Seizing Life

On this episode of Seizing Life, Lissy recounts her daughter’s onset, diagnosis and ACTH steroid treatment for infantile spasms. She also explains why early detection and treatment are so important, where to find infantile spasms support groups, and how awareness and education among parents, caregivers, and doctors can result in positive outcomes for infants with I.S.

Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.

On this week’s Seizing Life, epilepsy patient, counselor, and author Jon Sadler discusses his 50-year journey living with epilepsy. Jon’s experiences reflect many of the challenges and concerns of people with epilepsy including stigma, employment, family, dealing with changing treatments and side-effects, and undergoing life-changing brain surgery.

After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.

n August of 2020, Geoff Applegate lost his fiancé Zsatara to SUDEP just weeks before the couple was to be married. Geoff shares his ongoing journey through the grieving process including what he has personally found helpful, what he’s learned about helping his son cope with the loss, and how he keeps Zsatara’s memory alive by raising awareness about SUDEP.

When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on epilepsy and seizure safety.

When a recurring eye twitch led to a diagnosis of epilepsy, Paul St. Pierre found himself trying to gain seizure control while managing medication side effects and trying to maintain his grades. With the help of their state senator, they gathered support for a bill to ensure epilepsy education and seizure safety in all New Jersey schools.

Lauren Panco was in the prime of her life, building a career with a fast-growing company, and moving toward a promising future when she was suddenly struck with seizures.

Lauren Panco was 26 years old, in the midst of a promising career with a fast-growing company, engaged to be married, and enjoying a busy professional and social lifestyle when she suddenly suffered a seizure. On this week’s Seizing Life®, Lauren, now 32, discusses the disturbing initial diagnosis she received, her concerns about the impact of epilepsy on her career, and how she has navigated workplace challenges with a determination not to allow epilepsy to define her.