RealTalk MS

Robots?? Really??? The answer is YES! World renowned robotics expert Dr. Maja Mataric joins us on the podcast, and we're talking about how socially assistive robots could be real game-changers for people living with MS and other chronic conditions, as well as their caregivers.

We're also talking about the $24.4 million investment by the National MS Society that will support 64 new MS research projects. We'll tell you about the research team at Oregon Health & Science University that believes they have solved remyelination! We'll show you how you can stay cool this summer and how you can get a brand new laptop or desktop computer from the Multiple Sclerosis Foundation...for free!

We're reminding you that there's still time for you to see the video replay of an outstanding progressive MS webinar, and we'll even tell you about the woman living with MS who decided to get her stem cell transplant live on Facebook!

We have a lot to talk about. Are you ready for RealTalk MS??!

You Can Be My Special Guest on RealTalk MS :22

National MS Society Invests $24.4 Million in 64 New MS Research Projects 3:15

Oregon Health & Sciences University Investigators Announce Remyelination Breakthrough 6:14

Free Resources Available from the Multiple Sclerosis Foundation 10:15

Progressive MS Webinar Hosted by Multiple Sclerosis International Federation 12:15

Hematopoietic Stem Cell Transplantation on Facebook Live 14:21

Diagnosing & Treating MS Video Series Is Available Online 16:11

My Interview with Dr. Maja Mataric 17:27

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Be My Guest on RealTalk MS Episode #100

MS Society Invests $24.4 Million in 64 New MS Research Projects

Myelin Repair Stimulated by CNS-Selective Thyroid Hormone Action

MS-FOCUS Cooling Program

MS-FOCUS Computer Program

VIDEO: Solving Progressive MS: Progress Achieved and Hope for the Future

VIDEO: Jacksonville Nurse Gets Experimental Stem Cell Treatment Live on Facebook

VIDEO: Advances in the Diagnosis and Treatment of Multiple Sclerosis

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RealTalk MS Episode 87 Hosted By: Jon Strum Guest: Dr. Maja Mataric

Tags: MS, MultipleSclerosis, MSResearch, Robotics, Stemcells, Remyelination, MSFocus, MSIF, ProgressiveMS, RealTalkMS

We're at a point in time when there's a tremendous amount of interest as well as confusion surrounding cannabis-based treatments for MS. My guest is Aryn Sieber, the CEO and Founder of the CannaCauses Foundation and Cannaisseur Brands.

Aryn is a strong advocate of using cannabis-derived treatments to help relieve symptoms of disease processes, particularly MS. And he's partnered with MS centers and neurologists to better understand how cannabis-based treatments can help people manage their MS symptoms while reducing their dependence on other prescription medications.

We have a lot to talk about. Are you ready for RealTalk MS??!

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

CannaCauses Foundation

Cannabis and Multiple Sclerosis Symptoms (National MS Society)

Medical Marijuana in Certain Neurological Disorders (American Academy of Neurology)

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RealTalk MS Episode 86 Hosted By: Jon Strum Guest: Aryn Sieber

Tags: MS, MultipleSclerosis, MSResearch, Cannabis, CannaCauses, RealTalkMS

In less than a decade, Meat Fight has actually grown from a backyard barbecue to a non-profit organization that hosts several different fundraising events, offers some unique programs for people affected by MS, and has raised more than $1 million dollars for the National MS Society. My guest today is Alice Laussade, the creator of Meat Fight, and the very definition of a real MS Warrior.

We're also talking about a new research initiative to investigate cannabis and MS. We'll tell you about the potential dangers of unregulated stem cell therapy procedures, a start-up that's out to make getting to your medical appointments easier than it's ever been, and a research study that you can complete from the comfort of your own home -- and get compensated for your time!

We have a lot to talk about. Are you ready for RealTalk MS??!

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MS Society in Canada Invests $1.5 Million in Cannabis Research 5:33

Stem Cell Therapy for MS: Still Work to Be Done 6:50

Kaizen Health Is Changing the Way Patients Get to Medical Appointments...for the better! 10:40

MS Research Opportunity 13:57

My Interview with Alice Laussade 15:57

Download the Free RealTalk MS App 34:38

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

MS Society Canada Team Grant: Cannabis Research in Priority Areas

For More Info on the Kessler Foundation Research Study Contact Michael DiBenedetto Phone: (973) 324-8391 Email: [email protected]

Meat Fight

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RealTalk MS Episode 85 Hosted By: Jon Strum Guest: Alice Laussade

Tags: MS, MultipleSclerosis, MSResearch, Cannabis, Stemcells, KaizenHealth, KesslerFdn, Meatfight, RealTalkMS

