Calling In Sick

Forcing a Chronic Illness Flare Up: Why I Stopped My Meds on Purpose


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After 25 years, I’m still constantly wondering if my childhood diagnosis is even right, which has a LOT of implications. Like am I taking the right meds, am I seeing the right doctors, why am I not feeling better. So when my doctors offered a *potential* way to get a more definitive answer, I was quick to say HELL YES…even though that meant literally making myself flare up. In this episode of Calling in Sick, I get real about what it’s like to go off your meds to try get that final, definitive answer.


This week I talk about:

  • What prompted the discussion of forcing a flare up & why I said OK
  • What a RAPID prednisone taper is really like
  • How my diagnostic tests are going, so far
  • The toll this has taken on my mental health

  • The TL;DR? After spending most of my life living in the grey without a clear diagnosis, I’m letting logic take a backseat to hope. If you’ve ever felt like a detective in your own body, chasing every clue and doing whatever it takes to uncover the truth, I think you’ll like this episode.


    As always, sending my love.

    xx,

    Alex


    Comment: Would you ever go off your meds to get a clearer diagnosis, or is that totally off limits? Drop your thoughts in the comments!!! I am dying to know if I’m the only one who would give a hell yes to this madness…



    TIMESTAMP:

    Intro:

    00:00:00 Welcome back to Calling in Sick!!

    00:01:10 What today’s episode is really about

    01:49 You’re invited to a Calling in Sick Vision Board Night!! - October 30 at 6pm CST

    00:03:05 Alex’s Picks (Our Place Cookware Set, Zevo Fruit Fly Trap)


    I Forced the Flare:

    00:05:18 What made me force a flare up

    00:09:52 This is why I share the intimate stuff
    00:10:05 Is it wrong to force a flare up??

    00:12:21 The real reason I said yes

    00:13:32 What going off prednisone actually feels like
    00:16:33 My colonoscopy experience + colonoscopy pro tips!!

    00:23:30 All of this may be for…nothing


    Conclusion:

    00:26:11 One Brain Cell Show: Is it Cake? (Netflix)

    00:27:18 Where to follow along for test updates
    00:27:25 Thanks for Calling in Sick!

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    Powered by: Just Media House -- https://www.justmediahouse.com/

    Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/


    Alex’s Picks of the Week:

    This week’s picks are coming straight from my house to yours - 2 of my current favorite nontoxic house items!!

    Our Place Cookware Set - https://go.shopmy.us/p-28091714

    Zevo Flying Insect Trap - https://go.shopmy.us/p-27239252




    #CallingInSickPodcast #SpoonieSupport #ChronicIllness #InvisibleIllness #AutoimmuneLife #ChronicPainCommunity #HealthJourney #FlareUp #LupusWarrior #MixedConnectiveTissueDisease #PrednisoneTaper #SpoonieHumor  #PatientAdvocate #SpoonieLife #ChronicFatigue #BrainFog #SpoonTheory #ChronicIllnessAwareness #ChronicLife #HealthPodcast #ChronicIllnessPodcast #DisabilityAwareness #AlexWildeson #ChronicIllnessSupport #WellnessPodcast #SpoonieStories  #MedicalMystery #HealthAnxiety #IBDWarrior #AutoimmuneAwareness #PatientExperience  #LivingWithIllness #SpoonieStruggles #DiagnosisJourney

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    Calling In SickBy Just Media

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