S4E25: **BIPOC Series** "Unprecedented Doesn't Mean Impossible" (w/ Cynthia Adinig)

How you can reach Cynthia:

Email: [email protected]

IG: @cynthiaadinig

Website: https://www.bipocequityagency.com/

Book: DEI Delusion: https://a.co/d/97VULjY

Keywords: Long COVID, advocacy, healthcare, legislation, domestic violence, patient engagement, AI in healthcare, community support, systemic barriers, research innovations, patient-centered research, diversity equity inclusion, AI in healthcare, advocacy, healthcare equity, chronic illness, Long COVID, patient support, healthcare reform, institutional accountability, BIPOC

Summary: In this episode of Long Covid Real Talk, Katherine Marie interviews Cynthia Adinig, a prominent advocate for Long COVID patients. Cynthia shares her personal journey from being denied care to becoming a leading voice in legislative advocacy. She discusses the systemic barriers faced by patients, the importance of community support, and her innovative work using AI to improve healthcare outcomes. Cynthia also opens up about her personal struggles, including domestic violence and the challenges of navigating the healthcare system. In this conversation, Cynthia Adinig discusses her innovative approach to creating a patient-centered research framework that emphasizes diversity, equity, and inclusion without explicitly using those terms. She shares her strategies for stealthily implementing these frameworks in institutions, the development of tools to assess institutional equity, and the integration of AI in groundbreaking research. Cynthia also highlights her commitment to patient advocacy, accountability in healthcare, and her dedication to supporting patients in need, emphasizing the importance of accessibility and the refusal to let financial barriers hinder patient care.

Takeaways:

• ​Cynthia's advocacy began after being denied care in 2020.
• ​Cynthia has faced significant personal challenges while advocating.
• ​The healthcare system often fails patients with chronic conditions.
• ​AI can play a crucial role in advancing Long COVID research.
• ​Community support is vital for those facing chronic illness.
• ​Hope and resilience are essential in the fight for change.
• ​Cynthia is developing tools to assess institutional equity.
• ​Advocacy for patients is a core part of Cynthia's mission.
• ​Cynthia emphasizes the importance of accessibility in healthcare.
• ​She refuses to let financial barriers prevent patient support.
• ​She is committed to helping patients navigate the healthcare system.

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