Martha Carlin is back! And this time she is partnering with Lisa, a YOPD patient and President of Resolving Parkinson's. They are working on a documentary project aimed at sharing lived experience stories from patients to help shape research and treatment approaches. The discussion also highlights the need for a holistic approach to Parkinson's care, addressing not just medication but also lifestyle factors such as stress management and gut health.

00:00 The Importance of Patient Voices in Parkinson's Advocacy

09:59 Creating a New Paradigm for Parkinson's Care

19:51 Documentary Project: Sharing Lived Experiences

29:46 Innovative Approaches to Parkinson's Treatment

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00:00 Introduction and Personal Stories

02:58 Diagnosis Journeys and Experiences

06:06 Living with Parkinson's: Acceptance and Medication

09:02 The Role of Exercise and Community

12:06 Socialization and Support in the Gym

14:59 Encouragement for New Diagnoses

17:56 Future Aspirations and Activities

21:02 Navigating Daily Life with Parkinson's

23:46 Conclusion and Final Thoughts

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Oh DBS...why is it so hard to decide.

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0:00 Introduction

2:06 Jess's Neuropsychological test experience

3:46 The influence of stress on cognitive function

5:55 How does the doctor define stress

8:04 Recommendations when you do experience stress

9:47 Depression can mimic Dementia

11:55 Neurophsycology looks at the functioning of the brain

13:58 How Neuropsycology is different from other disciplines that look at cognitive functioning

15:20 Helps to have a baseline test

16:55 Applying for disability due to brain function

19:58 Normal aging or Parkinson's

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00:54 Police officer diagnosed with Parkinson's in 2020

02:17 Connecting the dots between exposed chemicals to PD

03:34 Putting yourself in danger and you don't even know it

06:38 More awareness needs to be done around police and fireman

08:00 Accepting Parkinson's while bringing awareness to the potential reason

10:17 What changes can be made?

17:17 What if you ever got pulled over by a cop?

18:05 PULL-OVER Pal - https://www.facebook.com/pulloverpal/

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This episode is about sex. You will hear the words: Erectile dysfunction, orgasm, libido, sex tools/toys and more. If this isn't for you, please don't watch. This episode is for people with PD who have asked the question about sex with PD. While Brian and I might look uncomfortable, I've just been really dyskinetic but also uncomfortable. But it was a GREAT interview!

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"I'm a believer!" That was a statement we heard over and over from our friends at PDNextSteps about the Beech Band after they wore it, walked around, smiled, moved more freely and spoke a little clearer. Carl himself has said that this innovation - this simple band - was a gift from God to bring back his speech. As a Christian myself, I truly believe that. We were able to witness first-hand how the Beech Band made an impact on people's lives.

This is not a cure. It doesn't take take away your Parkinson's symptoms for good. It's just another tool in our toolbox that could potentially help people with Parkinson's manage their symptoms for a short time, specifically freezing of gait, speech issues, tension, and essential tremors. Some said, they felt, relaxed and more fluid with their movements.

The Beech Band just went into production January 2025 in the UK and are already sold out. They are working on producing more but they are also making it available as an app if you have a smart watch (android phones) and Apple watch (coming soon). Watch the video for more details.

You can learn more at www.beechband.com

We are not getting paid to share or promote this product. Our channel is all about sharing what we learn and putting it out there for others to see.

#parkinsons #parkinsonsawareness #beechband #carlbeech #neurodegenerativedisease #yopd

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Not everyone has a live-in carepartner. People dealing with Parkinson's could be young, old, male, female, living solo or living with someone. See how Brian manages living alone, and listen to the questions he asks me about checking in on my caregivers. This is a good one...

0:00 Intro

3:15 Living solo you do things for yourself

4:06 Living with PD, do you have stress, putting stress on your carepartner?

5:10 Are we asking or checking in our CarePartners how they are dealing with our PD?

7:24 Are you embarrassed by your symptoms in public?

8:41 Do we talk about our Parkinson's too much?

10:33 Does Parkinson's consume you?

11:57 Having an outlet - a PD community

13:03 There needs to be a PD training class - how to live with PD

15:03 Being your own CarePartner

15:54 All Parkinson's patients need a Tesla, Mr. Musk ;)

16:49 Do you think of long-term care or disability options?

18:10 Seeing the progression

20:29: Last 30 seconds

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0:00 - Intro

1:02 - can you dance?

2:09 - Would you do a dance class?

2:57 - What does dance help with?

3:44 - Laugh together

4:04 - Dance is spiritual

5:03 - Dance classes in U.S.

5:58 - What does dance help with

7:19 - Jess took an adult dance class

9:15: Parkinson's Prom idea

10:50 - New year, new you

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Making the decision to have DBS surgery is not easy. But I didn't think it would be for the reason I discuss.

#parkinsons #podcast #deepbrainstimulation #dbs #yopd #parkinsonssymptoms #thesecretlifeofpd #movementdisorder #pd

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