Meet Carl Beech. After you watch this epside, you will remember his name, I promise you! There's not much I can really even say or explain - just trust me, you have to watch this episode!!!

Check out more on:

https://www.facebook.com/profile.php?id=61563836532593

https://www.parkinsons.org.uk/news/were-investing-beech-band-wearable-device-aims-manage-parkinsons-symptoms

#parkinsons #parkinsonssymptoms #parkinsonsawareness #beechband #carlbeech #spotlightYOPD #yopd #parkinsonsdiseasesupport #innovations

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Just a mix of different topics:

Shoes, PDNextSteps program, Parkinson's expenses, future episodes, and other random things.

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Brian started experimenting with dry needling for his back and shoulder issues so we thought we would discuss his experience with his PT!

0:00-1:04 Dry Needling

1:05-2:58 Brian's PT Ryan

2:59-3:51 What is dry needling?

3:52-6:24 Where to focus dry needling

6:25-7:53 Dry needling vs. acupuncture

7:54-8:59 Brian's experience

9:00-10:11 Dry needling for Dystonia

10:12-11:47 What is cupping?

11:48-12:54 Cupping vs. needling

12:55-14:52 Things to take into consideration

14:53-18:58 How long do the needles stay in?

18:59-22:31 Who should consider dry needling?

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In this episode, we meet Amy Lavalee, who is a young-onset Parkinson's patient. She shares her personal story and then talks about her work with the Brian Grant Foundation. Check it out!

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One of the biggest Parkinson's advocates I know is George Ackerman. George's mom, Sharon, was living with Parkinson's for years before anyone ever knew. The last 4 years of her life, George was his mother's caretaker and learned more about the world of Parkinson's than he ever anticipated. Since her passing, he has has been dedicated to driving advocacy to find a cure.

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WOW, WOW, WOW! What a weekend! Our Parkinson's non-profit, the 5KforJK, had our 4th annual walking event this past weekend (September 15, 2024) in Columbus, OH. Erika came from Florida (for the 3rd time) and Jill came to Ohio for her 1st 5KforJK (and her first time to Ohio) all the way from Washington State! Straight from Erika and Jill - "community is everything...meeting other PD people is life changing."

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If you are into learning more about the gut, check out this episode. We brought Martha Carlin back to talk about more research she is doing on the GUT! This time, she's researching the effects of body temperature and Parkinson's. It's still in the works, but man is it interesting to hear her talk about. While I may not understand all the scientific terms, I learn and understand what I need to from Martha!

Please remember, always talk to your physician and medical team before making any changes. We are not doctors!

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This was a new term to me, but I know a lot of others are probably aware. But take a minute to listen to Dr. Patel discuss sundowning and how a carepartner or family member can help.

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If you are on Instagram and have PD, you probably have seen, "imstillallie". Brian and I had the opportunity and priviledge to interview Allie Signorelli, a Young-onset PD powerhouse. Her career background happens to be in the non-profit space - doing events and fundraising for Alzheimer's. Even though she worked in the Neurodegenerative space as an advocate/event coordinator for years, she never expected to be a part of such a community. Allie was diagnosed with Young Onset Parkinson's - check out her story and the courageous work she is doing for the Parkinson's community! We appreciate all advocates! Thanks for your dedication. Hats off to Allie!

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Don't forget, you can also check out our video podcast on YouTube: https://www.youtube.com/@thesecretlifeofparkinsons

Meet my daughter, Kate Krauser, as she brings honesty and humor to life with a Parkinson's mom...and advocate.

My twins were just 9 years old when I was diagnosed. Long before I was diagnosed though, Kate, at the age of 7 and 8, was already "caring" for me and my symptoms. She would massage my leg and foot due to the rigidity and hold my \hand when it would shake. A few months after my diagnosis, I talked to my kids about it - I gave it a name because they already witnessed the symptoms.

Since my journey began, I have been very focused on showing my kids that in life, "It's not what happens to you, but how you react to it that matters". I try my best by watching how much I complain, showing them I can laugh at myself, exercising often, bringing humor to some of my symptoms, and doing things for others.

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