RealTalk MS

Sometimes, you can just look at someone and know how they're feeling. Our ability to "read people" is called social cognition. And we're learning that people living with MS can lose their social cognition skills, making every face-to-face interaction more difficult. My guest is Dr. Helen Genova, the Assistant Director of the Kessler Foundation's Center for Neuropsychology and Neuroscience Research, the Director of the Social Cognition and Neuroscience Laboratory at the Kessler Foundation, and an expert in social cognition. Today is National Voter Registration Day, and we'll remind you about why that should be important to everyone affected by MS or any other chronic illness. We're talking about why the FTC is clamping down on the claims that some companies are making about their CBD products. We'll tell you about the $19 million dollars that J.K. Rowling donated to MS research. And we'll let you know where to sign up for this Thursday's Pathways to a Cure Facebook Live event. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ It's Our Birthday! :30

Give RealTalk MS a Rating & Review 1:35

Today is National Voter Registration Day & Why That's Important if You're Living with MS 2:40

FTC Clamps Down on CBD Claims 5:55

J.K. Rowling Donates $19 Million to MS Research 9:00

Register for MS Society's Pathways to a Cure Facebook Live 10:04

My Interview with Dr. Helen Genova 10:58

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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National Voter Registration Day: Register To Vote

Pathways to a Cure Facebook Live Event Registration

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RealTalk MS Episode 108 Hosted By: Jon Strum Guest: Dr. Helen Genova

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, KesslerFdn, MSActivist, jk_rowling, RealTalkMS

Being diagnosed with multiple sclerosis means learning to live with a whole new set of challenges. Rising to meet those challenges and learning how to thrive in spite of those challenges is called resilience. But resilience isn't something that you're necessarily born with. Just like a muscle, resilience is something that you can choose to develop. My guest, Dr. Brandon Beaber, specializes in treating people living with MS and he's the author of Resilience in the Face of Multiple Sclerosis, a book that profiles some of his patients who have demonstrated great resilience in the face of MS and provides evidence-based tools on how you can develop your personal resilience. I see it as a how-to guide for living better with MS. And we'll tell you how you can get your free copy! We're also talking about why National Voter Registration Day should be important to everyone affected by MS or any other chronic illness. And we'll tell you where to sign up for the MS Society's upcoming Facebook Live workshop. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ The Progressive MS Alliance at the Ambassadors Ball :22

Daily Updates from ECTRIMS are Available for Binge-Listening 1:24

Presenting the Case for Adopting the Caregiver Protocol at Stanford Medicine X 1:53

National Voter Registration Day is 9/24...Why That's Important if You're Living with MS 5:26

Register for MS Society's Pathways to a Cure Facebook Live 7:02

Resilience In the Face of Multiple Sclerosis: My Interview with Author Dr. Brandon Beaber 8:16

Subscribe to RealTalk MS or Just Ask Alexa 22:34

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Get Your Free Copy of Resilience in the Face of Multiple Sclerosis by Tweeting Your Request to Dr. Brandon Beaber -- @Brandon_Beaber

Give RealTalk MS a Rating & Review

ECTRIMS 2019 Day 1 Update

ECTRIMS 2019 Day 2 Update

ECTRIMS 2019 Day 3 Update

Stanford Medicine X

National Voter Registration Day: Register To Vote

Join the National MS Society's MS Activist Network

Pathways to a Cure Facebook Live Event Registration

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

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RealTalk MS Episode 107 Hosted By: Jon Strum Guest: Dr. Brandon Beaber

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, ECTRIMS2019, Brandon_Beaber, RealTalkMS

Welcome to a special episode of RealTalk MS coming to you from Day Three of ECTRIMS 2019 in Stockholm, Sweden. This final day at ECTRIMS has become my favorite day of the conference because it's the day that I get to sit down with Dr. Bruce Bebo, the Executive Vice President of Research at the National MS Society, and get his perspective on the highlights of the entire conference. We're talking about new Phase 3 clinical trial outcomes, research that shows that lifestyle choices can impact the course and severity of MS, the importance of beginning disease-modifying therapy within 5 years of being diagnosed with MS, and how artificial intelligence is ushering in the age of personalized medicine. We have a lot to talk about. Welcome to ECTRIMS 2019!

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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ECTRIMS 2019 Scientific Programme

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RealTalk MS ECTRIMS Day 3 Hosted By: Jon StrumGuest: Dr. Bruce Bebo

Tags: MS, MultipleSclerosis, MSsociety, ECTRIMS2019, EMDSerono, RealTalkMS

Welcome to a special episode of RealTalk MS coming to you from Day Two of ECTRIMS 2019 in Stockholm, Sweden. ECTRIMS is an acronym that stands for the European Conference for Treatment & Research in Multiple Sclerosis, and this annual scientific congress is the largest MS research conference in the world. There are over 9,000 attendees here from more than 100 different countries to share new information, hear research updates, and get face to face with the leading MS researchers in the world. We're talking about stem cell therapy, the long-term outcomes of MS, new data about Ocrevus, the importance of managing comorbidities, and a new global initiative that puts the voice of people living with MS at the center of MS research and MS care. We have a lot to talk about. Welcome to ECTRIMS 2019!

