Celiac Straight Talk

Celiac Straight Talk

By Beyond CeliacHealth & FitnessNutrition
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Celiac Straight Talk episodes

  • 23: Registered Dietitian, Julie Kennedy
    In episode 23 of the Celiac Straight Talk podcast we welcomed Julie Kennedy, registered dietitian and owner of Julie Kennedy Nutrition. They discuss Julie's journey with celiac disease, her work as a registered dietitian and her connection to Beyond Celiac. Julie can be found on her website Juliekennedynutrition.com and on social media @Juliekennedynutrition. We really enjoyed this one and hope you do too! For all of your celiac related information please visit BeyondCeliac.org.
    40 min
  • 22: Step Beyond Celiac 5k

    Beyond Celiac is taking our entire 2020 Step Beyond Celiac 5K series to the virtual streets with a multi-city tour for individuals and teams across the country to support celiac disease research efforts. Five event dates are planned between August and October! Join us for one or many with our 3 and 5 city tour options.

    The Step Beyond Celiac 5K is a family-friendly event and fundraiser for Beyond Celiac. We encourage all participants to raise funds by running or walking 3.1 miles either in the event cities or right where you are in support of research efforts for treatments and a cure.

    Lace-up your running shoes, train, raise money, and run (or walk) a 5K (3.1 miles) to improve the quality of life for children and adults affected by celiac disease.

    All participants receive a Step Beyond Celiac 5K shirt if they register before the t-shirt deadline.

    2020 5 City Tour 5k Schedule:
    • Boston – August 9 – 16
    • Kansas City – September 13 – 20
    • Philadelphia – September 26 – October 3
    • Dallas – October 10 – 18
    • Denver – October 18 – 25
    18 min
  • 21: Michael Savett from the Gluten Free Philly Blog
    We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.
    28 min
  • 20: Asia's Story
    Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease.
    12 min
  • 19: Living With Celiac Disease Part 2
    Part 2

    On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists.

    Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease.

    Listen as the patient panel share their stories about what its like living with celiac disease.

    Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease.

    Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.

    34 min
  • 18: Living with Celiac Disease
    On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists.

    Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease.

    Listen as the patient panel share their stories about what its like living with celiac disease.

    Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease.

    Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.

    31 min
  • 17: June Book Club Discussion

    In this podcast, the Beyond Celiac book club (Claire, Amy, Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man's struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here.

    42 min
  • 16: Beyond Celiac Book Club Discussion
    This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!
    33 min
  • 14: Celiac Disease and College
    Valerie is on Beyond Celiacs patient and family advisory council. She is a Junior at Vanderbilt University and has celiac disease. In this weeks podcast Valerie talks about her journey getting diagnosed with celiac disease and the challenges she faced when looking at colleges.
    23 min

About Celiac Straight Talk

From the publisher's feed

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

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