Confessions of a Reluctant Caregiver

"I finally found my purpose." - Adrienne Marioles

🎙️ Confessions of a Reluctant Caregiver brings you another raw and relatable episode as hosts Natalie and JJ sit down with Adrienne Marioles, a millennial caregiver with a story that’s equal parts inspiring and real. Adrienne opens up about her leap from the hustle and bustle of New York City to the emotional rollercoaster of caring for her mom, who’s battling Parkinson’s disease.

Expect heartfelt confessions, a few laughs, and some seriously honest moments as Adrienne talks about the isolation, anxiety, and unexpected joys that come with caregiving. She gets real about how therapy and finding a supportive community helped her navigate the ups and downs of this journey.

Adrienne also shares her own experience of caregiving for her mom, touching on the emotional toll, anticipatory grief, and those tough decisions that no one prepares you for. Through it all, she shows how she turned her struggles into a mission to uplift and empower others in the caregiving world.

It’s a conversation full of warmth, wisdom, and a reminder that caregivers are never truly alone. 

Adrienne Glusman Marioles is the host of the Young Life Interrupted Podcast, the premier show dedicated to young caregivers. As a professional speaker and advocate for Millennial caregiving, Adrienne shares her personal journey as an only-child caregiver for her mother, Hetty, who lived with Multiple System Atrophy (MSA) before passing away in 2020.

Adrienne’s story has been highlighted in the Wall Street Journal's article "The Call to Care for Aging Parents Comes Sooner Now," and featured on podcasts like Next Question with Katie Couric. Her experiences have also been covered in Health magazine, the Toronto Sun, Vox.com, and more.

Connect with Adrienne on Instagram and Facebook @younglifeinterrupted to follow her journey and find support as a young caregiver.

Social Media: 

Instagram: https://www.instagram.com/younglifeinterruptedpodcast/

Facebook: https://www.facebook.com/younglifeinterrupted

Linked In: https://www.linkedin.com/in/adrienneglusman/ 

Podcast URL: 

• Apple Podcasts: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965
• Spotify: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965

** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**

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"Let's not sugarcoat it; it's hard." - Dr. Jacob Kendall

In this episode of Confessions of a Reluctant Caregiver, JJ and Natalie chat with Dr. Jacob Kendall, who opens up about his life-changing experience as a caregiver after his father’s health crisis. It’s a conversation filled with heartfelt stories, relatable struggles, and powerful insights into the rollercoaster of caregiving.

Jacob shares what it’s really like to juggle the emotional and practical challenges of stepping into a caregiving role, all while trying to keep up with life’s other demands. Natalie, JJ and Jacob dive into the importance of family dynamics, planning ahead, and how multi-generational living might just be the future of caregiving.

This episode feels like a conversation with old friends as they tackle the messy, rewarding, and sometimes frustrating realities of caregiving. It’s packed with tips, hard-earned lessons, and a reminder that you’re not alone on this journey.

Social Media:
Website: https://jacobevanskendall.com
Linked In: https://www.linkedin.com/in/jacobevanskendall/

** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**

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Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

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"You can bring back the color and the light." - Kelci Jager

Kelci Jagger shares her powerful and emotional story of overcoming tragic loss and grief through the support of her community and finding power in living in the light. Her incredible journey chronicles a series of tragic events including a dangerous accident with her two sons and her husband’s heart-breaking leukemia diagnosis. Losing a loved one can be one of the most painful experiences we go through in life, and it's often hard to imagine how we can move forward without them. 

If you're struggling with grief or loss, Kelci’s story is an inspiration in perseverance and love.

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About Kelci Jager:

Kelci Jager is a Certified Life Coach, Grief Coach, Registered Nurse, and Author of the book “A Million Miracles and the One That Never Came” and found herself navigating the challenging terrain of grief when she lost her 40-year-old husband to leukemia. Left to pick up the pieces of her shattered life as a solo parent to their four sons, Kelci faced the fear of her children losing her too. However, her determination to RISE and thrive became her driving force. With a blend of professional expertise and a deeply personal journey as a widow and solo parent, Kelci possesses a strong foundation and a unique perspective. She is passionately committed to providing support and guiding others on their grief journey.

Links: 

Website: RISEwithgrief.com

Social Media: 

Facebook: www.facebook.com/kelci.calljager

Instagram: www.instagram.com/kelci.jager/

LinkedIn: www.linkedin.com/in/kelci-jager-6a3788a0/

Buy The Book “Million Miracles That Never Came”

** Caregiver Action Network Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**

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Confessions of a Reluctant Caregiver

Website: www.confessionsofareluctantcaregiver.com

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Christina Key's life brimmed with success and vitality. But fate had different plans in store for her. An unexpected phone call shattered her idyllic existence, thrusting her into a whirlwind of chaos and uncertainty. As her mother's health hung in the balance, Christina's role transformed from a thriving tech professional to a devoted caregiver.

