In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.

Reflecting on her diagnosis experiences, Evan highlights the need for improved treatment methods and understanding of Myalgic Encephalomyelitis (ME). You can follow her advocacy work @cornerstoneforthoughts

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.

Megg was diagnosed with ME/CFS from a young age whilst in school. Megg shares her inspirational work through the Millions Missing Manchester movement and her passion for crafting @MeggMakes

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

Between 12,500 and 15,000 people live with sickle cell disease in the UK. Moyo, Lewis and Mwape come together for an exclusive episode to share their stories, experiences and support with each other. This is a very rich podcast with varying view points on the sickle cell disease and how it impacts the person with the lived experience.

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.

In this episode (Part 2) you will hear snapshots from Kondwani's conversations with Lee, Will, Becky and Tara as they take us on a journey of living with M.E.

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.

In this episode you will hear snapshots from Kondwani's conversations with Tony, Shirley, Cody and Charlie as they take us on a journey of living with M.E.

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

Between 12,500 and 15,000 people live with sickle cell disease in the UK. Lewis is a GP living with Sickle Cell, who believes in rolling the dices of life and just making sure you maximise your everyday. How does he live by this ethos whilst accepting the reality of his condition?

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from those with lived experiences and hear from specialists on their experiences treating this condition.

How does one manage living with a long term health condition? Tara shares her experiences living with ME (Myalgic Encephalomyelitis) and tips on self-care that helps her manage her condition.

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

A free NHS service for patients living with long-term health conditions and/or carers. Research has shown that people living with long-term health conditions spend only three hours a year on average with a healthcare professional. For the other 8757 hours of the year they look after themselves. This programme can provide you with the tools to self-manage and deal with your conditions better on a day to day basis. 

For more information about this programme go to www.manchesterlco.org or email [email protected] / Call 0161 371 2105 if in Manchester, UK.

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

Melanie discovered she had Coeliac disease after being diagnosed at a young age. Facing challenges to eating safe food in order to mange the condition, she uses her instagram @feedthecoeliac to raise awareness of Coeliac disease and how to eat safely. 

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/

Between 12,500 and 15,000 people live with sickle cell disease in the UK. Moyo lets us peer into her life as she unpacks why she never lets Sickle Cell disease define her and how far she can go. Are there any limits to life living with sickle cell? 

We hope you enjoy this episode.

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants to challenge. This phrase has coined the main objective of the SEP.

For more info - http://www.silentelephantproject.org/