Christina Herrin, government relations manager of health policy, interviews Amber Freed, mother, activist, and founder of SLC6A1 Connect. The prevalence of rare diseases in the U.S. is growing. Nearly 1 out of 10 Americans suffer from a rare disease. For the Freed family and Maxwell her son, time is of the essence to find a cure for SLC6A1. The discussion focuses on rare diseases, finding a cure, and obstacles to bringing new cures to market.

Social Media Handles:  LinkedIn:  SLC6A1 Connect, Amber Freed, Instagram:  Milestones_For_Maxwell, Facebook:  SLC6A1 Connect, Twitter:  Maxs_Milestones

LinkedIn

o   Hashtags/References:  @Amber Freed, #SLC6A1, #SLC6A1Connect, #GeneTherapy, #FightLikeAMother, #RareDisease

Donate here:  https://slc6a1connect.org/donate-here/

Video of our story:  https://www.youtube.com/watch?v=xbNXxMJ4xW8&feature=youtu.be

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o   Follow & Tag:  SLC6A1 Connect

Donate here:  https://slc6a1connect.org/donate-here/

Video of our story:  https://www.youtube.com/watch?v=xbNXxMJ4xW8&feature=youtu.be

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o   Follow & Tag:  Milestones_For_Maxwell

o   Hashtag:  #SLC6A1 #SLC6A1Connect #Ellen

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o   Follow & Tag:   Maxs_Milestones