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RealTalk MS
Based on Podcast App listening data
RealTalk MS episodes
- Bonus: From the CMSC Annual Meeting Day 3 (5/31/2019)
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, talking about mental health care for people living with MS, coping with anxiety, and the real advantages of telerehabilitation. We even sat down to talk with with artist and MS Activist Lydia Emily.
We have a lot to talk about! Are you ready for RealTalk MS??!
28 min - Bonus: From the CMSC Annual Meeting Day 2 (5/30/2019)
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about community based programs to enhance comprehensive MS care, understanding the MS care partner's perspective, improving MS treatment outcomes, and more.
We have a lot to talk about! Are you ready for RealTalk MS??!
17 min - Bonus: From the CMSC Meeting Day 1 (5/29/2019)
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about MS Navigators, Myelocortical MS, a new paradigm in how patients and doctors should be communicating, and more.
We have a lot to talk about! Are you ready for RealTalk MS??!
20 min - Episode 91: International Progressive MS Alliance Research UpdateThe International Progressive MS Alliance is an unprecedented and unparalleled global effort to understand and treat progressive MS. Last week, I was in Copenhagen, Denmark, for an important meeting of the Progressive MS Alliance Scientific Steering Committee. And in today's episode, I'll update you on the status of three potentially breakthrough progressive MS international research projects.
Don't forget! World MS Day is Thursday, May 30, and we're talking with MS International Federation CEO, Peer Baneke, about why World MS Day is important, and how you can participate!
And this is your final reminder! You only have until May 31 to submit your entry to be my special guest on RealTalk MS Episode #100!
We have a lot to talk about. Are you ready for RealTalk MS??!
You Can Be My Guest on RealTalk MS Episode 100 :59
Research Update from the International Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen, Denark 2:37
My World MS Day interview with MS International Federation CEO, Peer Baneke 15:07
___________
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.
Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]Phone: (310) 526-2283
___________
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Be My Guest on RealTalk MS Episode #100
International Progressive MS Alliance
Multiple Sclerosis International Federation
World MS Day
Download the RealTalk MS App for iOS
Download the RealTalk MS App for Android
Give RealTalk MS a Rating & Review
___________Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 91 Hosted By: Jon Strum Guest: Peer Baneke
Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, MyInvisibleMS, MSIntFederation, RealTalkMS
24 min - Episode 90: The MS Association of America with President & CEO Gina MurdochThe Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help. My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs.
We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me.
We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy.
We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS.
We have a lot to talk about. Are you ready for RealTalk MS??!
Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen :22
EMD Serono Hosts Patient 360 Meeting 2:27
Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease 6:07
MAT Can Connect You to Financial Support for Disease-Modifying Therapy 7:53
Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS 9:58
Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge 12:22
My Interview with MSAA's Gina Murdoch 16:13
___________
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.
Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]Phone: (310) 526-2283
___________
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
International Progressive MS Alliance
Multiple Sclerosis Association of America
MAT (Medicine Assistance Tool)
Can-Do MS Young Adults Take Charge Program
Can-Do MS Secondary Progressive MS Webinar Series
Celgene Lyfebulb MS Innovation Challenge
Be My Guest on RealTalk MS Episode #100
Download the RealTalk MS App for iOS
Download the RealTalk MS App for Android
Give RealTalk MS a Rating & Review
___________Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 90 Hosted By: Jon Strum Guest: Gina Murdoch
Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS
34 min - Episode 89: Exercise & MS with Dr. Lara PiluttiI get a lot of listener questions about exercise and MS. And a lot of those questions come from people living with progressive MS, wondering whether the conversation about physical activity and MS applies to them. My guest this week is Dr. Lara Pilutti, an expert in the role of exercise in the management and treatment of disability arising from multiple sclerosis. We're talking about how you want to be thinking about exercise and why you want to be thinking about exercise, whether you're living with relapsing-remitting MS or progressive MS.
We're also talking about this year's winner of the Dystel Prize for MS Research. We'll tell you about the long overdue approval of Ocrevus to treat early primary progressive MS in the U.K. You'll hear about the French research team that has found a connection between ancient retroviruses and MS. And we'll tell you about legislation introduced in Congress that's supposed to protect people with pre-existing conditions...but doesn't!
We have a lot to talk about. Are you ready for RealTalk MS??!