Little did she know, this was just the beginning of a journey that would test her resilience, challenge her spirit, and uncover depths of strength she never knew she possessed. Get ready for a captivating story filled with triumph and heartache, where each twist and turn will keep you wanting more.

In this episode, you will be able to:

• Unearth the unique hurdles family caregivers frequently meet and strategies to suitably navigate them.
• Discover the vital role of a supportive community in bolstering a caregiver's experience.
• Grasp how to balance caregiving tasks with essential self-care to maintain well-being.
• Immerse in inspiring tales evidencing the transformative power of supportive connections for caregivers.

About Christina

Christina Keys pursued the American dream: a successful career, travels, financial stability, and happiness. However, everything changed on March 16, 2013, at 3:42 when her mother suffered a life-changing stroke. With just a 1% chance of survival, Christina shifted from a career woman to a devoted caregiver. Over the span of three years, caregiving left her financially, emotionally, mentally, and physically depleted. Doctors even predicted she had just six months to live due to the stress of caregiving. Faced with a crucial decision, Christina chose to not only change her own life but also help other struggling caregivers. She transformed her personal struggle into a mission through her work with "Loving Them Forward," a local nonprofit she co-founded and now presides over as president. Additionally, as the Director of Community Growth for caregiving.com, she leads a team of nearly 200 caregiving.com Champions, fostering positive changes for caregivers across the US. Christina dedicatedly cared for her mother from 2013 to December 2022 when she passed away, and she continues to support her ex-boyfriend, whom she began caring for in 2019.

Connect with Christina

Website
Website 2
Facebook
LinkedIn
Podcast Real Talk with Real Caregivers 
Apply to be a Champion 

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Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com 

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Charisma Sydnor's path crossed with Cole's at a rehab center following his teenage spinal cord injury; their professional rapport blossomed into romance and they wed in 2020. Taking over from his mother, Charisma adapted to the comprehensive caregiver role, focusing on fostering independence for Cole while ensuring their connection thrives beyond her caregiving responsibilities. They openly celebrate their life together on social networks, challenging preconceptions about disability and relationships. Their shared narrative delves into the seamless transition from dating to matrimony, weaving in the complexities and dedication involved in caregiving. Charisma speaks to establishing a healthy balance of duties and intimacy, highlighting continuous dialogue, self-care, and an optimistic perspective as cornerstones of their unique partnership. She emphasizes that a disability is not a hindrance, but rather a unique aspect of a vibrant and fulfilling life.

About Charisma:

Charisma Sydnor, 29, has lived most of her life as a native of Richmond, Virginia. Before becoming an entrepreneur, she pursued her master’s in Occupational Therapy at Shenandoah University. 

The success of her and her husband’s business led her down a new and exciting path where she was able to use her platform for a broader purpose.  

Together they started their vlog to bring people into their lives, their relationship, to answer some questions about how they navigate the world with some of the behind-the-scenes stuff people typically don't see, and hopefully raise awareness surrounding accessibility and dating in a wheelchair.

Outside of their channel, Charisma uses her Instagram to share what it is like being a caregiver to her husband, as well as tips and tricks to maintain a healthy mind, body, and soul while caring for someone.

Connect with Charisma

Instagram: https://www.instagram.com/happilycharisma/?hl=en

Linked In: https://www.linkedin.com/in/charisma-sydnor-96632411b/

YouTube: https://www.youtube.com/channel/UCA5Zfb-OOm7eDHHa8iu9izQ

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Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

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This week’s episode gives us a powerful and insightful look into the life of Aditya Akella, a 16-year-old caregiver for his younger brother with autism. Aditya's story is one of resilience, responsibility, and a deep commitment to his family. From navigating cultural differences in caregiving between India and England to balancing his academic and social life, Aditya's experiences offer a rare and valuable perspective on the challenges and triumphs of being a young carer.

Aditya demonstrates a level of wisdom and maturity that belies his young age. He eloquently articulates the importance of understanding the unique needs of each young carer, rather than making assumptions or providing one-size-fits-all solutions. Aditya's advocacy efforts, including speaking at the House of Lords and participating in a documentary, further highlight his dedication to raising awareness and creating positive change for young carers like himself.

Aditya touches on the importance of self-care and finding balance as a caregiver. He shares his personal strategies, such as spending time with his beloved dog and indulging in the occasional video game or hot chocolate, as ways to recharge and maintain his own well-being. Aditya’s story serves as an inspiration to other young carers, reminding them that they are not alone and that their experiences, though challenging, can also be a source of strength and personal growth.

