Today -- and every day this week -- the RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management.   In today's podcast, you'll hear from a renowned progressive MS researcher who is leading an international team of experts in a 3-year research study. You'll also hear from a trio of rehabilitation experts as they discuss some of the challenges they currently face in MS rehabilitation. And we're breaking down the sessions and presentations that will be taking place throughout the day.   We have a lot to talk about! And we're talking about it live from the International Progressive MS Alliance Scientific Congress in Toronto, Canada. So...are you ready for RealTalk MS?

The RealTalk MS podcast is coming to you from Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of the event is Making a Difference Through Rehabilitation & Symptom Management.

You'll hear from a renowned progressive MS researcher who is leading an international team of experts in a 3-year research study. And we're talking to a trio of rehabilitation experts as they discuss some of the challenges they currently face in MS rehabilitation.

Today -- and every day this week -- the RealTalk MS podcast is coming to you live from the Sheraton Centre Toronto Hotel in Toronto, Canada, where, tomorrow, the International Progressive MS Alliance kicks off its 3rd Scientific Congress. The theme of the event is Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management, and on today's podcast episode, we're previewing some of what the attendees will be seeing and hearing.      We're also talking about several MS rehabilitation research studies that examine mindfulness meditation and well-being, virtual reality as an effective tool for gait & balance rehabilitation, and how a history of depression might stop people with MS from doing physical exercise. We'll also tell you how you can use social media to share your ideas about next-generation mobility devices.   We have a lot to talk about. And we're talking about it live from the International Progressive MS Alliance Scientific Congress on MS Rehabilitation & Symptom Management, at the Sheraton Centre Hotel in Toronto, Canada.   ____________

FDA Files Suit Against 2 Stem Cell Clinics  1:03

Mindfulness Meditation Creates Short-Term Well Being for People Living with MS  3:32

Virtual Reality as Effective as Traditional Rehabilitation for Gait & Balance in MS  5:03

Depression as a Barrier to Physical Exercise for People Living with MS  6:55

#MyMobilityUnlimited Is the Hashtag that Lets You Help Design the Future of Mobility Devices  9:34

International Progressive MS Alliance Scientific Congress: Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management  11:24

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LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com

Mindfulness Meditation Improves Short-Term Well Being in MS

Virtual Reality Effective in Treating Gait & Balance Impairment in MS

Lower Aerobic Endurance Linked to History of Depression in MS

#MyMobilityUnlimited Seeks Ideas From Wheelchair Users

The International Progressive MS Alliance

The RealTalk MS Podcast Alexa Skill

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 33 Hosted By: Jon Strum

Tags: MS, MultipleSclerosis, Mindfulness, Depression, MyMobilityUnlimited, MSRehabilitation,  Rehabilitation, AllianceCongress2018, RealTalkMS

The RealTalk MS podcast is live from the Sheraton Centre Toronto Hotel in Toronto, Canada, where, tomorrow, the International Progressive MS Alliance kicks off its 3rd Scientific Congress. The theme of the event is "Progressive MS -- Making a Difference Through Rehabilitation & Symptom Management," and on today's podcast episode, we're going to preview some of what the attendees will be seeing and hearing.

Living your best life while you're living with MS means learning how to manage and overcome the physical and psychological limitations that MS tries to impose. This week's guest, Dr. Kathleen Zackowski, Senior Director of Patient Management, Care, and Rehabilitation Research for the National MS Society, takes us on a deep dive into MS rehabilitation & symptom management.       We're also talking about the FDA approval of Gilenya for treating Pediatric MS, President Donald Trump's announced "blueprint to lower (prescription) drug prices," and next week's International Progressive MS Alliance Scientific Congress on Rehabilitation & Symptom Management.   And...we're announcing some very special podcast episodes coming your way next week!!   We have a lot to talk about! Are you ready for RealTalk MS? ____________

The RealTalk MS Podcast & Alexa  1:35

FDA Approves Gilenya For Pediatric MS  3:13

President Trump Announces His Prescription Drug Strategy  4:30

MS Rehabilitation & Symptom Management  6:37

International Progressive MS Alliance Scientific Congress  9:35

Special Upcoming Podcast Episodes  10:32

Interview with Dr. Kathleen Zackowski  11:21

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LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com

The RealTalk MS Podcast Alexa Skill

FDA Approves Gilenya for Pediatric MS

The International Progressive MS Alliance

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 32 Guest: Dr. Kathleen Zackowski Hosted By: Jon Strum

Tags: MS, multipleSclerosis, Alexa, Gilenya, MSRehabilitation,  Rehabilitation, AllianceCongress2018, RealTalkMS

Living your best life while you're living with MS means learning how to manage, overcome, and work around the physical and psychological limitations that MS tries to impose. My guest this week, Dr. Kathleen Zackowski, the Senior Director of Patient Management, Care, & Rehabilitation Research for the National Multiple Sclerosis Society, takes us on a deep dive into MS rehabilitation & symptom management.

