My Breast My Health

S2 Ep30: Living with secondary breast cancer and being a patient advocate - Jo Taylor


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Jo was diagnosed with primary breast cancer at the age of 38 years, 14 years ago. At the time, she had a 5-month daughter, a 2-year-old son, and her life was turned upside down.

Since her primary diagnosis, she has been diagnosed with secondary breast cancer affecting her lymph nodes in her neck, her sternum, and recently brain metastasis.

Throughout the years, Jo has been a passionate advocate for those affected by breast cancer, whether primary or secondary breast cancer. She collected resources that lead her to create her website abcdiagnosis where she provides information and resources that are accessible.

Whilst attending a conference about secondary breast cancer, she noticed that information about the red flag symptoms that may represent secondary/metastatic breast cancer was not readily shared with patients. As a result, she created infographics about the common sites where breast cancer may spread too.

She is also a co-founder of the secondary breast cancer website metupuk.org which advocates for patients with secondary breast cancer.

Jo has done all of this work whilst having to deal with her own primary and secondary breast cancer diagnosis.

It was a fantastic conversation, and listening to Jo's story was inspirational.

If you want to check out all the links, please head over to the show notes at:

https://mybreastmyhealth.com/episode30.

Do connect with me on Instagram @DrTashaG. Let me know what you think about the show, who you want me to invite on and topics you would like me to talk about. It'd be great to connect.

Happy listening!

Tasha x

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My Breast My HealthBy Dr Tasha Gandamihardja

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