Now You Can Find RealTalk MS on Pandora :53
Download the Free RealTalk MS App 1:18
You Can Be My Special Guest on RealTalk MS Episode #100 2:09
Dystel Prize for MS Research Awarded to Dr. Anne Cross 4:17
Ocrevus (Finally!) Approved in the U.K. for Treatment of Early Primary Progressive MS 6:10
Researchers Find a Connection Between Ancient Retroviruses and MS 7:12
Republican Legislators Introduce Bills That Protect People with Pre-Existing Conditions...Or Do They???! 8:25
My Interview with Dr. Lara Pilutti 14:53
___________
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.
Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]Phone: (310) 526-2283
___________
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Be My Guest on RealTalk MS Episode #100
Download the RealTalk MS App for iOS
Download the RealTalk MS App for Android
Give RealTalk MS a Rating & Review
___________Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 89 Hosted By: Jon Strum Guest: Dr. Lara Pilutti
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Ocrevus, ProtectOurCare, Caregiving, RealTalkMS
27 min - Bonus: From the AAN Annual Meeting (Tues 5/07)
We're at the American Academy of Neurology Annual Meeting in Philadelphia, and we're talking about teleneurology, stem cells, a new algorithm, and a new research network with ambitious goals. Today, it's a real peek into the future!
We have a lot to talk about! Are you ready for RealTalk MS??!
12 min - Bonus: From the AAN Annual Meeting (Mon. 5/06)
Get the latest news from the American Academy of Neurology Annual Meeting. We're looking into the future of applying precision medicine to treat MS. We're talking about an artificial intelligence application that's designed to predict the course of your MS and recommend the best treatment plan for you We'll also tell you about a "digital prescription therapeutic" designed to treat depression in people living with MS.
And researchers are also looking at better understanding the recent past, as a research study explains the single most significant factor driving the rising cost of healthcare for people living with MS in the United States. We'll also tell you about a study that compared IV disease-modifying therapies with oral disease-modifying therapies when it comes to slowing MS progression.
There's a lot going on at the AAN Annual Meeting, and we have a lot to talk about! Are you ready for RealTalk MS??!
10 min - Bonus: From the AAN Annual Meeting (Sun. 5/05)
It's my first day at the American Academy of Neurology Annual Meeting, and we're talking about a great presentation on Progress in Progressive MS and some eye-opening news about the amount of money we're spending in the U.S. on prescription drugs to treat neurological conditions.
10 min - Episode 88: Fighting for A Cure with MS Activist Yvette BriscoMy guest this week is Yvette Brisco. Yvette is an MS activist and an MS warrior. And when Yvette talks about the fight to find a cure, she means it literally!
We're also talking about the European Medicine Agency's safety review of Lemtrada. We'll tell you about the 20 million American caregivers who are performing medical or nursing tasks for which they've received no training. We'll give you a real-world example of why people living with MS (or anyone else) living in a care facility need an advocate. And you'll hear about a web portal that uses language skills and artificial intelligence to predict cognitive decline.
We have a lot to talk about. Are you ready for RealTalk MS??!
RealTalk MS Will Be Podcasting From All The Major MS Conferences :22
Download the free RealTalk MS app 1:30
The RealTalk MS Listener Community Set Another Record This Month 2:11
You Can Be My Special Guest on RealTalk MS Episode #100 2:51
The EMA Is Reviewing Lemtrada Safety Data 5:00
20 Million Family Caregivers Are Performing Medical or Nursing Tasks Without Training 7:33
One More Example of Why People Living With MS (And Everyone Else) In A Care Facility Needs an Advocate 9:34
Web Portal Uses Language Skills & AI To Predict Cognitive Decline 14:04
My Interview with MS Activist & MS Warrior Yvette Brisco 16:33
___________
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.
Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected]Phone: (310) 526-2283
___________
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Be My Guest on RealTalk MS Episode #100
Download the RealTalk MS App for iOS
Download the RealTalk MS App for Android
Use of Multiple Sclerosis Medicine Lemtrada Restricted While EMA Review is Ongoing
Home Alone Revisited: Family Caregivers Providing Complex Care
Talk2Me: Automated Linguistic Data Collection for Personal Assessment
Give RealTalk MS a Rating & Review
___________Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 88 Hosted By: Jon Strum Guest: Yvette Brisco
Tags: MS, MultipleSclerosis, MSResearch, EMA, Lemtrada, Caregiving, RealTalkMS
35 min
About RealTalk MS
From the publisher's feed
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You'll meet the scientists who are creating tomorrow's MS treatments today. You'll hear from the experts…
discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we'll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
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