One of the possibilities along the Parkinson’s journey is losing the ability to drive safely. This possibility is a scary one. For many, driving equals independence. So, it means more than just the hassle of getting around. It means losing your independence. It can lead to depression and anxiety. However, it is important to be safe on the road while driving a multi-ton vehicle. We must protect ourselves, our family, and others on the road.

So, we are talking today with an Occupational Therapist who is so passionate about this topic that she started a business focused on helping people keep their independence if possible. She will take us through the when, why, how of driving while diagnosed with Parkinson’s. OTs are the professionals trained to assess patients on activities of daily living which includes testing people on their driving skills. We discuss the testing process and the legal implications. There are many options for people once it is determined there is a driving defiicit. So, don't give up. Ask an Occupational Therapist for suggestions. 

Listen in to learn everything about driving with PD.

https://drivingtoindependence.com/

https://www.aded.net/?

https://www.dbsandme.com/17branches

Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson’s disease at https://DBSandMe.com/17branches 

Where do you exercise? Is there a place you can take classes specific for people with Parkinson’s? Is it convenient? I know of only a handful of cities where there is a one stop fits all approach to PD wellness. Most are created and managed by someone stepping up and doing the work to make it happen for their community and beyond.

I am excited to highlight some of these magical places where people with Parkinson’s take classes designed for their needs, provide social support, and community. I am thrilled to bring. you this first magical place. It is in the greater the Austin, TX area and on their YouTube chamnnel. Power For Parkinson’s was founded by two women, Dr. Nina Mosier and Susan Stahl. They both had fathers with Parkinson’s and saw a need, so they found a way to provide research-based exercises while offering them for FREE. With nine locations, the classes are very accessible. Add in the YouTube channell with available streaming and on demand videos all for free, well that is magical.

After listening to my guest today, you are going to want to have a similar opportunity in your area as well. Listen on.

https://www.powerforparkinsons.org/

https://www.powerforparkinsons.org/youtubeq

https://www.dbsandme.com/17branches

Thank you to our sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about the latest treatment options for Parkinson’s disease at https://DBSandMe.com/17branches 

Do you have trouble falling asleep, staying asleep, getting enough sleep? Well, you are not alone. It seems lack of sleep is an epidemic in the US. In particular, getting a restful night’s sleep is very difficult for the majority of people with Parkinson’s.  Why? What is going on and how can we improve our the quantity and quality of our sleep?

This is a meaty topic to tackle. It is very important to understand it and make changes to improve your situation. Luckly, we were able to get a highly qualified expert on sleep disorders with experience helping people with Parkinson’s. Dr. Joyce Lee-Ianotti is fantastic and speaks in layman terms so we can understand the information.

If you have sleep problems or if you know someone who does whether you are a person with Parkinson's or not, this is the episode for you.

https://dbsandme.com/17branches

https://aasm.org/  for more information and to find a sleep specialist close to you.

https://www.thensf.org/. Another resource

https://www.barrowneuro.org/person/joyce-k-lee-iannotti-md-faan-faasm/. Our guest expert

Did you know there is a connection between loss of smell and Parkinson’s disease? In fact, it may turn out to be a predictor of the disease up to 10 years before a clinic diagnosis of PD.  Here are some interesting stats:

1. ·          100% of major brain disorders are associated with smell loss
2. ·          96% of newly diagnosed people with Parkinson’s have lost some ability to smell
3. ·          70% of people living with smell loss don’t know it until they are tested
4. ·          50% of people over the age of 60 may be living with smell loss

I am fortunate to have spoken to a leader in the research of smell loss, Dr. Richard Doty. We had a fascinating discussion on smell loss and what it can mean for those suffering including a loss of taste which may lead to weight loss. Additionally, we chatted about the work the MJFF is doing with its landmark smell loss study through the PPMI program. Using Dr. Doty’s scratch-and-sniff test, PPMI hopes to help scientists learn more about this risk factor for PD. I’ve taken it twice. I don’t think I passed it.

https://www.michaeljfox.org/smell-loss-brain-health-request-your-smell-test

https://mysmelltest.org/mjffbsd

https://sensonics.com/product/smell-identification-test/

https://www.dbsandme.com/en.html

This is a very important topic and one in which you can make a difference. Our environment is sickening the population. Parkinson’s disease is one example of a condition that likely was caused by pesticides and other toxic chemicals in our water, food, air and soil. All of us can contribute to preventing future generations from getting Parkinson’s and other diseases. Those already diagnosed may benefit as well. If we avoid these chemicals now, we may slow the progression of the disease just as exercise has been proven to do so. Bottom line: we need to work together to get these destructive chemicals banned forever.

I spoke with Dr. Ray Dorsey on this topic. He and his colleagues have been sounding the alarm on all the ways certain chemicals are causing the increase in PD cases all over the world. Their first book, “Ending Parkinson’s”, started the conversation on preventing and treating the disease. In their new book, “The Parkinson’s Plan”, there is specific plan for each person or community to follow in order to live a healthier life and advocate for change to help prevent future generations from suffering due to exposure to these toxic substances.