In 2004, the average wholesale price of available MS disease-modifying therapies was $16,000. In 2013, the average price was $61,000; last year, the average price was more than $83,000. That's why my guest this week is David Mitchell, founder and president of Patients for Affordable Drugs.     We're also talking about the RealTalk MS Podcast Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS! (And if you don't yet have an Alexa-enabled device, this might be one more reason to get one!)   A new study concludes that Autologous Haematopoietic Stem Cell Therapy is safe and effective in treating 'aggressive' MS. Another pilot study demonstrates that aspirin can help prevent the onset of overheating and exhaustion following exercise. And your future appointments with your neurologist just may take place from the comfort of your own home.   We have a lot to talk about! Are you ready for RealTalk MS? ____________

Our Alexa Announcement  :27

Study Shows Autologous Hematopoietic Stem Cell Therapy Safe & Effective In Treating "Aggressive" MS  4:40

Overheating When You Exercise? Study Recommends Taking 2 Aspirin  8:06

How About Having Your Next Appointment With Your Neurologist At Home?  10:15

Interview with David Mitchell  13:00

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LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com

The RealTalk MS Podcast Alexa Skill

STUDY: Autologous Haematopoietic Stem Cell Transplantation in Treatment Naive Patients with 'Aggressive' Multiple Sclerosis

STUDY: A Randomized Controlled Pilot Trial of Aspirin to Improve Exercise Performance in Persons with Multiple Sclerosis

SURVEY: Telemedicine Reduces Barriers to Care for Patients with Multiple Sclerosis and Neruoinflammation

Patients For Affordable Drugs

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 31 Guest: David Mitchell Hosted By: Jon Strum

Tags: MS, multiple sclerosis, Alexa, David Mitchell, Patients for Affordable Drugs, aHSTC, Stem Cells, Telemedicine, RealTalk MS

In 2004, the average wholesale price of available MS disease-modifying therapies was $16,000. In 2013, the average price was $61,000; last year, the average price was more than $83,000. That's why my guest this week is David Mitchell, founder & president of Patients for Affordable Drugs. 

We're also talking about a new stem cell therapy study, a new way to avoid overheating when you exercise, and using telemedicine for managing MS. And we are incredibly excited about the new RealTalk MS Alexa skill!

We have a lot to talk about in this podcast episode! First, a big announcement...the RealTalk MS Podcast has its own Amazon Alexa Skill! If you already own an Amazon Echo, Dot, or any Alexa-enabled device, you can access all sorts of convenient features for listening to RealTalk MS! (And if you don't yet have an Alexa-enabled device, this might be one more reason to get one!)     My guest on the podcast is Dr. Matthew Miles, the CEO of MS Research Australia, the largest non-profit organization dedicated to funding, coordinating, and advocating for MS research in Australia. We're talking with Matthew about some of the amazing research collaborations that MS Research Australia is driving in Australia and around the world.  (NOTE: During our conversation, Dr. Miles references the MS Research Australia website as "www.msra.org". The correct website is www.msra.org.au. Sorry for the confusion!)   We're also talking about the results of MS research studies that were announced at the just concluded American Academy of Neurology Annual Meeting. These are studies that you need to know about! ____________

The Alexa Announcement  2:22

Introducing Matthew Miles & MS Research Australia  5:48

Study Shows MS Progresses Faster in African-Americans  6:46

Gilenya Shown To Be Effective in Delaying MS Progression & Disease Activity in Pediatric MS  8:00

MS Disease-Modifying Drugs May Lose Effectiveness As You Age 9:46

Interview with Dr. Matthew Miles 11:20

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LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com

The RealTalk MS Podcast Alexa Skill

STUDY: MS Progresses Faster in African-Americans

STUDY: Gilenya Effective in Delaying MS Progression & Disease Activity in Pediatric MS Patients

MS Disease-Modifying Therapies May Be Less Effective As You Age

MS Research Australia

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 30 Guest: Dr. Matthew Miles Hosted By: Jon Strum

Tags: MS, multiple sclerosis, Alexa, Matthew Miles, MS Research Australia, AAN, Gilenya

Dr. Matthew Miles is the CEO of MS Research Australia, the largest non-profit organization dedicated to funding, coordinating, and advocating for MS research in Australia. We're talking with Matthew about some of the amazing research that MS Research Australia is driving in Australia and around the world.

We're also talking about the results of new MS research studies that were announced at the just concluded American Academy of Neurology Annual Meeting. These are studies that you need to know about!