RealTalk MS

Episode 342: Behind the Scenes of an MS Research Study with Chiquita Shepard-Knight and Earl Sneed


Listen Later

We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study.

Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them.

We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference. 

It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS.

And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar  :22

This Week: The patient perspective on participating in an MS research study  1:38

Live! From the Natinal MS Society's Public Policy Conference  2:28

People with MS weign in on the impact of several ECTRIMS presentations  10:17

Catch the video replay of the International Progressive MS Alliance webcast  11:35

Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study   12:11

Share this episode  27:18

Have you downloaded the free RealTalk MS app?  27:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/342

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER: ACTRIMS Post-Forum Patient-Centered Webinar https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index

VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS https://youtu.be/eWoZLF4bZmo

VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study https://www.youtube.com/watch?v=UtGtCnNkYOY

VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions https://www.youtube.com/watch?v=J83jlqMbsZo

VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience https://www.youtube.com/watch?v=_fRLW69Xc1A

VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey https://www.youtube.com/watch?v=oZDdp8JumFg

VIDEO: International Progressive MS Alliance Webcast Replay: Emerging Treatments for Progressive MS https://www.youtube.com/watch?v=W4hxtl38MBQ

The TEAAMS Study https://projectteaams.ahs.uic.edu

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 342 Guests: Chiquita Shepard-Knight and Earl Sneed

Privacy Policy

...more
View all episodesView all episodes
Download on the App Store

RealTalk MSBy Jon Strum

  • 4.7
  • 4.7
  • 4.7
  • 4.7
  • 4.7

4.7

139 ratings


More shows like RealTalk MS

View all
Nutrition Diva by QuickAndDirtyTips.com, Monica Reinagel

Nutrition Diva

1,707 Listeners

Boston Public Radio Podcast by WGBH Educational Foundation

Boston Public Radio Podcast

502 Listeners

Next Question with Katie Couric by iHeartPodcasts

Next Question with Katie Couric

4,928 Listeners

The Daily by The New York Times

The Daily

111,785 Listeners

The Daily Show: Ears Edition by iHeartPodcasts and Paramount Podcasts

The Daily Show: Ears Edition

14,233 Listeners

Breaking it down - A multiple sclerosis podcast by MS Trust

Breaking it down - A multiple sclerosis podcast

13 Listeners

Living Well with Multiple Sclerosis by Overcoming MS

Living Well with Multiple Sclerosis

47 Listeners

Grief is a Sneaky Bitch by Lisa Keefauver, MSW

Grief is a Sneaky Bitch

309 Listeners

MS Living Well: Key Info from Multiple Sclerosis Experts by Barry Singer, MD

MS Living Well: Key Info from Multiple Sclerosis Experts

116 Listeners

Chasing Life by CNN

Chasing Life

8,209 Listeners

SmartLess by Jason Bateman, Sean Hayes, Will Arnett

SmartLess

57,990 Listeners

The MSing Link by Dr. Gretchen Hawley  PT, DPT, MSCS

The MSing Link

111 Listeners

Making Space with Hoda Kotb by Hoda Kotb, TODAY

Making Space with Hoda Kotb

10,412 Listeners

Wiser Than Me with Julia Louis-Dreyfus by Lemonada Media

Wiser Than Me with Julia Louis-Dreyfus

10,445 Listeners

MeSsy with Christina Applegate & Jamie Lynn Sigler by Wishbone Production

MeSsy with Christina Applegate & Jamie Lynn Sigler

3,516 Listeners