Timestamps:

0:00 Intro

01:01 What is a patient-scientist? 

01:36 What’s the perspective of value they can bring to the table?

03:57 What has surprised you the most about this experience of being a patient-scientist?

08:05 Since you have shared this, what has been your experience interacting with the research community?

08:57 What are your reflections about how the medical community should understand about developing these relationships, seeking out or welcoming patient scientists in their research, interest or questions?

10:46 What’s been your own experience when you go to patient or research conferences, what is your experience like in those situations given you’re on both sides? 

12:34 Outro

Resources:

TEDx: Researching Your Own Disease

Society of Patient Scientists