Listen on to hear Dr. Dorsey’s passion and efforts to ban harmful chemicals still being used in our communities. Let's make our voices heard and advocate to ban pesticides and harmful chemicals.

https://pdplan.org/

https://www.michaeljfox.org/news/national-plan-end-parkinsons-act-makes-progress-congress

https://www.atria.org/

[email protected] (Dr. Dorsey's email address)

https://www.congress.gov/members/find-your-member

https://www.dbsandme.com/en.html

$41M, 41 days, 2800 miles. Those are the stats for Team Human Potential who competed in the World’s Toughest Row. The boat race happens annually and showcases teams of four, rowing across the Pacific Ocean from California to Hawaii. Patrick Morrisey with Team Human Potential became the first person with Parkinson’s to finish the race. They raised over $41M for the Michael J Fox Foundation for Parkinson’s research. Amazing.

We spoke with Patrick and his skipper, Brendan Cusick about their experiences, challenges, commitment, and learnings on the trip. What did it reveal about working together and becoming close brothers in the end? How did Patrick manage his symptoms while rowing and living on a small boat for 41 days? What did they learn about their mental and physicial limitations? What’s next?

Listen on to enjoy some time with this engaging, generous and courageous team.

https://humanpoweredpotential.org/

https://www.dbsandme.com/en.html 

It is difficult to believe that in the over 100 episodes of the Parkinson's Experience, we have not talked extensively about gait and balance. Gait and balance is something a lot of us Parkies face at some point in our journey. This symptom can be very scary and life limiting and, therefore, important. Why does this happen and what can we do? I spoke with a researcher in this space, Dr. Dan Peterson, who has a lab and studies people with movement disorders and making some progress on finding some help. The discussion is next. Stay tuned. 

Resources:

FOG tricks & hacks paper :

https://www.neurology.org/doi/10.1212/WNL.0000000000201159

Mancini article about gait:

https://www.nature.com/articles/s41531-025-00897-1

Nice presentation by Bas Bloem (leading expert in PD, on the benefits of exercise generally for PD):

https://www.youtube.com/watch?v=Q6d0J81VomY

https://gaitandbalancelab.asu.edu/

https://www.dbsandme.com/en.html

Some of my favorite episodes are when we hear personal stories from people on the same journey as us. Every story is different but all of them can help us find our way, learn from each other and get motivated to live your best life. On today’s episode, I have a conversation with Lisa Volenec. She was diagnosed as young onset PD which is defined as diagnosed at age of less than 50. It is estimated that only about 10% of the PD population is diagnosed with young onset. However, we know this is growing due to many factors including pesticides and our diets. This is a growing concern for health policy and community support organizations.

Lisa represents this demographic. Still working at a TV station and under a lot of stress, you’ll hear how she navigated her disease and employment over the years. How she came to a place where she decided to "own her truth." She will also open up about the decision to have DBS surgery and the outcomes from that.

https://www.dbsandme.com/en.html

https://www.michaeljfox.org/news/early-onset-parkinsons-disease

https://www.3newsnow.com/rebound/positively-the-heartland/stunned-by-an-early-onset-parkinsons-diagnosis-omaha-woman-now-finds-purpose

Have you heard about the new medication delivery systems or pumps recently approved by the FDA? It has generated a lot of buzz at support groups, clinics and social media. What do these pumps do that makes them different and a new tool for our Movement Disorder Specialist to use to help People with Parkinson's live well with Parkinson’s? What can you expect? When should I ask my doctor about if its right for me?

I asked Dr. Ospina these questions and more, including the new long-acting oral levodopa called Crexont.  She has answered other important questions in the past and has a great way of explaining things so regular people can understand.

If you want to learn more about the pumps or even a recommendation of when to go from oral to pump to DBS, this is your episode.

https://www.vyalevhcp.com/

https://www.onapgo.com/

https://crexont.com/. 

https://www.dbsandme.com/en.html 

As the earth continues to get warmer and we see record high temperatures across the globe, scientists tell us that this pattern is going to continue and be more common. Higher temperatures, more frequently has led to more heat strokes and other conditions when people aren’t prepared for this situation.  Additionally, people with neurodegenerative diseases like Parkinson’s are at greater risk for heat related complications,

A recent article published in JAMA Neurology, describes the issue, what to look for, and how we, as individuals and community, can help to prevent people from heat related complications. It was co-written by my guest today, Indu Subramanian, MD, a neurologist and movement disorders researcher at the University of California, Los Angeles (UCLA), and Al Saad, MD, a neurologist with expertise in climate change at the University of Colorado.

With summer around the corner, this is a great time to prepare for the heat and work with your healthcare team on a plan to prevent any heat related issues. We as a community need to look out for our neighbors, friends and family. Our neighbors   may be isolated or scared if they have Parkinson's diseasae or are older. As a community, we should come together to identify people who may need our help during a difficult situation such as heatwaves and higher temperatures, especially in areas in the world where they are not prepared to assist. We should keep in touch, check in, offer some water.  

Learn all about how to prepare, provent, find help as well as recognizing the symptoms of heatstroke on this episode of the Parkinson's Experience.

https://www.parkinsonsecrets.com/

https://parkinsonsnewstoday.com/news/heat-intolerance-rising-parkinsons-risk-climbing-temperatures/

https://www.uclahealth.org/providers/indu-subramanian

https://www.dbsandme.com/en.html