Martha Carlin is back! And this time she is partnering with Lisa, a YOPD patient and President of Resolving Parkinson's. They are working on a documentary project aimed at sharing lived experience stories from patients to help shape research and treatment approaches. The discussion also highlights the need for a holistic approach to Parkinson's care, addressing not just medication but also lifestyle factors such as stress management and gut health.

00:00 The Importance of Patient Voices in Parkinson's Advocacy

09:59 Creating a New Paradigm for Parkinson's Care

19:51 Documentary Project: Sharing Lived Experiences

29:46 Innovative Approaches to Parkinson's Treatment

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

In this episode of The Secret Life of Parkinson's, Diane, a therapist and Parkinson's patient, shares her journey with the disease and how it intersects with her work in mental health. The conversation explores the challenges of socialization for those with Parkinson's, the importance of community support, and coping mechanisms for managing mental health. Diane emphasizes the need for therapy and the value of connecting with others who understand the struggles of living with Parkinson's.

00:00 Introduction to Parkinson's and Mental Health

03:10 Diane's Journey with Parkinson's

05:54 The Intersection of Therapy and Parkinson's

09:01 Socialization and Community Support

12:00 Coping Mechanisms and Mental Health

15:12 Navigating Medication and Treatment

17:57 Addressing Night Terrors and Hallucinations

20:44 Conclusion and Encouragement for Seeking Help

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

In this conversation, Katherine shares her journey as a caregiver for her husband with Parkinson's disease. She emphasizes the importance of advocacy, navigating the healthcare system, and the adjustments required in caregiving. The discussion also touches on the impact of Parkinson's on relationships and the significance of teamwork in caregiving. Katherine's insights as a certified patient advocate provide valuable guidance for both caregivers and patients.

00:00 Introduction to Caregiving and Parkinson's

02:05 Katherine's Journey into Caregiving

04:00 The Diagnosis Experience

07:03 Understanding Parkinson's Symptoms

10:02 The Role of Caregivers

12:58 Support Groups and Community Learning

16:01 The Importance of Medication and Exercise

19:00 Advocacy and Patient Rights

21:50 Navigating the Healthcare System as a Caregiver

24:57 Adjusting to Life with Parkinson's

27:50 The Impact of Parkinson's on Relationships

30:14 Becoming a Certified Patient Advocate

33:09 Working Together as a Team in Caregiving

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

00:00 Introduction and Personal Stories

02:58 Diagnosis Journeys and Experiences

06:06 Living with Parkinson's: Acceptance and Medication

09:02 The Role of Exercise and Community

12:06 Socialization and Support in the Gym

14:59 Encouragement for New Diagnoses

17:56 Future Aspirations and Activities

21:02 Navigating Daily Life with Parkinson's

23:46 Conclusion and Final Thoughts

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

Oh DBS...why is it so hard to decide.

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

0:00 Introduction

2:06 Jess's Neuropsychological test experience

3:46 The influence of stress on cognitive function

5:55 How does the doctor define stress

8:04 Recommendations when you do experience stress

9:47 Depression can mimic Dementia

11:55 Neurophsycology looks at the functioning of the brain

13:58 How Neuropsycology is different from other disciplines that look at cognitive functioning

15:20 Helps to have a baseline test

16:55 Applying for disability due to brain function

19:58 Normal aging or Parkinson's

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

00:00 Welcome Warren Hanna

02:10 Experiences for a new YOPD patient

04:51 Reaction from family

06:50 It doesn't progress overnight

07:17 How did you know

10:25 What regimen did you choose to start

21:33 Prioritizing exercise

24:16 Control the controllables

25:03 How Baseball training has helped

30:10 Becoming an advocate

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

00:54 Police officer diagnosed with Parkinson's in 2020

02:17 Connecting the dots between exposed chemicals to PD

03:34 Putting yourself in danger and you don't even know it

06:38 More awareness needs to be done around police and fireman

08:00 Accepting Parkinson's while bringing awareness to the potential reason

10:17 What changes can be made?

17:17 What if you ever got pulled over by a cop?

18:05 PULL-OVER Pal - https://www.facebook.com/pulloverpal/

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

This episode is about sex. You will hear the words: Erectile dysfunction, orgasm, libido, sex tools/toys and more. If this isn't for you, please don't watch. This episode is for people with PD who have asked the question about sex with PD. While Brian and I might look uncomfortable, I've just been really dyskinetic but also uncomfortable. But it was a GREAT interview!

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

"I'm a believer!" That was a statement we heard over and over from our friends at PDNextSteps about the Beech Band after they wore it, walked around, smiled, moved more freely and spoke a little clearer. Carl himself has said that this innovation - this simple band - was a gift from God to bring back his speech. As a Christian myself, I truly believe that. We were able to witness first-hand how the Beech Band made an impact on people's lives.

This is not a cure. It doesn't take take away your Parkinson's symptoms for good. It's just another tool in our toolbox that could potentially help people with Parkinson's manage their symptoms for a short time, specifically freezing of gait, speech issues, tension, and essential tremors. Some said, they felt, relaxed and more fluid with their movements.

The Beech Band just went into production January 2025 in the UK and are already sold out. They are working on producing more but they are also making it available as an app if you have a smart watch (android phones) and Apple watch (coming soon). Watch the video for more details.

You can learn more at www.beechband.com

We are not getting paid to share or promote this product. Our channel is all about sharing what we learn and putting it out there for others to see.

#parkinsons #parkinsonsawareness #beechband #carlbeech #neurodegenerativedisease #yopd

Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy