Team Vasculitis: Thriving through Life with Chronic Illness

A breakdown of what Behcet's Disease and what you need to know as a patient as well as insight from patients on life with Behcet's. Here's what you'll find in this episode:

• What is Behcet's?
• What are the classic symptoms of Behcet's?
• How is Behcet's Diagnosed?
• What Causes Behcet's?
• Who gets Behcet's?
• How is Behcet's Treated?
• Side Effects from Medications
• Life with Vasculitis
• Patient to Patient

Cat's Episode: https://fightlikeamama.libsyn.com/ep-118-vasculitis-interview-with-behcets-disease-warrior-with-cat-ray

Cat's Podcast: https://risingfromtheillness.libsyn.com/

Cat on Instagram: https://www.instagram.com/risingfromtheillness/

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Sources:

https://www.mayoclinic.org/diseases-conditions/behcets-disease/symptoms-causes/syc-20351326

https://www.hopkinsvasculitis.org/types-vasculitis/behcets-disease/

https://rarediseases.info.nih.gov/diseases/848/behet-disease

A breakdown of what Cutaneous Small-Vessel Vasculitis (CSVV) and what you need to know as a patient as well as insight from patients on life with CSVV. Here's what you'll find in this episode:

• What is Cutaneous Small-Vessel Vasculitis?
• History of Cutaneous Small-Vessel Vasculitis?
• What are the symptoms and signs of Cutaneous Small-Vessel Vasculitis?
• How is CSVV Diagnosed?
• How is CSVV treated?
• Who gets CSVV?
• Life with Vasculitis
• Patient to Patient

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Sources:

https://dermnetnz.org/topics/cutaneous-small-vessel-vasculitis

https://www.merckmanuals.com/professional/musculoskeletal-and-connective-tissue-disorders/vasculitis/cutaneous-vasculitis

https://www.ncbi.nlm.nih.gov/books/NBK482159/

A breakdown of what Eosinophilic Granulomatosis with Polyangiitis is and what you need to know as a patient as well as insight from patients on life with EGPA. Here's what you'll find in this episode:

• What is EGPA?
• What are the symptoms of EGPA?
• Complications from EGPA
• How is EGPA Diagnosed?
• How is EGPA treated?
• Side effects from the medications
• Can EGPA come back?
• Life with Vasculitis
• Patient to Patient

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Sources:

https://www.mayoclinic.org/diseases-conditions/churg-strauss-syndrome/symptoms-causes/syc-20353760

https://rarediseases.info.nih.gov/diseases/6111/eosinophilic-granulomatosis-with-polyangiitis

https://my.clevelandclinic.org/health/diseases/7098--eosinophilic-granulomatosis-with-polyangiitis-egpa-formerly-churg-strauss-syndrome

A breakdown of what Cryoglobulinemia and what you need to know as a patient as well as insight from patients on life with Cryoglobulinemia. Here's what you'll find in this episode:

• What is Cryoglobulinemia?
• What are the symptoms of Cryoglobulinemia
• What Causes Cryoglobulinemia?
• How is Cryoglobulinemia treated?
• Life with Vasculitis
• Patient to Patient

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Sources:

https://www.hopkinsvasculitis.org/types-vasculitis/cryoglobulinemia/

https://www.uptodate.com/contents/overview-of-cryoglobulins-and-cryoglobulinemia

https://ashpublications.org/blood/article/129/3/289/36030/How-I-treat-cryoglobulinemia

https://www.mayoclinic.org/diseases-conditions/cryoglobulinemia/symptoms-causes/syc-20371244

It can be so easy to want to just go all in with a new friend who "gets it" when for so long you have felt alone in your rare disease or chronic illness journey. Today I talk about why you need to avoid the "too close too soon" trap and how to do that!

You can find Team Vasculitis at: http://www.teamvasculitis.com

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Meet Lauren! A Vasculitis warrior who has managed her career at a large corporation, with two daughters, under the age of 5 at the time of diagnosis, AND a rare disease that caused permanent damage to organs as she sought answers.

Watch her talk here: https://rumble.com/v2nz4m8-navigating-a-career-and-motherhood-with-a-chronic-illness.html

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Today's episode is a special one! Today for the 2nd Annual Team Vasculitis International Vasculitis Awareness Day Symposium Kayla shares with you her journey with Vasculitis, POTS, Fibromyalgia and more... and not only how fitness helps her every day, but how it actually takes much of her pain away.

Follow Kayla at: https://www.instagram.com/autoimmune_fitwarriorsoul

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

A breakdown of what Cogan's Syndrome and what you need to know as a patient as well as insight from patients on life with Cogan's. Here's what you'll find in this episode:

• What is Cogan's Syndrome?
• Who gets Cogan's Syndrome?
• What are the symptoms of Cogan's Syndrome?
• How is Cogan's SyndromeDiagnosed?
• How is Cogan's Syndrome treated?
• Side Effects from Medication
• Life with Vasculitis
• Patient to Patient

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Sources:

https://rarediseases.info.nih.gov/diseases/1421/cogans-syndrome

https://www.health.harvard.edu/a_to_z/cogans-syndrome-a-to-z

https://mayoclinic.pure.elsevier.com/en/publications/cogans-syndrome-an-audiovestibular-ocular-and-systemic-autoimmune

A breakdown of what Aortitis and what you need to know as a patient as well as insight from patients on life with Aortitis.

Here's what you'll find in this episode:

• What is Aortitis?
• What causes Aortitis?
• Who gets Aortitis?
• What are the symptoms?
• How is Aortitis Diagnosed?
• How is Aortitis treated?
• Side Effects from Medications
• Your Medical Team
• Life with Vasculitis
• Patient to Patient

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email

Sources:

https://my.clevelandclinic.org/health/diseases/24264-aortitis

https://www.cedars-sinai.org/health-library/diseases-and-conditions/i/inflammatory-aortic-disease-aortitis.html

https://www.merckmanuals.com/professional/cardiovascular-disorders/diseases-of-the-aorta-and-its-branches/aortitis

Meet Lucy!

After fighting for anyone to take her seriously, because she was "too young" to be sick, Lucy had to learn how to manage life with Takaysau's Arteritis, being a young mom, and advocating for herself. Now, she uses one of her strongest tools - nutrition - to help others live healthier lives.

Read her blog post on the Anti-Inflammatory Diet here

Follow Lucy: Instagram @_heal_thy_self__ Facebook at Heal THY self Nutrition Email: [email protected]

Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness!

Join us on Instagram: https://www.instagram.com/teamvasculitis

Join the Email List: https://teamvasculitis.com/team-vasculitis-email