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Heather, Kat, and Chris share their experiences with accessibility and travel challenges while living with Parkinson’s. They dive into attention and focus, including what it’s like to live with both Parkinson’s and ADD. The conversation also covers the realities of freezing of gait—from how it starts to how they manage it day to day. Real, personal, and full of lived insight. Visit https://dpf.org to learn more about the Davis Phinney Foundation for Parkinson's.

Season: 6 Episode: 18

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode of The Parkinson’s Podcast, we feature excerpts from our July 2025 Care Partner Meetup. In this meetup, Kristin Gustashaw, a registered dietician at Rush University Medical Center, shares real-world advice about food, meds, digestion, and supplements to help care partners and people with Parkinson’s make more informed choices.

Much of this conversation focuses on the interaction between protein and levodopa. People with Parkinson's and their care partners are often advised not to eat protein near the time when they take their levodopa. Listen in as Kristin shares her perspective on this--as well as other dietary advice--informed by her 25 years as dietician in a movement disorder clinic.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode of the Parkinson's Podcast features the full, unedited audio from a Live Well Today Webinar.

In this episode, Dr. Greg Pontone discusses the effects that Parkinson's can have on mental health, including why mental health related symptoms occur, how they impact daily life, and what you can do to manage them. 

You can view our library of past webinars and register to attend our next webinar at our website:  https://davisphinneyfoundation.org/event/live-well-today-webinars/

--- Speaker Bio: 

Greg Pontone, MD, MHS is Division Chief and Professor Of Aging, Behavioral, and Cognitive Neurology at the University of Florida and Co-Director of Neuropsychiatry Program at The Norman Fixel institute for Neurological Diseases. Dr. Pontone earned his medical degree from the University of South Florida in Tampa. After medical school he completed a medical internship at Johns Hopkins Bayview followed by a residency in psychiatry and a fellowship in geriatric psychiatry and movement disorders research at The Johns Hopkins Hospital in Baltimore, Maryland.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

This episode of the Parkinon's Podcast features the full, unedited audio from a Live Well Today Webinar.

During this live webinar, Dr. Corcos, Professor of Physical Therapy and Human Movement Sciences, shared insights from decades of research focused on the benefits of exercise for people with Parkinson’s. Listen in as Dr. Corcos discusses the latest findings in Parkinson’s exercise science and offers practical takeaways for incorporating effective movement strategies into everyday life. 

Some links discussed in this webinar:

SPARX Phase 2 Trial--https://jamanetwork.com/journals/jamaneurology/fullarticle/2664948

Dr. Corcos' Exercise Advice Article--https://journals.sagepub.com/doi/10.3233/JPD-230277

Cardio Pulmonary Exercise Test Article-https://journals.sagepub.com/doi/10.1177/1877718X251330814

Industrial Chemicals and Parkinson's Blog-- https://davisphinneyfoundation.org/industrial-chemicals-pesticides-and-parkinsons/

Climbing and Parkinson's Blog-- https://davisphinneyfoundation.org/stay-moving-with-parkinsons-tai-chi-ping-pong-and-rock-climbing/

---- Speaker Bio Daniel Corcos, PhD Professor of Physical Therapy & Human Movement Sciences 

Daniel Corcos obtained his PhD in Motor Control from the University of Oregon after obtaining his Master's Degree in Psychology. The primary research interests of Dr. Corcos are aimed at helping people with Parkinson’s disease improve their quality of life, improve their mobility and cognition, and slow down the rate at which their disease progresses. Integrating neuroscience and expertise in conducting clinical trials, the research of Dr. Corcos focuses on interventions (such as resistance exercise, endurance exercise, stretching and balance training) that aim to reduce the symptoms of the disease and delay the rate at which the disease progresses. Within this context, Dr. Corcos uses exercise interventions whose dose (frequency, intensity, time and type) can be precisely controlled to achieve these goals and thereby develops and integrates laboratory-based interventions that people with Parkinson’s disease can employ in their local community. His current research, published in JAMA Neurology suggests that high intensity endurance slows down the rate at which Parkinson’s disease progresses. These findings have been covered in the New York Times and the general press world-wide. Dr. Corcos lectures nationally and internationally to physicians, neuroscientists, and people with the disease on the benefits of exercise for those with Parkinson’s disease.

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, we share an excerpt from the Q&A portion of one of our Living with Parkinson’s Meetups, where guest speakers answer community questions about intense exercise, freezing episodes, and sleepiness in Parkinson’s.

Visit https://DPF.ORG for more information and resources for people living with Parkinson’s.

Season 6 Episode 14

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Join Heather, Kat, and Chris for another episode of The Parkinson's Podcast Unfiltered. Questions addressed in this episode include navigating apathy--which is one of the most difficult non-motor symptoms of Parkinson's for many people--and how to evaluate your own disability, changes in ability, and quality of life. Ask Heather, Kat and Chris a question here: https://dpf.org/unfiltered

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 13

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this Q&A episode of The Parkinson’s Podcast, recorded during the May 2025 Living with Parkinson’s Meetup, they answer questions from the community about what to do when Parkinson’s affects your ability to work and how to navigate Power of Attorney. They also discuss orthostatic blood pressure hypertension and adaptive deep brain stimulation (DBS).

To learn more about our Living With Parkinson's Webinar series visit: https://davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 12 

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In their first episode back after a break for Parkinson's Awareness Month and some time to tend to personal needs, Heather and Kat dive into a candid conversation about loneliness. Prompted by a listener’s question, they explore how Parkinson’s can impact friendships and what it means to navigate shifting social dynamics. Stay tuned: more episodes of Unfiltered are on the way!

Ask Heather and Kat a question here: https://dpf.org/unfiltered

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 11 

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode of the Parkinson’s Podcast, Executive Director Polly Dawkins speaks with Dr. Ray Dorsey and Dr. Michael Okun about their forthcoming book, "The Parkinson’s Plan: A New Path to Prevention and Treatment," set for release on August 19, 2025. Framed around the acronym PLAN—Prevent, Learn, Amplify, Navigate—the book shares compelling stories from the Parkinson’s community and outlines a bold roadmap toward prevention and proactive care. Listen in as the authors discuss what inspired them to write the book and the actions we can take now to help create a world without Parkinson’s.

Learn more about "The Parkinson’s Plan: A New Path to Prevention and Treatment" here: https://pdplan.org

To learn more about the Davis Phinney Foundation for Parkinson's visit: https://dpf.org

Season 6 Episode 10

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts

In this episode, we’re sharing an excerpt from our May 2025 Live Well Today webinar about Emerging Therapies for Parkinson's, which features Dr. Soania Mathur and Dr. Michael Okun. In this excerpt, Dr. Mathur and Dr. Okun discuss three emerging treatments for Parkinson’s that are designed for continuous under-the-skin infusion. These treatments have all been found to increase the amount of time Parkinson's symptoms are well managed throughout the day.

You can learn more about these and other emerging therapies by watching the entire May 2025 Live Well Today webinar recording. Watch the full webinar here: https://youtu.be/zqdXgoyVHT8

Medications discussed in this episode:

Vyalev, the first 24-hour infusion of foslevodopa and foscarbidopa: https://davisphinneyfoundation.org/continuous-infusion-levodopa-approved-usa/

ONAPGO, an apomorphine infusion that offers rapid relief from OFF episodes: https://davisphinneyfoundation.org/continuous-infusion-apomorphine-approved/

And NeuroDerm ND0612, an investigational levodopa/carbidopa infusion, now in late-stage trials: https://neuroderm.com/our-solution/about/what-is-nd0612/

Season 6 Episode 9