About Aditya:

A self-described “regular teenager in England”, Aditya is interested in cars, public speaking, sports and politics.  He is a proud older brother for his younger brother, age 11, who has severe autism, ADHD, and is non-verbal. Aditya share, “A lot of carers fall into the trap of feeling insecure or restricted by their role, though being a carer is more of a launchpad than it is a well”. 

Connect with Aditya:

Linked In: https://www.linkedin.com/in/aditya-akella-349297267/

Blog: https://akellatech.blogspot.com/

** The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**

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Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com 

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Marty Schreiber has dedicated his life to advocating for Alzheimer's patients and their caregivers. As the former governor of Wisconsin and author of the acclaimed memoir "My Two Elaine's", Marty draws from his own deeply personal experience as a caregiver for his wife of 61 years, Elaine. For eight years, Marty cared for Elaine in their home as her Alzheimer's progressed, but he now admits he was unprepared for the physical and emotional toll it would take. Marty candidly shares his struggles, from trying to keep Elaine in his world to nearly working himself to exhaustion. He also opens up about difficult decisions like placing Elaine in assisted living and the guilt he still feels over not supporting his children through the process. However, Marty channels his regrets into wisdom, urging caregivers to accept help, join their loved one's reality, and focus on living fully themselves to best support their person. 

Through humor, heartache, and hard-won insight, he offers invaluable insights aimed at aiding fellow caregivers to embrace support, understand the dual realities of their loved ones, and nurture their own well-being for more effective care.

About Marty:

Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer’s caregivers and persons with dementia. Reaching audiences nationwide at live events and through various forms of media, Marty uses humor and compassion as he shares lessons from his ongoing, decade-plus journey as a caregiver. 

His speaking tour takes him to conferences, civic organizations, senior communities, libraries, and more around the country. He has given more than 300 presentations since launching his awareness campaign in late 2016. Whether in Texas, Idaho, New York, Missouri, Florida, Ohio, or closer to home, caregivers tell Marty that his message encourages them and hope that they can manage their challenging situation.

Marty’s book, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, is winning acclaim from caregivers across the country. It was rated as the No. 11 “Best Alzheimer’s Book of All Time” by bookauthority.org and was named to Caring.com’s list of “Best Caregiving Books” of both 2017 and 2018. 

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Confessions of a Reluctant Caregiver

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Kendall Cloeter's passion for affordable housing and community revitalization shines through in her work with the Renovation Alliance. As a self-described "social worker by trade," Kendall brings a deep understanding of the challenges low-income homeowners face in the Roanoke Valley and a commitment to making a difference.

Under Kendall's leadership, the Renovation Alliance has grown from a small group of 50 volunteers rebuilding just five homes 25 years ago to an organization that now aims to serve 100 homes annually. Kendall's dedication to preserving affordable housing and empowering homeowners to age in place with dignity is genuinely inspiring. Through a combination of volunteer labor and skilled professional partnerships, the Renovation Alliance tackles a wide range of critical home repairs, from simple tasks like installing grab bars to more complex projects like HVAC replacements.

Kendall's insights into the impact of the Renovation Alliance's work are both heartwarming and eye-opening. By preserving homeownership and the equity that comes with it, the organization is helping to address issues of generational wealth and social justice. Moreover, the Renovation Alliance's focus on prioritizing the needs of older adults, individuals with disabilities, veterans, and single-parent households with young children underscores their holistic approach to community revitalization. Kendall's passion for this work shines through as she shares the stories of homeowners who have regained their independence and sense of pride in their homes while strengthening the fabric of the Roanoke community.

About Kendall:

Kendall Cloeter, a native of Roanoke, Virginia, is deeply connected to her community, where she now raises her family. Holding a Master of Social Work degree, Kendall discovered her passion for affordable housing while serving in AmeriCorps with Renovation Alliance, the organization she proudly rejoined in 2023. Her work in AmeriCorps ignited her commitment to preserving affordable housing and enhancing housing quality.

During her time in Richmond, Virginia, Kendall spent five years addressing housing and homelessness issues with the Virginia Department of Housing and Community Development. This experience broadened her understanding of housing challenges and strengthened her dedication to making a difference. Returning to Renovation Alliance, Kendall applies her expertise to support her community and advocate for improved housing solutions.

Kendall resides in Roanoke County with her husband, two children, and their dog, Franklin.

