focusing on nutrition and hydration management in short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

Favorite Resources from Carol Rees Parrish MS, RDN:

For Professionals:

Learn Intestinal Failure TeleECHO (Lift-Echo): https://liftecho.org/web/home

UVA Health: https://med.virginia.edu/ginutrition/articles-from-practical-gastroenterology/pg-articles-by-topic/

For Professionals and Patients:

Short Bowel Guidebook for Adult Patients: To order book at no cost, go to: www.shortbowelsyndrome.com/sign-up

For Patients:

Short Bowel Syndrome: Where to find support, information, and community: https://ironwoodpharma.com/wp-content/uploads/2024/02/SBS_Patient-Factsheet_02-23-24-Final.pdf

Oley Foundation: www.oley.org

UVA Health: https://med.virginia.edu/ginutrition/patient-education/

This podcast is supported by Ironwood.

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October 2024

The October 2024 podcast features Pharmacist and Professor emeritus, Dr. Jay Mirtallo from the Ohio State University and a Clinical Practice Specialist for ASPEN. Dr. Mirtallo shares the results of an influential patient-based survey of consumers on parenteral nutrition. He highlights PN access issues from the patient perspective ranging from product shortages to financial burdens and uniquely identifies unconsidered areas for improvement in the medical system to improve patient safety. He comments on action steps for all nutrition support clinicians including an emphasis on legislation to pass the medical nutrition therapy act allowing reimbursement for the role of the registered dietitian.

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October 2024

In this podcast, Contributing Editor Berkeley Limketkai, MD, PhD, interviews Dr. Trevor Tabone on the article “Intestinal Failure-Associated Liver Disease: Current Challenges in Screening, Diagnosis and Parenteral Nutrition Considerations” published in the August 2024 issue of NCP.

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October 2024