Celiac Straight Talk

Celiac Straight Talk

By Beyond CeliacHealth & FitnessNutrition
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Celiac Straight Talk episodes

  • 43: Men's Roundtable

    In this episode, our male ambassadors discuss some of the unique challenges men face in getting diagnosed and living with celiac disease, as well as the stigma friends and family may have about the gluten-free diet.

    Note: any use of the term "cross-contamination" should actually be "cross-contact."

    45 min
  • 42: Disparities in Celiac Disease

    "That advisory board concluded that race, ethnicity, age and gender can all cause delays in diagnosis, or, worse than that, a failure to diagnose at all."

    Amy Ratner of Beyond Celiac, Pooja Mehta, MD, of Children's Hospital Colorado and patient representative Jocelyn Langevine discuss disparities in diagnosing celiac disease; how they happen, why they happen, and what we can do to get more people diagnosed.

    52 min
  • 40: Navigating Friendships with Celiac Disease

    When it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don't understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new.

    Note: at timestamps 17:14 and 18:33, the term "cross-contamination" should be "cross-contact."

    42 min
  • 39: Jennifer Sealey-Voyksner, Co-Founder of ImmunogenX

    In this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works.

    Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey

    26 min
  • 38: Parenting and Celiac Disease
    Even without an autoimmune disease, parenting can be tough. But if you're a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid's health, and how to get your little one the care and food they need, whether it's at home, at school, or at a friend's house.
    39 min
  • 37: Biggest Changes in the Celiac Disease World, ft. Erica Dermer of Celiac and the Beast

    Listen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy's daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community.

    Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey

    1 hr 2 min
  • 36: Child Care with CHOP Celiac Center

    In this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast

    59 min
  • 35: Family Matters, part 2

    In this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don't seem to understand your diagnosis.

    Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast

    28 min
  • 34: Family Matters
    Our Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don't seem to understand your diagnosis.
    30 min

About Celiac Straight Talk

From the publisher's feed

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

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