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Confessions of a Reluctant Caregiver

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Thom Deleuw's story reflects dedication and a father's love. After a 34-year career in law enforcement, Thom found his true purpose when his son, Jack, had a serious motorcycle accident that left him paralyzed from the chest down. Thom became Jack's full-time caregiver, viewing it as a "willing obligation" that highlights their strong bond.

Thom's journey has been marked by resilience and adaptability. He prepared for the “new role” by taking online courses and utilizing the VA caregiver support program, ensuring he was equipped to provide the specialized care Jack required. Despite the challenges, Thom maintains a positive outlook, emphasizing that the work doesn't "seem so bad" when you're caring for someone you love so deeply. His willingness to take on the role, rather than outsourcing it, speaks volumes about his unwavering commitment to his son's well-being.

Throughout their journey, Thom and Jack have faced setbacks, including a second motorcycle accident that left Jack paralyzed from the sternum down. Yet, their unbreakable spirit shines through, with Thom expressing pride in Jack's determination to regain his mobility and independence. The duo's shared sense of humor and camaraderie have been instrumental in navigating the ups and downs, demonstrating the power of a father-son relationship rooted in unconditional love and support.

About Thom:

Thom was born on December 8, 1954, in Norfolk, Virginia, and was raised in a middle-class family where hard work was valued. After spending his early years in Virginia, he moved to Florida for two years before returning to North Carolina, where he graduated from high school in Greensboro in 1973.

With aspirations of becoming a police officer, Thom joined the Army in November 1973 and attended military police school. His first duty station was in West Berlin, Germany, during the time the Berlin Wall was still up, which proved to be a significant adventure.

After three years, Thom returned home, briefly pursued a golf career, and worked as an assistant golf pro before becoming a police officer in Portsmouth, Virginia. In 1984, he moved back to North Carolina, where he began his long and rewarding career in law enforcement, eventually meeting his wife while on duty.

Thom's life took another turn when he became a dedicated father to his son, Jack. Their bond deepened over the years, especially after Thom gained full custody when Jack was 12. Jack followed in his father's footsteps and enlisted in the Army, embarking on his own journey that included both triumphs and challenges.

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Confessions of a Reluctant Caregiver

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This week’s educational episode showcases the incredible work of Semper Fi and America's Fund, an organization that has been providing vital support to service members, veterans, and their families for over 20 years. At the heart of this organization is Sondria Saylor, the Executive Vice President, whose personal connection to the military community runs deep.

Sondria's connection to the military began in 1984 when she became an active-duty spouse. In 2003, she saw the challenges faced by wounded service members returning from Iraq and knew action was needed. Along with other military spouses, Sondria met medevacs at the hospital, providing essentials and comfort to these brave individuals. This grassroots effort grew into the Semper Fi and America's Fund, which has provided over $500 million in support and programs to 33,000 service members across all branches of the U.S. armed forces.

Sondria's dedication to the mission of Semper Fi and America's Fund is truly inspiring. Through comprehensive case management and lifetime support, she and her team ensure that service members, caregivers, and their families receive the care and resources needed to navigate recovery and reintegration. Semper Fi and America's Fund serves as a beacon of hope and community for those who have sacrificed for our country, offering caregiver retreats, sports programs, and holiday celebrations.

About Sondria:

Sondria is the Executive Vice President of Semper Fi & America’s Fund, where she oversees Case Management for the Western Region, Communications Operations, and the Apprenticeship, Jinx McCain Horsemanship, and Veteran to Veteran (V2V) Programs.

Before her current role, Sondria was Vice President of Case Management in the Western Region from 2014 to 2021, Senior Director of Case Management from 2005 to 2014, and Director of Donor Operations from 2004 to 2005.

Sondria’s connection to the military began in 1984 when she became an active-duty spouse. From its early years in the 1980s until 2004, she was involved in the evolution of Marine Corps Family Readiness, serving as Key Volunteer Advisor to the 1st Marine Division.

As Key Volunteer Advisor in 2003, she worked alongside Karen Guenther to support returning wounded at the Naval Hospital at Camp Pendleton, which led to the creation of Semper Fi & America’s Fund.

Sondria’s contributions to Family Readiness earned her induction into the US Field Artillery Honorable Order of Molly Pitcher in 1993. In 2007, her work with Semper Fi & America’s Fund was recognized by Cookie Magazine with the 1st Annual Smart Cookie Award, honoring women making a difference.

Raised and educated in Fairfax, VA, Sondria has extensive experience in small business ownership and management. She has been married to her husband Ben, a retired Marine Colonel, for 38 years, and they have two adult sons.

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Confessions of a Reluctant Caregiver

Sisterhood of Care, LLC

Website: www.confessionsofareluctantcaregiver.com 

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