I have spent so much time over the past year thinking about you. Trying to figure out what it is that I can do to provide more support and more value to you.

So, what can I do to help you? I kept coming back to that question. How can I do more to help you? What can I create to improve your life?

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Once you have a chronic illness, every single day you face multiple things that remind you that you are not a "normal" or "healthy" person.

Sometimes it's the medication you have to take. It could be the supplements you have found help your body function. It might be how much planning you have to do just to get through your day, or the things you don't even try to do because you know what it will cost you. Join the Email List: https://teamvasculitis.com/team-vasculitis-email

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You might be missing what is actually going on with your body because you're so used to it that you may be experiencing sensations that you aren't registering or conversely, you might be thinking you are experiencing sensations that you actually are NOT feeling.

This episode breaks down how you can prevent this issue!

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Meet August!

This amazing human spends so much of his time spreading not only awareness for the Trans, Asian, and Disabled communities but joy and light too. He has Behcet's Disease and as a Vasculitis warrior he supports others through their process.

Connect with August: https://www.instagram.com/withlove_august/ https://www.tiktok.com/@withloveaugust

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Today we dig into the struggles that all chronically ill people have to face with their mental health. With or without a diagnosis, you face a life change that many around you won't ever understand. You can't meet cultural standards of productivity. You can't show up as a loved one the way you used to. You may not even be able to do any of the things that you used to, and so you face an identity crisis on top of everything else.

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When you're struggling to find balance, we often look to all of the different ways you can help your body heal. The messages of how exercise can help are prevalent... for healthy people. The question is, how safe and healthy is exercise for someone with Vasculitis?

Listen to get all the must have information!

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Take note of your after visit summaries and your office visit notes. I go into great detail in this episode about my own case because I want to illustrate on how many levels doctors can get your information wrong. I know how difficult it can be when you have serious issues going on to also keep up with these kinds of things.

For all the details listen to today's episode streaming anywhere you listen to podcasts. Link is in bio! If reading is more comfortable for you, check out the blog on teamvasculitis.com. Link in bio for that as well!

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Doctors appointments are overwhelming. You have so many questions, and only one small chance to get them answered. If you prepare ahead of time, you an set up a system that makes sure you your doctor is ready with answers for you, and you are ready to hear them.

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The challenge we have to overcome is that we have spent our entire lives, especially if you live in the United States, being told to do more, be more, aspire to more.

Then… you get sick, and you can barely do anything. Depending on where you are in your journey, you may not be able to do much of anything and that's where our new education on the dark side of hustle culture starts.

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WE AS A COMMUNITY should have a voice so the things we need are researched and that's where groups like the Vasculitis Foundation could increase how they support us exponentially by INCLUDING us.

Your thoughts. Your journey. We, as a community, need to know your truth. No matter how THEY see it. From onset due to vaccination. To sexism and ableism from our medical staff. To medical gaslighting and on and on. I have stories, and many of you have shared stories with me, that your medical staff have treated you with ableist bias and dismissiveness AND THEN grandstand on the fact that because they are medical staff they can't be ableist.

WHAT!?

So my fellow patient - participate here. TOGETHER we have power and we will make a difference. Right now, we're just getting started but I have BIG plans.

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