S5E5: "Getting The 'Proper Diagnosis'" (w/ Lesley)

Keywords: Long COVID, health struggles, personal story, disability, mental health, coping strategies, diagnosis, support, advocacy, chronic illness

Summary: In this episode of Long Covid Real Talk, Katherine Marie speaks with Lesley, who shares her personal journey with Long COVID. Lesley discusses her active life before the illness, the onset of COVID-19, and the challenges she faced in navigating work and health care systems. She highlights the struggles of getting a proper diagnosis, the journey to obtaining long-term disability, and the various health complications she has encountered. Lesley also offers advice on coping strategies and reflects on the impact of Long COVID on her friendships and support systems.

Takeaways

• Lesley was very active before Long COVID.
• The onset of COVID-19 was unexpected and severe.
• Navigating work while dealing with Long COVID was challenging.
• Getting a proper diagnosis took a long time.
• Long-term disability was a difficult journey.
• Health complications from Long COVID are varied and serious.
• Support from friends and family is crucial but can be complicated.
• Coping strategies include pacing and seeking help when needed.
• Lesley emphasizes the importance of advocacy for those with Long COVID.
• Friendships can change significantly due to health issues.

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