Rarely Normal

A massive thank you to the guests and listeners in Season One. In this bonus episode, we answer listener Q&A and share some laugh-out-loud bloopers.

Season Two coming in August!

Support systems for those going through 'rarely normal' circumstances are critically important, which is why we're so blessed to have Lisa (Mueller) Welsien in the studio this week. Her nephew Kyle had CHD (congenital heart disease) and her love, light and support for her sister and family is a life lesson we'll continue to carry with us.

It was an absolute privilege to have Nicole Johnson in the studio this week, to discuss FOXG1 syndrome and her daughter Josie. Nicole and her warrior team of researchers, fund raisers and awareness creators left us in awe. Her children's book, Joyfully Josie is also a 'must read' for all parents and educators.

What an inspiration. The epitome of 'rarely normal,' Amy joins us this week to talk about her experience surviving viral encephalitis. From learning to walk and talk again, to running marathons, she is a true inspiration and example of the power of the human spirit.

What a force of energy. We're thrilled to have Nicole Tatgenhorst in the studio this week, after we slid into her DM's! Her daughter has BRAT1 and we learned so much about the importance of inclusion, empathy and the similarities between rare diseases,

This week we're joined by Tracey Lord, who captures the essence of what it means to approach hard things with humor. Her 9 year old daughter Ari has Autism Spectrum Disorder (ASD) and Tracey took us on a journey from her diagnosis to current day therapies. Tracey AND Ari are a force to be reckoned with

We're so privileged to welcome Nina to the studio this week and shine a light on her son Beau. Her realness when it comes to her grief journey and love for Beau was incredibly touching. Hopefully this episode will provide support for other child loss parents. While grief is personal and unique, its important to know you aren't alone.

What an incredible conversation we had this week with Ada Lio. Lukie may be the CEO of the household, but Ada and her husband are on a mission to find a cure for ZTTK. We were overwhelmed by her grace, light and perspective on parenting a child with a rare disease. Listen now and check out https://lukie.org/

This week, we welcome Meghan Johnson to the studio, for an incredibly heartfelt and powerful conversation about her daughter Grace. Grace was stillborn and we're incredibly grateful for Meghan's vulnerability and openness. We learned so much about what the experience is like and the importance of community and connecting with people of shared experiences.

This week, we welcome Sarah to the studio. She shares the story of her daughter Summer, who had BRAT1. The small but mighty BRAT1 mom group is a force to be reckoned with and we're honored to be able to share her story.