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

ECTRIMS 2019 Scientific Programme

Download the RealTalk MS App for iOS

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RealTalk MS ECTRIMS Day 2 Hosted By: Jon Strum

Tags: MS, MultipleSclerosis, ECTRIMS2019, EMDSerono, Stemcells, PROMS, RealTalkMS

Welcome to a special episode of RealTalk MS coming to you from ECTRIMS 2019 in Stockholm, Sweden. ECTRIMS is an acronym that stands for the European Conference for Treatment & Research in Multiple Sclerosis, and this annual scientific congress is the largest MS research conference in the world. There are over 9,000 attendees here from more than 100 different countries to share new information, hear research updates, and get face to face with the leading MS researchers in the world. We're talking about some of the announcements that we expect to hear from some of the pharmaceutical companies in attendance. And we'll also tell you about a session that you'll be able to catch on a live webcast tomorrow morning. We have a lot to talk about. Welcome to ECTRIMS 2019!

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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ECTRIMS 2019 Scientific Programme

Live Webcast from ECTRIMS Tomorrow, 5:45 AM EST

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RealTalk MS ECTRIMS Day 1 Hosted By: Jon Strum

Tags: MS, MultipleSclerosis, ECTRIMS2019, EMDSerono, Roche, BrainstormCell, RealTalkMS

This week, we're talking about palliative care for MS. It's a topic that a lot of people living with MS still don't know enough about, but palliative care can offer real benefits in attaining the best overall quality of life.

Joining me in discussing palliative care is my guest, Cherie Binns. Cherie was diagnosed with relapsing-remitting MS in 1994. She's been a Registered Nurse for 45 years, and Cherie is also an Internationally Certified MS Nurse. Cherie serves as the co-chair of the iConquerMS Research committee, and she regularly presents programs on living well with MS.

We'll also remind you that beginning tomorrow, you can listen to daily episodes of RealTalk MS directly from ECTRIMS 2019 in Stockholm, Sweden. I'll do my best to keep you updated on the announcements being made, the presentations being given, and the news coming out of the largest MS research conference in the world. We'll even tell you how you can catch a couple of sessions that will be webcast live from ECTRIMS 2019.

We have a lot to talk about! Are you ready for RealTalk MS??! ___________ The Ambassadors Ball Is Happening Tonight! :22

Beginning Tomorrow: Special RealTalk MS Episodes from ECTRIMS 2019 1:26

Catch Sessions from ECTRIMS on the Live Webcast 1:57

Palliative Care for MS with Cherie Binns, RN, MSCN 3:09

Download the RealTalk MS App 23:16

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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Live Webcasts from ECTRIMS 2019

National MS Society MS Navigators

GetPalliativeCare.org

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RealTalk MS Episode 106 Hosted By: Jon Strum Guest: Cherie Binns, RN, MSCN

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, PalliativeCare, ECTRIMS2019, RealTalkMS

Five years ago, James Beard Award-winning chef Chris Shepherd decided to hold a barbecue event in his restaurant's parking lot, to raise money for the National MS Society. Today, the Southern Smoke Festival has grown into the largest 3rd party MS Society fundraising event in the United States, and with the 5th Annual Southern Smoke Festival just a few weeks away, we're talking with Chris about how this event got its start, and how it's grown to be one of the most noteworthy culinary events in the country. We're also talking about the new vaccination guidelines (including flu shots!) that were just published by the American Academy of Neurology for people living with MS. We'll tell you about a study that gives you one more reason to start disease-modifying therapy early...and stay on it! We'll also tell you about a study that shows the cost of MS disease-modifying therapy has increased 7X over just 10 years for Medicare patients. And we've found one more study that demonstrates how people with more advanced progressive MS can still benefit from physical rehabilitation. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Where You Can Find Me in September :32

American Academy of Neurology Issues Vaccination Guidelines for People Living with MS 4:39

The Long-Term Effects of Disease-Modifying Therapy 6:15

DMT Costs Increase 7X for Medicare Patients 7:49

Upper-Limb Task-Oriented Rehab Shows Benefits for People Living with Progressive MS 11:56

My Interview with Chris Shepherd 15:01

Subscribe to RealTalk MS or Just Ask Alexa 27:13

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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Southern Smoke Festival

Practice Guideline Update Summary: Vaccine-Preventable Infections and Immunization in Multiple Sclerosis -- Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology

The Long-Term Effects of Disease-Modifying Therapies on Disability in People Living with Multiple Sclerosis: A Systematic Review and Meta-Analysis

Trends in Prices, Market Share, and Spending on Self-Administered Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D

Preserved Brain Functional Plasticity After Upper Limb Task-Oriented Rehabilitation in Progressive Multiple Sclerosis

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RealTalk MS Episode 105 Hosted By: Jon Strum Guest: Chris Shepherd

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, SouthernSmokeTX, RealTalkMS