If someone is being treated for MS, their neurologist is using the Expanded Disability Status Score, or EDSS, to indicate their level of disability. What if there were a better, easier, and more accurate way to measure mobility and evaluate disability? My guest today is Dr. Valerie Block, a Postdoctoral Fellow in the Department of Neurology at University of California San Francisco. As a physical therapist, Dr. Block is focused on MS rehabilitation. And we're talking about a just-published study that demonstrates that the way neurologists measure disability may not be providing a complete and accurate picture...and there may be a much better way to get that done. We're also talking about a new effort to eliminate the Affordable Care Act and strip away all of its protections for people living with MS and every other chronic illness -- and how the National MS Society and 25 other national patient organizations are fighting back by supporting new legislation designed to strengthen the ACA. We'll tell you about the TWO!!! MS prescription medications that just received FDA approval, and we'll even tell you about yet another MS prescription medication that's now awaiting FDA approval. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

RealTalk MS Reaches a Milestone :26

Join the RealTalk MS Conversation :48

Living with MS? Your Access to Healthcare is Under Attack ...Again! 2:53

Mavenclad Receives FDA Approval for Treating Relapsing-Remitting and Active Secondary Progressive MS 11:37

Siponimod Receives FDA Approval for Treating Relapsing-Remitting and Active Secondary Progressive MS 15:01

Celgene Submits Application for FDA Approval of Ozanimod for Treating Relapsing-Remitting MS 16:41

My Interview with Dr. Valerie Block 19:16

Download the Free RealTalk MS App 34:04

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

26 Patient Groups Support Bill to Stabilize and Strengthen the Affordable Care Act FDA Approves New Oral Treatment for Multiple Sclerosis FDA Approves New Oral Drug to Treat Multiple Sclerosis

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RealTalk MS Episode 84 Hosted By: Jon Strum Guest: Dr. Valerie Block

Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, Mavenclad, EMDSerono, Siponimod, Novartis, Celgene, RealTalkMS

March 28th is Progressive MS Day. While only about 15% of the people diagnosed with MS are initially given a diagnosis of Primary Progressive MS, about 65% of the people who are diagnosed with relapsing-remitting MS will eventually develop Secondary Progressive MS. And the difference between progressive MS and relapsing-remitting MS is that, usually, people diagnosed with Progressive MS don't experience any remission in their disease progression. Their MS just seems to worsen more steadily over time. And while we have more than a dozen approved disease-modifying therapies for relapsing-remitting MS, we have just one approved disease-modifying therapy for progressive MS. So using Progressive MS Day to highlight the need for more research, more treatments, and more attention to be paid to this less popular but more devastating MS sub-type is important. My guest on the podcast is Kevin Reid, who was diagnosed with relapsing-remitting MS in 2002, and is now living with progressive MS. We'll get Kevin's thoughts about Progressive MS Day and hear about his very successful efforts as an MS Warrior. We're also talking about a stem cell clinical trial aimed at progressive MS (the National MS Society has invested $1 million in this clinical trial), why neurologists don't seem to be following the recommended guidelines for treating older people living with progressive MS, you'll hear about a couple of excellent MS Association of America webinars and podcasts that focus on the impact of MS on families, and a global webcast that's being hosted by the MS International Federation, featuring some of the top progressive MS experts in the world -- it's a webcast that you won't want to miss. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

Progressive MS Day 1:45

MSAA Webinars & Podcasts Focus on Impact of MS on Families 4:31

Neurologists Aren't Following One Particular MS Treatment Guideline 6:10

National MS Society Funds New Clinical Trial Using Individuals' Own Stem Cells to Treat Progressive MS 9:31

In Global Webcast, Top Experts Will Discuss Solving Progressive MS: Progress Achieved and Hope for the Future 11:09

My Interview with Kevin Reid 14:06

Join the RealTalk MS Conversation 27:11

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

Podcast: Exploring Relationships & MS with Miriam Franco, MSW, PsyD, MSCS

Webinar: Intimacy & Family Planning with MS with Kimberly Castelo, LMFT, CST, CIIP

Webinar: The Partnership of Care: Redefining Caregiver to Care Partner with Megan Weigel, DNP, ARNP-c, MSCN

Podcast: Spotlighting Care Partner Needs with Lara Krawchuk, MSW, LCSW, MPH

Use and Cost of Disease-Modifying Therapy Between 2008 and 2009: Are Neurologists Adhering to Treatment Guidelines? National MS Society Funds New Clinical Trial of Individuals' Own Stem Cells to Treat Progressive MS Solving Progressive MS Global Webcast Registration Crush MS

