Today you are going to hear from Lyndal Vankuyk from Narrabri; a mum, wife, teacher and great mate to many. Our paths crossed about 5 years ago in a staff room at a local primary school where we were both working. When you have young kids in a town like Narrabri, you soon become part of an incredible community of people who you feel supported by and who always have your back. We certainly feel this as well at our local day care centre and pre school where our youngest children attend together. Lyndal and her husband Will have three children, Ben, Evie and Roxy. When Roxy was two-years-old she was diagnosed with a very rare genetic condition that affects the ATP8A2 gene, so rare in fact that she is one of only 20 people diagnosed with the condition worldwide.

Roxy’s diagnosis is the first of its kind in Australia and the chances of being born with this rare genetic abnormality is 1 in 500 million.

This is Lyndal's story.