Parkinson’s UK have published the results of an unprecedented study that’s provided a wealth of new detail into the condition in the UK today.

 

Eighteen million patient records were analysed uncovering the key issues facing the one hundred and sixty-six thousand people with the condition in this country and highlighting up to twenty-one thousand more with no treatment or support while they wait to be diagnosed. 

 

With the help of Caroline Rassell, CEO of Parkinson's UK and Lance Lee, the charity's Analytics and Insights Lead,  we examine the methodology behind the collection of a data set of this magnitude, how the millions of pieces of information are harmonised to reach accurate results. We also hear how patient privacy is protected when medical records are used for research of this kind and  some of the implications of the information the survey has uncovered. 

 

If you would like to read more about the research click on this link:

https://www.parkinsons.org.uk/research/research-blog/our-research/parkinsons-uk-what-do-we-know