Team Vasculitis: Thriving through Life with Chronic Illness

As you sit in your home, exhausted, struggling with brain fog, in pain and so much more, social media is often a window into the rest of the world. It is a lifeline to the friends who understand, who are often also at home struggling with the war inside their bodies. There is so much GOOD that has come, and can continue to come from social media.

The trouble becomes that we can struggle to discern reality from the highlight reel that social media is. If you struggle with wanting to feel connected, but also feeling drained by social media, you are NOT alone!

Today's episode gives you clear and actionable ways to manage social media burn out.

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

When you leave your medical appointments you should feel seen, heard, supported... and maybe even a little bit hopeful. If you DO NOT feel this way, it's time to start buliding a different medical team.

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Let's be clear - you have MANY freedoms in your chronic illness journey.

Today we look at several and encourage you to take control of your life!

YOU HAVE THE POWER TO CHOOSE!!!!

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Gall Bladder Info: https://www.gallbladderdiet.com/gallbladder-removal-side-effects/

https://www.instagram.com/gallbladder.nutritionist

CDC - https://www.cdc.gov/healthyschools/chronicconditions.htm

Raw Milk - https://www.nourishwithkristin.com/blog/raw-vs-pasteurized

Grass Fed Beef - https://wellnessmama.com/health/grass-fed-beef/

https://www.instagram.com/p/CuQG-JiuNJ_/?igshid=MzRlODBiNWFlZA==

Dr. Whitney Donahue https://www.drwhitneydonohue.com/

https://www.instagram.com/drwhitneydonohuend

Endocrine Disruptors: https://www.endocrine.org/topics/edc/what-edcs-are/common-edcs

Banned in other countries: https://foodrevolution.org/blog/banned-ingredients-in-other-countries/

https://marketrealist.com/food-industry/us-foods-banned-other-countries/

Alt Milk

https://www.yahoo.com/entertainment/non-dairy-milks-healthier-thats-175400639.html

https://www.sheknows.com/health-and-wellness/articles/1117683/alternative-milks/

Follow the money https://www.science.org/content/article/hidden-conflicts-pharma-payments-fda-advisers-after-drug-approvals-spark-ethical

Your disease can affect everything in your life. Not just what you can do physically, but your time and your emotional limitations as well. So it is absolutely going to impact your parenting. Parenting is the most all encompassing thing you can do in your life, also affecting everything.

When was the last time you thought to yourself - maybe I'm a bad parent because of the limitations of my disease? Or maybe it was more, "My kids deserve a better parent, a more involved parent, a parent who can do more with them."

If you're an overhwlemed parent, or a someone contemplating pregnancy and parenthood and you're dealing with a chronic illness - TODAY'S EPISODE IS FOR YOU!

Follow Allie: https://www.instagram.com/disability_dame/ Follow Bethany Hamilton: https://www.instagram.com/bethanyhamilton/ Dr. Dan Siegel: https://drdansiegel.com/ The Whole Brained Child Book: https://a.co/d/2lya80t Joe Newman: https://www.raisinglions.com/ Raising Lions Book: https://a.co/d/9w18yKI Emotional Intellegence and Success: https://www.forbes.com/sites/forbescoachescouncil/2017/11/07/the-little-known-relationship-between-emotional-intelligence-and-success/

Follow Morgan Burke: https://www.instagram.com/morganburkewrites/ The Adoption Process: https://rumble.com/v17o73x-the-adoption-process-morgan-burke.html

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

6+ months wait is unacceptable.

The issue is that by the very nature of having a chronic illness, your body and your life is unpredictable. Even if your appointment is a follow up or continuing care with a medical provider, it can be difficult to make sure you make it to these appointments. Throw in the pandemic and the post pandemic challenges and it's even more difficult to make it. Have a cough, don't come to the office. Have a fever, don't come to the office… you get it. So as you're struggling and you really REALLY need to see this specialist, you have even more barriers to entry than many other people.

The challenge is that not making it to these appointments can have major consequences on your health and even your long term quality of life, but in our broken health care system you miss this appointment and you may not be able to get back in for 6 months or longer.

They have a DUTY to provide care for you. Either your established doctor or your referring doctor. When these delays happen - there are ways to get support until you can be seen.

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Boundaries are VITAL for your mental, emotional and physical health - chronic illness or not. Today I dive into why you need boundaries and easy ways to implement them.

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Meet Chantel!

After realizing that she was holding herself back from things she wanted, she decided to take action and learn how to take control of her money and her life. In today's interview she gets vulnerable AND shares some amazing insights as to how to get started and ways to maximize your financial potential.

Links: www.chantelcoaches.com www.instagram.com/chantel.laughlin Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

You aren't going to want to miss this episode! Holly is a cancer survivor AND auto immune warrior who spent most of her life as a top tier over achiever and has had to learn to thrive through life no matter how much it throws at you... and through that process she discovered the power to take control of her life and her happiness!

Here's where you can find Holly:

Website: https://academy.pinkfortitude.com/podcast-landing-welcome

Podcast: https://academy.pinkfortitude.com/blog

Podcast Episode mentioned - It's Ok to NOT Be Ok. Or is it? https://academy.pinkfortitude.com/blog/episode-39

Instagram: https://www.instagram.com/holly.bertone/

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

I know the pain of realizing people you believed were part of your inner circle separating themselves from you. They don't want to see what you share online. The reality of what you're going through makes them feel a certain way.

Some people won't want to see or hear it. Some people will walk away. Some people will unfriend and unfollow… and it sucks and it hurts… and, it's also okay.

Episode 179 - They Won't Understand and You Need to be Okay with That https://fightlikeamama.libsyn.com/untitled-16

Episode 56 - The Power of Vulnerability https://fightlikeamama.libsyn.com/ep-56-the-power-of-vulnerability

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email

A breakdown of what Giant Cell Arteritis (GCA) and what you need to know as a patient as well as insight from patients on life with GCA. Here's what you'll find in this episode: What is Giant Cell Arteritis (GCA)? Who gets Giant Cell Arteritis? What Causes Giant Cell Arteritis? What are the Symptoms of Giant Cell Arteritis? How is Giant Cell Arteritis Diagnosed? How is Giant Cell Arteritis Treated? What are the Complications of Giant Cell Arteritis? Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources:

https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758

https://www.hopkinsvasculitis.org/types-vasculitis/giant-cell-arteritis/

https://www.arthritis.org/diseases/giant-cell-arteritis