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RealTalk MS Episode 83 Hosted By: Jon Strum Guest: Kevin Reid

Tags: MS, MultipleSclerosis, MSResearch, mssociety, ProgressiveMS, MSAssociation, MSIF, CrushMS, Stemcells, RealTalkMS

MS is an equal opportunity neurological disease. It doesn't seem to discriminate against any particular ethnic or racial group. It affects Latinos and African-Americans, as well as Caucasians. And if you're an MS research scientist, who's hoping to create a viable treatment that's going to be safe & effective for the diverse population living with multiple sclerosis, then having that diversity represented in your clinical research seems like it would be important. Unfortunately, it doesn't always happen that way. Minority populations are frequently overlooked and under-represented in MS clinical research. My guest on the podcast is Dr. Mitzi Joi Williams, a neurologist and MS Specialist with a strong interest in better understanding the course of MS in ethnic minority populations, and in increasing diversity in clinical research. We're also talking about important MS stem cell research that's being funded by the Department of Defense, the risks associated with stem cell tourism, a new oral Disease Modifying Therapy for relapsing-remitting MS, and a newly-approved prescription medication for treatment-resistant depression. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

Promising MS Stem Cell Research Funded by Department of Defense 1:33

National MS Society Announces Strategic Partnership with U.S. Department of Veteran Affairs 4:32

The Risks of Stem Cell Tourism 5:26

Celgene Seeks EMA Approval of Ozanimod 11:29

FDA Approves Esketamine for Treatment-Resistant Depression 12:50

My Interview with Dr. Mitzi Joi Williams 16:27

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

Using Reprogrammed Stem Cells as a Therapy for MS

Complications of Stem Cell Tourism in Multiple Sclerosis & Other Neurological Diseases: Results From First Nationwide Survey of Academic Neurologists

Celgene Submits Application to EMA for Ozanimod for the Treatment of Relapsing-Remitting Multiple Sclerosis

FDA Approves Esketamine Nasal Spray for Treatment of Resistant Depression

MS Made Simple by Dr. Mitzi Joi Williams

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RealTalk MS Episode 82 Hosted By: Jon Strum Guest: Dr. Mitzi Joi Williams

Tags: MS, MultipleSclerosis, MSResearch, mssociety, Ozanimod, Esketamine, iConquerMS, Stemcells, RealTalkMS

It's MS Awareness Week! And the single event that is likely going to have the most impact in raising awareness of MS in the United States is the recent announcement of the MS Prevalence Study results. The results of this study corrected the decades old notion that there were only about 400,000 people living with MS in the United States. We now know that the number of people living with MS in the U.S. is closer to one million. More than twice as many as had been previously estimated. In this special RealTalk MS episode, we're going to look at MS prevalence from a number of different perspectives. My guests include National MS Society President and CEO, Cyndi Zagieboylo, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and MS Prevalence Study Investigator, Dr. Ruth Ann Marrie. But what about people who are living with MS? What are their thoughts about being one in a million? We're also talking with MS Activists Tami Ryan, Karen Jackson, and Dan & Jennifer Diggman. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

It's MS Awareness Week :22

My Interview with National MS Society CEO, Cyndi Zagieboylo 3:40

My Interview with National MS Society Executive Vice-President of Research, Dr. Bruce Bebo 12:32

My Interview with MS Prevalence Study Investigator, Dr. Ruth Ann Marrie 24:18

Comments about the MS Prevalence Study from MS Activists Tami Ryan, Karen Jackson, and Dan & Jennifer Digmann 34:34

Join the RealTalk MS Conversation 38:13

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

The Prevalence of MS in the United States: A Population-Based Estimate Using Health Claims Data

A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with MS

Validation for an Algorithm For Identifying MS Cases in Administrative Health Claims Datasets

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RealTalk MS Episode 81 Hosted By: Jon Strum Guests: Cyndi Zagieboylo, Dr. Bruce Bebo, Dr. Ruth Ann Marrie, Tami Ryan, Lisa Jackson, Dan & Jennifer Digmann

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, TwiceAsMany, MSPrevalence, RealTalkMS

My guest this week is Diane Whitcraft, a retired middle school teacher who had been taking the same MS prescription medication for more than 20 years. But once Diane retired and her health insurance changed, that same medication became unaffordable. Diane traveled to Washington D.C. last month, as Wisconsin Senator Tammy Baldwin's guest at the President's State of the Union address. She is back in our nation's capitol this week, speaking at the National MS Society's Public Policy Conference about the importance of having access to affordable MS prescription medications. Senator Tammy Baldwin (right) and Diane Whitcraft We're also talking about the official statement on stem cell therapy for MS by The American Society for Blood & Marrow Transplantation. We'll tell you about a new study that measured the impact of diet and other lifestyle factors on MS progression, you'll hear about a different study that highlighted the large percentage of people who are being misdiagnosed with MS, and you'll learn how some new emojis will help to de-stigmatize disability. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

