How did we turn a disease that would kill you before your 5th birthday into one that may never kill you at all? Easy: Decades of tireless, constant and relentless advocacy by parents who refuse to accept a horrible fate for their children. In the season finale of Breathless, we hear from two of the most influential people in Cystic Fibrosis history and learn how a refusal to give up in the 1950s led us down a path to revolutionary treatment, and a fight for a cure that continues today.

Breathless is a Snack Labs Production in partnership with Cystic Fibrosis Canada

Host: Jeremie Saunders

Producer: Jeremie Saunders, Taylor MacGillivary

Editor: Jeremie Saunders, Taylor MacGillivary

Sound Design: Donovan Morgan

Music: Tom Fox, Donovan Morgan

Artwork/Design: Brian Stever

For more information on Cystic Fibrosis:

https://www.cysticfibrosis.ca/

Want more Snacks for your ears?

https://www.wearesnack.io/

Hosted on Acast. See acast.com/privacy for more information.

When Jeremie was young, he was hard on his parents. Now, he understands their perspective, recognizing that they were new parents, doing the best they could do all while grappling with the devastating news that their son likely will not live to see university. In episode 5 of Breathless, we delve into the experiences of parents with children who have Cystic Fibrosis, exploring how they navigate the emotional maze of raising a child they may outlive.

Breathless is a Snack Labs Production in partnership with Cystic Fibrosis Canada

Host: Jeremie Saunders

Producer: Jeremie Saunders, Taylor MacGillivary

Editor: Jeremie Saunders, Taylor MacGillivary

Sound Design: Donovan Morgan

Music: Tom Fox, Donovan Morgan

Artwork/Design: Brian Stever

For more information on Cystic Fibrosis:

https://www.cysticfibrosis.ca/

Hosted on Acast. See acast.com/privacy for more information.

Jeremie always knew how he felt about having kids, and then everything changed. In episode 4 of Breathless, we dig into the nuanced considerations of starting a family when you have a life-shortening condition that could be inherited by your children. In the face of Trikafta, Jeremie faces the difficult task of reevaluating a choice he once felt absolutely certain about.

Breathless is a Snack Labs Production in partnership with Cystic Fibrosis Canada

Host: Jeremie Saunders

Producer: Jeremie Saunders, Taylor MacGillivary

Editor: Jeremie Saunders, Taylor MacGillivary

Sound Design: Donovan Morgan

Music: Tom Fox, Donovan Morgan

Artwork/Design: Brian Stever

For more information on Cystic Fibrosis:

https://www.cysticfibrosis.ca/

Want more Snacks for your ears?

https://www.wearesnack.io/

Hosted on Acast. See acast.com/privacy for more information.

When you think you'll die young, you look at relationships with a unique perspective. In this episode of Breathless, we'll take a look at Jeremie's thoughts on dating and marriage. He speaks with others with CF to understand more about the diverse outlooks on intimate relationships when living with a fatal genetic disease.

Breathless is a Snack Labs Production in partnership with Cystic Fibrosis Canada

Host: Jeremie Saunders

Producer: Jeremie Saunders, Taylor MacGillivary

Editor: Jeremie Saunders, Taylor MacGillivary

Sound Design: Donovan Morgan

Music: Tom Fox, Donovan Morgan

Artwork/Design: Brian Stever

For more information on Cystic Fibrosis:

https://www.cysticfibrosis.ca/

Want more Snacks for your ears?

https://www.wearesnack.io/

Hosted on Acast. See acast.com/privacy for more information.

How is it that something happening at an infinitesimally small scale can impact every aspect of your day-to-day life? In episode 2 of Breathless, we'll be leaning on some of the smartest minds in Cystic Fibrosis to uncover exactly what is happening at a molecular level and how that produces life-altering, and life-shortening, consequences. We'll also explore how a new miracle medication is changing Jeremie's life, and unearthing some unexpected challenges as Jeremie realizes that he may live a lot longer than he ever thought possible.

Breathless is a Snack Labs Production in partnership with Cystic Fibrosis Canada

Host: Jeremie Saunders

Producer: Jeremie Saunders, Taylor MacGillivary

Editor: Jeremie Saunders, Taylor MacGillivary

Sound Design: Donovan Morgan

Music: Tom Fox, Donovan Morgan

Artwork/Design: Brian Stever

For more information on Cystic Fibrosis:

https://www.cysticfibrosis.ca/

Want more Snacks for your ears?

https://www.wearesnack.io/

Hosted on Acast. See acast.com/privacy for more information.

What if you knew from an early age that you wouldn't live as long as everyone else? How would it change the way you see money, education, relationships, or time itself? Welcome to Breathless, a series that explores the shifting landscape of Cystic Fibrosis, through the eyes of Jeremie Saunders, who has lived with the disease and the shortened life expectancy it comes with, his entire life.

Breathless is a Snack Labs Production in partnership with Cystic Fibrosis Canada

Host: Jeremie Saunders

Producer: Jeremie Saunders, Taylor MacGillivary

Editor: Jeremie Saunders, Taylor MacGillivary

Sound Design: Donovan Morgan

Music: Tom Fox, Donovan Morgan

Artwork/Design: Brian Stever

For more information on Cystic Fibrosis:

https://www.cysticfibrosis.ca/

Want more Snacks for your ears?

https://www.wearesnack.io/

Hosted on Acast. See acast.com/privacy for more information.

Get ready for Breathless, a transformative podcast series brought to you by Cystic Fibrosis Canada and Snack Labs. Join host Jeremie Saunders as he delves into the beautiful and compelling narratives of those affected by cystic fibrosis (CF), the most prevalent fatal genetic disease in Canada.

Through vivid storytelling and in-depth conversations, Breathless unveils the personal battles, emotional resilience, and groundbreaking scientific achievements within the CF community. This series offers a deep understanding of the disease, highlighting both the struggles and the remarkable spirit of those who live with it.

Follow Breathless and immerse yourself in a journey of hope, courage, and inspiration, narrated through the voices of those at the heart of this challenging disease.

Hosted on Acast. See acast.com/privacy for more information.