"I'm a believer!" That was a statement we heard over and over from our friends at PDNextSteps about the Beech Band after they wore it, walked around, smiled, moved more freely and spoke a little clearer. Carl himself has said that this innovation - this simple band - was a gift from God to bring back his speech. As a Christian myself, I truly believe that. We were able to witness first-hand how the Beech Band made an impact on people's lives.

This is not a cure. It doesn't take take away your Parkinson's symptoms for good. It's just another tool in our toolbox that could potentially help people with Parkinson's manage their symptoms for a short time, specifically freezing of gait, speech issues, tension, and essential tremors. Some said, they felt, relaxed and more fluid with their movements.

The Beech Band just went into production January 2025 in the UK and are already sold out. They are working on producing more but they are also making it available as an app if you have a smart watch (android phones) and Apple watch (coming soon). Watch the video for more details.

You can learn more at www.beechband.com

We are not getting paid to share or promote this product. Our channel is all about sharing what we learn and putting it out there for others to see.

#parkinsons #parkinsonsawareness #beechband #carlbeech #neurodegenerativedisease #yopd

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Not everyone has a live-in carepartner. People dealing with Parkinson's could be young, old, male, female, living solo or living with someone. See how Brian manages living alone, and listen to the questions he asks me about checking in on my caregivers. This is a good one...

0:00 Intro

3:15 Living solo you do things for yourself

4:06 Living with PD, do you have stress, putting stress on your carepartner?

5:10 Are we asking or checking in our CarePartners how they are dealing with our PD?

7:24 Are you embarrassed by your symptoms in public?

8:41 Do we talk about our Parkinson's too much?

10:33 Does Parkinson's consume you?

11:57 Having an outlet - a PD community

13:03 There needs to be a PD training class - how to live with PD

15:03 Being your own CarePartner

15:54 All Parkinson's patients need a Tesla, Mr. Musk ;)

16:49 Do you think of long-term care or disability options?

18:10 Seeing the progression

20:29: Last 30 seconds

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0:00 - Intro

1:02 - can you dance?

2:09 - Would you do a dance class?

2:57 - What does dance help with?

3:44 - Laugh together

4:04 - Dance is spiritual

5:03 - Dance classes in U.S.

5:58 - What does dance help with

7:19 - Jess took an adult dance class

9:15: Parkinson's Prom idea

10:50 - New year, new you

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Making the decision to have DBS surgery is not easy. But I didn't think it would be for the reason I discuss.

#parkinsons #podcast #deepbrainstimulation #dbs #yopd #parkinsonssymptoms #thesecretlifeofpd #movementdisorder #pd

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Meet Carl Beech. After you watch this epside, you will remember his name, I promise you! There's not much I can really even say or explain - just trust me, you have to watch this episode!!!

Check out more on:

https://www.facebook.com/profile.php?id=61563836532593

https://www.parkinsons.org.uk/news/were-investing-beech-band-wearable-device-aims-manage-parkinsons-symptoms

#parkinsons #parkinsonssymptoms #parkinsonsawareness #beechband #carlbeech #spotlightYOPD #yopd #parkinsonsdiseasesupport #innovations

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Just a mix of different topics:

Shoes, PDNextSteps program, Parkinson's expenses, future episodes, and other random things.

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Brian started experimenting with dry needling for his back and shoulder issues so we thought we would discuss his experience with his PT!

0:00-1:04 Dry Needling

1:05-2:58 Brian's PT Ryan

2:59-3:51 What is dry needling?

3:52-6:24 Where to focus dry needling

6:25-7:53 Dry needling vs. acupuncture

7:54-8:59 Brian's experience

9:00-10:11 Dry needling for Dystonia

10:12-11:47 What is cupping?

11:48-12:54 Cupping vs. needling

12:55-14:52 Things to take into consideration

14:53-18:58 How long do the needles stay in?

18:59-22:31 Who should consider dry needling?

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In this episode, we meet Amy Lavalee, who is a young-onset Parkinson's patient. She shares her personal story and then talks about her work with the Brian Grant Foundation. Check it out!

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One of the biggest Parkinson's advocates I know is George Ackerman. George's mom, Sharon, was living with Parkinson's for years before anyone ever knew. The last 4 years of her life, George was his mother's caretaker and learned more about the world of Parkinson's than he ever anticipated. Since her passing, he has has been dedicated to driving advocacy to find a cure.

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WOW, WOW, WOW! What a weekend! Our Parkinson's non-profit, the 5KforJK, had our 4th annual walking event this past weekend (September 15, 2024) in Columbus, OH. Erika came from Florida (for the 3rd time) and Jill came to Ohio for her 1st 5KforJK (and her first time to Ohio) all the way from Washington State! Straight from Erika and Jill - "community is everything...meeting other PD people is life changing."

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