Rarely Normal

What a fascinating conversation! This week, we welcome Jamie Day to the studio. We leaned all about mediumship and what it's like to 'engage;' with those who have past and discussed how she harnesses her 'gift' to support others on their grief journey. Thank you Jamie for shining a light on the things we cannot see.

We welcomed Marissa Curcuru to the studio this week to talk about Autism Spectrum Disorder (ASD) and her experience with her son Nolan. Her perspective is powerful and she's committed to paying it forward by supporting others with their ASD journey, She even writing a children's book to help normalize the disorder - check out Unique You See (https://www.amazon.com/Unique-You-See-Marissa-Curcuru/dp/B09YHBG8GD)

This week, we welcome Marybeth Ellis in the studio. Her raw, authentic and loving perspective on child loss is palpable. We're honored she shared her daughter Sidney with us and are in awe of her ability to give back to her community, and be a beacon of hope and love, in her name.

#childloss

What a pleasure to host Julee in the studio this week. We discussed her daughter Remy who has heterogeneous nuclear ribonucleoprotein H2 (HNRNPH2), playgrounds, connection, inclusion, and zebra's.

It was an honor and a pleasure to have Tracy in the studio this week. Not only is she a rare disease parent (her daughter has Lennox-Gastaut Syndrome), but she's the Executive Director of The LGS Foundation, a neuroscientist, geneticist, and patient advocate. We all should be more like Tracey and her daughter Savannah!

We welcome a unique and special guest this week to the studio. She's a physician but also a parent with child who has a rare disease. Keri comes to talk to us abut her beautiful son Tatum, who has Smith-Magenis Syndrome (SMS). We talk about listening to your gut, finding the right community and creating balance.

What a ride! We welcomed Gwen, a true survivor, to the studio this week to share her journey with a vestibular schwannoma in her brain. What a story of resilience and the power of the human spirit. A good life lesson on learning to listening to your body!

Kate Manacek is back in the studio - this time to share her story and journey to motherhood for the second time, with a micro preemie. Her daughter Ellie was born at 27 weeks and spent the first 6 months of her life in the NICU. Ellie has taught Kate, her family and loved ones the power of love, resilience, and strength.

What a journey and special human! This week we welcomed Katie Psoinos to the studio to talk about her decade + long IVF journey. We laughed, we cried, and we learned so much about the power of the human spirit.

We're kicking off Season 2 with Jillian Arnold. It was an honor to have her in the studio sharing her love and life with her two incredible kids - Roman and Stella. Both have ASMD (Acid sphingomyelinase deficiency) and her story is definitely one to share! Her perspective on rare disease is so unique and powerful.