Diary of a Kidney Warrior Podcast | Kidney Health Podcast

From Diagnosis to Artivism: Steve’s Extraordinary Kidney Warrior Journey

In this powerful episode of Diary of a Kidney Warrior Podcast, Dee sits down with Steve — a passionate creative whose life was forever changed by an unexpected diagnosis of chronic kidney disease (CKD).

At just 30% kidney function and no warning signs, Steve’s diagnosis came as a shock. He takes us through the moment his world shifted: a sudden phone call that catapulted him into the reality of dialysis. What follows is a deeply human story of resilience — navigating peritoneal dialysis, transitioning to haemodialysis, and balancing the demands of treatment with the challenges of self-employment in web design.

But this is no ordinary journey.

Steve opens up about receiving his first kidney transplant, the hope it brought, and the heartbreak when things took a turn — sending him back to dialysis and confronting the fragility of life with CKD. Throughout it all, he emphasises the critical importance of self-advocacy in the healthcare system, offering insights that every patient or caregiver needs to hear.

What truly sets Steve apart is how he channels pain into purpose. Through painting, he found not just therapy, but a voice — using art as activism to raise awareness about kidney disease. His work, featured in exhibitions supporting Kidney Care UK, is raw, reflective, and at times, joyfully humorous — a visual diary of his fight and spirit.

The episode builds to a beautiful full-circle moment as Steve shares the emotional story of receiving a second transplant — this time from his brother — and the freedom that followed. His message is clear: creativity can be healing, storytelling is powerful, and no one walking this journey is alone.

If you’re living with CKD, supporting a loved one, or simply need a reminder of the strength of the human spirit, this episode will leave you inspired, informed, and deeply moved.

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Follow Steve Light

📸 Instagram https://instagram.com/slart.me 

 💻 Website https://slart.substack.com  

Steve's solo exhibition “Memento Vivere”  September 6-18th 

Memento Vivere Exhibition Link https://cryptlondon.art 

Kidney Care Uk

💻 Website: www.kidneycarekuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

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📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

I am sad to share that since the recording of this interview Christy has passed away.

Dee 🙏🏽

In this powerful and deeply personal episode of Diary of a Kidney Warrior Podcast, we meet Christy—an extraordinary kidney warrior whose story of resilience will inspire anyone facing life’s toughest battles.

Christy takes us back to 2006, when a life-threatening crisis landed her in a coma, leading to kidney failure caused by septicaemia and peritonitis. What followed was nearly two decades of living with chronic kidney disease (CKD)—a journey marked by dialysis as a young adult, the heartbreak of a failed transplant, and the constant balancing act of managing additional health complications.

But Christy’s story doesn’t stop at survival. She shares how she transformed her adversity into advocacy, building a vibrant online community and launching her own podcast, Chronically Christy, to connect with and uplift other kidney patients.

With honesty and wisdom, Christy speaks about:

💪 The importance of self-advocacy in navigating CKD

🧡 How her family and husband became pillars of support

🎧 Using podcasting and blogging to foster community and raise awareness

📚 Empowering advice for newly diagnosed CKD patients

Tune in for an episode filled with courage, insights, and hope—a true testament to the power of resilience and human spirit.

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Follow Christy Millar

🐦Twitter (X) https://x.com/ChristyMillarUK

Website: https://chronicallychristy.captivate.fm/episodes/7#showEpisodes

📸Instagram: https://www.instagram.com/chronicallychristy/

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

Struggling to balance work and kidney disease? You’re not alone — and this episode is your essential guide to thriving professionally and medically. We’re joined by Dr. Jacquie, a leading expert in occupational health, to explore the critical intersection of employment, rights, and wellbeing for people living with chronic kidney disease (CKD).

👉🏽👉 In this powerful and informative episode, we break down:

✅ What occupational health really means for kidney patients

✅ The 3 key stages of employment: pre-employment, during work, and ill health retirement

✅ Your rights under the Equality Act 2010, Health and Safety at Work Act, and Employment Rights Act 1996

✅ Whether you must disclose your condition to employers — and what protections exist if you do

✅ High-risk job types for kidney patients and how to identify workplace hazards

✅ What reasonable adjustments look like and how to request them

✅ How to navigate sickness absence, redeployment, and ill health retirement — including tiered pension options and documentation tips

✅ The role of support systems: from union reps, Kidney Care UK, to your renal medical team

🎯 Whether you’re job-hunting, currently working, or considering retirement due to ill health, this episode delivers clear, actionable advice to help you make informed choices while protecting your health and career.