It's Our Day on the Hill :57

The American Society for Blood & Marrow Transplantation Makes an Official Statement About Stem Cell Therapy for MS 2:48

STUDY: The Impact of Diet & Lifestyle Factors on MS Progression 5:47

STUDY: 1 in 5 Patients Referred to 2 Academic MS Centers Are Misdiagnosed 8:17

How New Emojis Can Help De-Stigmatize Disability 5:47

My Interview with MS Activist Diane Whitcraft 12:36

Join the RealTalk MS Conversation 28:43

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

Autologous Hematopoietic Cell Transplantation for Treatment-Refractory Relapsing Multiple Sclerosis: Position Statement From the American Society For Blood and Marrow Transplantation

Dietary and Lifestyle Factors in Multiple Sclerosis Progression: Results from a 5-Year Longitudinal MRI Study

Incidence of Misdiagnosis of Multiple Sclerosis in Referrals to Two Academic Centers

Preview the New Emojis That Will Help to De-Stigmatize Disability

National Multiple Sclerosis Society: Advocate For Change

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RealTalk MS Episode 80 Hosted By: Jon Strum Guest: Diane Whitcraft

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, MSPPC19, RealTalkMS

No matter what sort of challenge a caregiver may be facing -- financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is made more difficult by that accompanying feeling of isolation that so many caregivers experience.

My guest is Heidi Telschow, manager of Fairview Health Services' Caregiver Assurance program, a unique program designed to seamlessly connect caregivers to the resources they need.

We're also talking about the eye-popping increase in the prevalence of MS in the United States, now reaching nearly one million adults. We'll tell you about a study that shows how the early use of more intensive MS disease-modifying therapy may provide better outcomes for people living with MS, you'll hear about an Innovation Challenge that could reward your inner entrepreneur with $25,000 in cash, and we'll tell you why the FDA has been asked to fast-track a cannabis-based treatment for spasticity in progressive MS. We have a lot to talk about! Are you ready for RealTalk MS?! ___________

STUDY: MS Prevalence In the United States Nears 1 Million 2:18

STUDY: Long-Term Benefit Seen in Early Use of More Intensive Disease-Modifying Therapy 5:42

Lyfebulb-Celgene Innovation Challenge in MS 9:04

FDA Requested to Fast-Track Cannabis-Based Treatment for Spasticity in Progressive MS 10:43

My Interview with Heidi Telschow from Caregiver Assurance 12:36

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

___________

LINKSIf your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with Multiple Sclerosis

Validation of an Algorithm for Identifying MS Cases in Administrative Health Claims Datasets

The Prevalence of Multiple Sclerosis in the United States: A Population-Based Estimate Using Health Claims Data

RealTalk MS Episode 74: Induction vs Escalation Therapy with Dr. Aaron Boster

Clinical Outcomes of Escalation vs Early Intensive Disease-Modifying Therapy in Patients With Multiple Sclerosis

Application for Lyfebulb-Celgene Innovation Challenge in MS

Give RealTalk MS a Rating & Review

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RealTalk MS Episode 79 Hosted By: Jon Strum Guest: Heidi Telschow

Tags: MS, MultipleSclerosis, MSResearch, TwiceAsMany, Lyfebulb, Caregiving, RealTalkMS

Over the past year, we've seen our access to affordable, quality healthcare come under unprecedented attack. We've seen a federal judge declare the Affordable Care Act to be unconstitutional. And we continue to see our access to affordable prescription medications -- the medications that have been shown to delay the progression of MS and extend the quality of life for everyone living with MS -- that access remains threatened by the constant skyrocketing cost of those medications. That's why advocating on behalf of our own interests is so important to the MS community. My guest this week is Bari Talente, the Executive Vice-President of Advocacy for the National Multiple Sclerosis Society. We're talking about the National MS Society's upcoming Public Policy Conference, the legislative issues that affect people living with MS in the United States, and the importance of MS advocacy. We have a lot to talk about! Are you ready for RealTalk MS?!

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]

Phone: (310) 526-2283

___________

LINKSIf your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

National Multiple Sclerosis Society: Advocate For Change

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RealTalk MS Episode 78 Hosted By: Jon Strum Guest: Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, RealTalkMS