In this episode, we meet Amy Lavalee, who is a young-onset Parkinson's patient. She shares her personal story and then talks about her work with the Brian Grant Foundation. Check it out!

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One of the biggest Parkinson's advocates I know is George Ackerman. George's mom, Sharon, was living with Parkinson's for years before anyone ever knew. The last 4 years of her life, George was his mother's caretaker and learned more about the world of Parkinson's than he ever anticipated. Since her passing, he has has been dedicated to driving advocacy to find a cure.

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WOW, WOW, WOW! What a weekend! Our Parkinson's non-profit, the 5KforJK, had our 4th annual walking event this past weekend (September 15, 2024) in Columbus, OH. Erika came from Florida (for the 3rd time) and Jill came to Ohio for her 1st 5KforJK (and her first time to Ohio) all the way from Washington State! Straight from Erika and Jill - "community is everything...meeting other PD people is life changing."

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If you are into learning more about the gut, check out this episode. We brought Martha Carlin back to talk about more research she is doing on the GUT! This time, she's researching the effects of body temperature and Parkinson's. It's still in the works, but man is it interesting to hear her talk about. While I may not understand all the scientific terms, I learn and understand what I need to from Martha!

Please remember, always talk to your physician and medical team before making any changes. We are not doctors!

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This was a new term to me, but I know a lot of others are probably aware. But take a minute to listen to Dr. Patel discuss sundowning and how a carepartner or family member can help.

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If you are on Instagram and have PD, you probably have seen, "imstillallie". Brian and I had the opportunity and priviledge to interview Allie Signorelli, a Young-onset PD powerhouse. Her career background happens to be in the non-profit space - doing events and fundraising for Alzheimer's. Even though she worked in the Neurodegenerative space as an advocate/event coordinator for years, she never expected to be a part of such a community. Allie was diagnosed with Young Onset Parkinson's - check out her story and the courageous work she is doing for the Parkinson's community! We appreciate all advocates! Thanks for your dedication. Hats off to Allie!

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Don't forget, you can also check out our video podcast on YouTube: https://www.youtube.com/@thesecretlifeofparkinsons

Meet my daughter, Kate Krauser, as she brings honesty and humor to life with a Parkinson's mom...and advocate.

My twins were just 9 years old when I was diagnosed. Long before I was diagnosed though, Kate, at the age of 7 and 8, was already "caring" for me and my symptoms. She would massage my leg and foot due to the rigidity and hold my \hand when it would shake. A few months after my diagnosis, I talked to my kids about it - I gave it a name because they already witnessed the symptoms.

Since my journey began, I have been very focused on showing my kids that in life, "It's not what happens to you, but how you react to it that matters". I try my best by watching how much I complain, showing them I can laugh at myself, exercising often, bringing humor to some of my symptoms, and doing things for others.

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We have my daughter Kate for one last episode! She joined me at the gym earlier this month and boy was she exhausted! this episode, we talk about the benefits of going to a gym and how to overcome challenges and barriers we put in front of exercising. Apathy and fatigue in PD patient definitely play a big part, so listen to some of the ways we overcome those barriers.

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Even though most people tell you "Don't google Parkinson's" after you're diagnosed, it's hard not to. So when we do, we are filtering through a sea of resources. Great resources, might I add! But sometimes I have a specific question that doesn't require a call to the doctor, or I'm finally ready to look into clinical trials, or I want to read about all the possible options that are available to me and how it has or has not helped others living with Parkinonson's. But there's nothing out there today that "houses" all of the great available resources. Until now!

Jessica Dove London created TurnTo, a FREE mobile app that curates daily Parkinson's content, helping you stay effortlessly informed.

1. Want to see if anyone else has shoulder pain and if so, how did they treat it?

2. Want to learn what diets have worked best for people with PD?

3. Want to see the most popular PD exercises?

4, Want to find a PD podcast that's right for you?

DONE!

TurnTo is your ultimate online resource for Parkinson's. Created by and for the Parkinson's community.

But to go LIVE, we need to know people out there want it! We need 500 more people to sign up on the waitlist. Just your name and email address. Simple!

Sign up for the waitlist today! https://waitlist.turnto.ai/parkinsons

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Dr. Benjamin Walter joined us from the Cleveland Clinic to talk about a very important initiative that he has been working on: when in the hospital, people with Parkinson's should be able to receive their medications at their specific times and that the staff and pharmacy are notified what drugs NOT to administer. I can't thank Dr. Walter and The Parkinson's Foundation enough for putting so much into this very critical project. As Brian said, I was "geeking" out!

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