Fatigue isn't only a common symptom of MS; it's also one of the most disruptive symptoms of MS. It's hard to be out living life when you're trying to overcome that feeling of just not having any gas left in the tank. My guest is Dr. Ekaterina Dobryakova, a research scientist at the Kessler Foundation's Center for Traumatic Brain Injury Research, where she conducts research in cognitive dysfunction caused by traumatic brain injury and multiple sclerosis. Dr. Dobryakova's research has shown that there may be a behavioral intervention -- a treatment that doesn't involve any drugs -- that can effectively reduce MS fatigue. We're also talking about the letter that former NBA championship-winning head coach David Blatt wrote, announcing his primary progressive MS diagnosis. We'll tell you about a discovery at UCLA that may explain why women are three times more likely than men to develop MS. And we'll tell you how you can join more than 4,600 people living with MS and be a part of an epic MS study from the comfort of your own home. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ Coach David Blatt's Letter About His Primary Progressive MS Diagnosis 1:15

X-Chromosome Gene May Explain Why Women Are Diagnosed With MS 3 Times More Often Than Men 8:29

Your Opportunity to Participate in the Slifka Study 11:54

My Interview with Dr. Ekaterina Dobryakova 14:15

Subscribe to RealTalk MS or Just Ask Alexa 29:14

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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Kessler Foundation

STUDY: The X-Linked Histone Demethylase Kdm6a in CD4+ T Lymphocytes Modulates Autoimmunity

Participate in the Slifka Study

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RealTalk MS Episode 104 Hosted By: Jon Strum Guest: Dr. Ekaterina Dobryakova

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, KesslerFDN, Coach_Blatt, UCLA, RealTalkMS

My guest is Kyra Millich, who, until October of 2013, was a consumer protection litigator in San Francisco, recently married, and already thinking about planning a family. And that's when she received her MS diagnosis. I don't know if Kyra would say that her diagnosis changed her life, or clarified it, but I found Kyra's MS journey to be interesting, inspirational, and instructional. And I think you will too. We're also talking about a breakthrough study in which a research team was able to reverse aging in some very specific brain stem cells in rats (and we'll tell you why that's particularly important to people living with MS!) We'll tell you about the discovery of the connection between certain MS lesions and progressive MS. There's an interesting survey on the economic impact of MS, and we want to remind you that this Thursday is Burgers to Beat MS day in Canada!

We have a lot to talk about. Are you ready for RealTalk MS??!

___________ Scientists Reverse Aging in Brain Stem Cells in Rats and Why That's a Breakthrough in MS Research 1:28

Smoldering Lesions May Signal Progressive MS 6:34

Patient Registry Shows the Economic Impact of MS 9:33

"Burgers to Beat MS" is Thursday at A&W in Canada 11:32

My Interview with Kyra Millich 14:24

Have an iPhone? It's Easy to Give RealTalk MS a Rating & Review 39:22

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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STUDY: Niche Stiffness Underlies the Ageing of Central Nervous System Progenitor Cells

STUDY: Association of Chronic Active Multiple Sclerosis Lesions With Disability In Vivo

Burgers to Beat MS Online Donation Page

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RealTalk MS Episode 103 Hosted By: Jon Strum Guest: Kyra Millich

Tags: MS, MultipleSclerosis, MSResearch, RealTalkMS

My guest is Professor Helen Tremlett, who holds the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia, in Vancouver, Canada. Professor Tremlett has been involved in more than 200 published research studies, and we're going to talk about a few of them -- including the research that she's done on the correlation between MS disability progression and socioeconomic status.

We're also talking about a study that indicates starting disease-modifying therapy early can slow brain atrophy among people living with MS. You already know that physical activity -- even walking -- is beneficial for people living with MS. We'll tell you why it might be even more beneficial for people living with MS to listen to music while they're walking. And we'll share news about potentially positive legislation for federal workers who are also MS caregivers.

We have a lot to talk about. Are you ready for RealTalk MS??!

___________ Starting Disease-Modifying Therapy Early Slows Brain Atrophy in MS 1:14

Why You'll Want to Take Your Tunes With You When You Walk 3:23

House Approves Paid Family Leave for Federal Workers 6:29

My Interview with Professor Helen Tremlett 11:38

RealTalk MS & Your Amazon Echo or Echo Dot 32:27

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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STUDY: Socioeconomic Status and Disability Progression in Multiple Sclerosis: A Multinational Study

STUDY: The Gut Microbiota and Pediatric Multiple Sclerosis: Recent Findings

STUDY: Relapse Number and Earlier Intervention by Disease Modifying Drugs are Related With Progression of Less Brain Atrophy in Patients with Multiple Sclerosis

STUDY: Continuous 12 Min Walking to Music, Metronomes, and Silence: Auditory-Motor Coupling and Its Effects On Perceived Fatigue, Motivation, and Gait in Persons with Multiple Sclerosis

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RealTalk MS Episode 102 Hosted By: Jon Strum Guest: Professor Helen Tremlett

Tags: MS, MultipleSclerosis, MSResearch, caregiving