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Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

To order a wrist band visit:

https://www.charitycardshop.com/kidneycareuk/category/6

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

In this deeply moving episode of The Diary of a Kidney Warrior Podcast, Dee sits down with the inspirational Councillor Hilaria as she shares her extraordinary journey through chronic kidney disease, multiple organ failures, and ultimately, a life-saving transplant. Her story is one of unimaginable adversity—from being diagnosed during pregnancy to surviving septicaemia, cardiac arrest, and a coma. Yet, through it all, Councillor Hilaria never gave up.

She candidly recounts her years on both peritoneal and haemodialysis, the emotional toll of waiting a decade for a transplant, and the strength she drew from her loving husband, children and dedicated healthcare team. When the call finally came, it wasn’t just a kidney—it was a second chance at life. Councillor Hilaria reflects on the profound gratitude she feels for her donor’s family and how this experience reignited her faith and purpose.

Now an elected official and powerful advocate for kidney health and organ donation, Councillor Hilaria’s story is a beacon of resilience, transformation, and service. Whether you’re a kidney warrior, caregiver, or ally, this episode offers hope, strength, and a reminder that even in our darkest moments, there is light ahead.

Follow Diary of a Kidney Warrior:

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📘Facebook: www.facebook.com/diaryofakidneywarrior 

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🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

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Follow Councillor Hilaria Owusu

If you were affected by any of the issues raised in this episode contact:

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

To order a wrist band visit:

https://www.charitycardshop.com/kidneycareuk/category/6

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Miscarriage Association

Website: https://www.miscarriageassociation.org.uk/

Helpline: 01924 200 799

Email: [email protected]

Follow NHS Blood & Transplant:

Website: www.organdonation.nhs.uk

Twitter: NHS Blood & Transplant: @NHSBT

              NHS Organ Donation: @NHSOrganDonor

Facebook: www.facebook.com/nhsorgandonor

Instagram: NHS Organ Donation: @nhsorgandonor

YouTube: www.youtube.com/user/nhsorgandonation/channels

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

In this powerful and informative episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined once again by the insightful and compassionate Dr. Hannah, an experienced transplant surgeon. Building on their previous conversation, Dr. Hannah returns to share expert guidance and essential strategies for navigating the complex journey of kidney disease—from diagnosis to transplantation and life beyond.

This episode is a must-listen for anyone affected by kidney disease, offering a comprehensive look at renal replacement therapy. Dr. Hannah breaks down the key differences between dialysis and transplantation, and highlights the importance of preparation, planning, and patient empowerment. Listeners will gain valuable knowledge about preemptive transplantation, the benefits of living donor transplants, and critical considerations for those on the deceased donor list.

Dr. Hannah also delves into often-overlooked aspects of transplant readiness, including managing polycystic kidney disease, addressing central venous stenosis, surgical prerequisites, and maintaining a healthy weight. The discussion thoughtfully explores both the physical and mental preparation required for a successful transplant journey, as well as the unique considerations for women wishing to start or grow a family after transplantation.

With honesty, clarity, and encouragement, Dr. Hannah emphasises the power of being proactive and well-informed. She advocates for living fully, even while waiting for a transplant, and underscores the strength of the kidney community and the support it offers.

Whether you are newly diagnosed, currently on dialysis, awaiting a transplant, or supporting someone through their kidney journey, this episode is filled with practical insights and heartfelt advice to help you take control of your health and plan confidently for the future.

Listen now and be inspired to live boldly, plan wisely, and embrace hope.

Follow Diary of a Kidney Warrior:

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📘Facebook: www.facebook.com/diaryofakidneywarrior 

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🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

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📲 Follow the Podcast on WhatsApp

Stay updated with new episodes and exclusive content!

👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

To order a wrist band visit:

https://www.charitycardshop.com/kidneycareuk/category/6

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Nick Palmer, who shares his extraordinary journey of living with chronic kidney disease (CKD) and focal segmental glomerulosclerosis (FSGS). Diagnosed at just 19 years old, Nick opens up about navigating the complex realities of kidney disease as a young adult—balancing university, a demanding career, and the emotional toll of a condition that would require multiple transplants and ongoing dialysis.

With unflinching honesty, Nick reflects on his decision to decline a third kidney transplant and instead embrace home nocturnal dialysis—a choice that profoundly improved his quality of life, restored his sense of independence, and helped him reclaim control of his health. He discusses the impact of this decision on his mental well-being, family life, and career, and how it ultimately allowed him to thrive in ways he never expected.

Nick’s story challenges traditional narratives around kidney treatment, shining a light on the importance of patient choice, education, and mental health advocacy in chronic illness care. This episode is a must-listen for anyone navigating kidney disease, healthcare professionals, or anyone seeking inspiration from a story of resilience and informed self-advocacy.

Key topics include:

Living with FSGS and the impact of early diagnosis

The emotional and physical toll of dialysis in early adulthood

The recurrence of FSGS post-transplant

Choosing nocturnal dialysis and the profound benefits for quality of life

Mental health, self-advocacy, and redefining what it means to live fully with CKD

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior 

📘Facebook: www.facebook.com/diaryofakidneywarrior 

🐦Twitter(x): www.twitter.com/diaryofakidneyw 

🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

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Stay updated with new episodes and exclusive content!

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Follow Nick Palmer

🐦Twitter (X) https://x.com/nick_fire1

🔵Blue Sky: https://bsky.app/profile/nick-fire1.bsky.social

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

In this deeply moving episode of Diary of a Kidney Warrior Podcast, host Dee sits down with the incredible Rachel, a true example of strength and resilience in the face of Chronic Kidney Disease (CKD). Diagnosed as a child, Rachel’s story spans decades — from routine check-ups in her youth to navigating the complexities of motherhood with CKD, dialysis, and ultimately receiving a life-saving kidney transplant from her mother.

With warmth and honesty, Rachel reflects on the early signs of CKD, the emotional and physical challenges of pregnancy with kidney disease, and the toll dialysis took on her young family. Through it all, her determination to stay strong for her children and her unshakeable hope carried her forward.

This episode is not just about survival — it’s about the importance of support, the power of informed choices, and the life-changing gift of organ donation. Rachel’s story will leave you inspired and uplifted.

Whether you’re a patient, carer, or healthcare professional, this conversation offers vital insights, encouragement, and a powerful message of perseverance and gratitude.

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior 

📘Facebook: www.facebook.com/diaryofakidneywarrior 

🐦Twitter: www.twitter.com/diaryofakidneyw 

🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

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👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

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Stay updated with new episodes and exclusive content!

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Follow Rachel Staunton

📸 Instagram: https://www.instagram.com/racheljoystaunton?igsh=MXVyOThuZjB6cDhzaA==

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

In this powerful and informative episode of Diary of a Kidney Warrior Podcast, Dee is joined once again by the brilliant Professor Ibi for the third time—this time to dive deep into the essential topic of haemodialysis. Whether you’re newly diagnosed, a long-term dialysis patient, or supporting a loved one with chronic kidney disease, this episode offers clear, compassionate insights to help you navigate the dialysis journey.

Together, they unpack the basics of how haemodialysis works, including vital topics like fluid management, the importance of dry weight, blood pressure monitoring, pump speeds, and the common causes of cramps during treatment. Professor Ibi explains why dialysis sessions are structured the way they are and what happens when treatments are missed or cut short. You’ll also hear practical tips on managing the physical impact of dialysis, dietary considerations, and the realities—both good and challenging—of life on haemodialysis.

This episode is a must-listen for anyone impacted by CKD, offering clarity, empowerment, and encouragement to keep going strong.

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior 

📘Facebook: www.facebook.com/diaryofakidneywarrior 

🐦Twitter: www.twitter.com/diaryofakidneyw 

🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

Get updates on new episodes, vlogs, newsletters, and more!

👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

📲 Follow the Podcast on WhatsApp

Stay updated with new episodes and exclusive content!

👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

#haemodialysis  #hemodialysis #diaryofakidneywarriorpodcast #kidneyfailure #ckd

In the lead-up to World Kidney Day, host Dee Moore sits down with Benjamin, a resilient Kidney Warrior whose story is a testament to faith, hope, and determination.

During a family visit to Barbados in 2020, Benjamin discovered he had dangerously high blood pressure — a moment that would mark the beginning of his own kidney disease journey. At the time, Benjamin was already caring for a loved one living with kidney disease, making the diagnosis even more overwhelming.

In this inspiring episode, Benjamin shares the emotional and physical challenges of navigating kidney failure, including the shocking reality of seeing his kidney function plummet to just 6%. Through it all, his unwavering faith and the support of his loved ones carried him from dialysis to receiving a life-saving kidney transplant.

Incredibly, just one week after marrying his wife, Benjamin received the call that a donor kidney was available — a turning point that changed everything.

As World Kidney Day approaches, Benjamin’s story highlights the importance of self-care, early detection, organ donation, and maintaining hope in the face of adversity. Whether you are a Kidney Warrior, supporting a loved one, or simply want to learn more about kidney health, this episode is a powerful reminder that choosing to live with purpose and gratitude can transform any journey.

Follow Diary of a Kidney Warrior 

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📘Facebook: www.facebook.com/diaryofakidneywarrior 

🐦Twitter: www.twitter.com/diaryofakidneyw 

🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

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👉👉🏽 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

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Stay updated with new episodes and exclusive content!

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Follow Benjamin Hoyte

📸 Instagram: https://www.instagram.com/bjhoyte/

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

#patientstory #worldkidneyday #ckd #dialysis #kidneytransplant

In this episode of the Diary of a Kidney Warrior Podcast, Host Dee sits down with Carl, a kidney transplant recipient whose journey began at just 15 years old. What started as flu-like symptoms soon revealed a rare virus that led to vasculitis, thrusting Carl into an unexpected battle with Chronic Kidney Disease (CKD).

Carl takes us through his diagnosis journey, navigating the shock of hospitalisations, intensive treatments—including chemotherapy—and the eventual need for dialysis and a kidney transplant. He opens up about the emotional toll of facing a life-changing condition as a teenager, the impact of medications like prednisolone, and how he found strength through each stage of his journey.

Despite the challenges, Carl’s story is one of transformation. He reflects on his struggles with self-image, his gradual acceptance of CKD, and his decision to embrace life fully, even relocating to London post-transplant. For Carl, CKD isn’t just a condition—it’s a “superpower” that has shaped his resilience and outlook on life.

Beyond his own health journey, Carl shares his experiences as a father, balancing the demands of CKD with family life as he and his wife plan for a second child. He also provides an insightful comparison of renal care in Australia versus the UK, advocating for a stronger focus on preventative healthcare.

This episode is a powerful testament to the strength of the kidney warrior community. Whether you’re a patient, a caregiver, or someone looking for inspiration, Carl’s story is a reminder that with knowledge, support, and the right mindset, it’s possible to thrive beyond kidney disease.

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior 

📘Facebook: www.facebook.com/diaryofakidneywarrior 

🐦Twitter: www.twitter.com/diaryofakidneyw 

🎵Tik Tok: @diaryofakidneywarrior 

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

Get updates on new episodes, vlogs, newsletters, and more!

👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

📲 Follow the Podcast on WhatsApp

Stay updated with new episodes and exclusive content!

👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

Follow Carl Juresic

📸Instagram:

https://www.instagram.com/carljuresic?igsh=MTVpb3U0eG93M2t6dw==

🐦Twitter: https://x.com/carljuresic?s=21&t=sr7h7lekjWwLcweu33b8cg

Kidney Care UK

💻 Website: www.kidneycareuk.org

📧 [email protected]

📞Tel: 01420 541 424

📘Facebook: www.facebook.com/kidneycareuk.org

📷Instagram: @kidneycareuk

🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Kidney Care UK's Kidney Kitchen

Kidney Kitchen recipes are very carefully analysed and approved by the British Dietetic Association Renal Nutrition Specialist Group (RNG).

https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/kidney-kitchen/

Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.