EPISODE TITLE: Winning the Fight Against ALS - Part 2

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb continue to talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago. 

In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss:

Introduction and Purpose of the Podcast 0:01

Pete Levine's Absence and Podcast Continuation 1:46

Discussion on ALS Diagnosis and Neurofibrillary Tangles 3:01

Dr. Tedone explains that it takes at least two years for a definitive ALS diagnosis due to reluctance from the medical profession.

Neurofibrillary tangles are found in the cerebral spinal fluid, indicating cellular energy deficiencies.

Gene mutations are linked to abnormal protein formation, which can cause cancer.

Dr. Tedone argues that infections, not gene mutations, may be the root cause of cancer.

Borrelia Infection and Its Impact on Health 6:05

Dr. Tedone discusses the role of Borrelia infection in various diseases, including arthritis, rheumatoid arthritis, psoriatic arthritis, lupus, and cancer.

Cortisone suppresses inflammation but does not address the underlying infection, leading to disease progression.

Treatment for Borrelia includes opening cysts with metronidazole, using oregano oil or artemisinin to open biofilms, and administering antibiotics.

The treatment protocol involves alternating antibiotics every three months to prevent resistance.

Testing for Borrelia Infection and Case Studies 10:01

Dr. Tedone mentions the Accu Dart infectious disease test and the need for provocative tests before serology tests.

Dr. Tedone shares two case studies: one where a patient's worsening condition was linked to his wife's co-infections, and another where an emergency room doctor's wife's condition was attributed to Borrelia.

The discussion highlights the importance of consistent treatment and the challenges of finding accurate tests for Borrelia.

Deanna's Protocol and Its Benefits 18:54

Dr. Tedone and Deanna discuss the Deanna Protocol, which includes caprylic acid and coenzyme Q10, and its benefits in maintaining mental acuity and energy.

Dr. Tedone shares personal experiences of using the Deanna Protocol and its positive effects on his and his wife's health.

The protocol is designed to support nerve cell communication and improve cognitive function.

Dr. Tedone emphasizes the importance of consistency in following the protocol for effective results.

Advice for Newly Diagnosed Patients 20:31

Doro asks Deanna for advice for newly diagnosed patients.

Deanna advises maintaining a regimented medication regimen and surrounding oneself with supportive, informed individuals.

The importance of challenging oneself and maintaining a positive attitude is highlighted.

Dr. Tedone shares a quote from his book, emphasizing the importance of persistence and continuous learning.

Challenges and Research in ALS Treatment 33:15

Dr. Tedone discusses the challenges of conducting research and the need for clinical feedback to guide research efforts.

The Deanna Protocol has shown promising results in ALS patients, with an 80% approval rating in a study by USF.

The protocol is compared favorably to dorozolamide, which blocks glutamate, in terms of symptom management and disease progression.

The discussion includes the need for better tests and the importance of funding for research.

Funding and Support for Research 42:28

Deanna mentions the challenges of funding and the importance of donating to organizations that directly support research.

The Winning the Fight Foundation is highlighted as a reliable organization for donations, with 99% of funds going directly to research.

The foundation is a 501(c)(3) organization, making donations fully tax-deductible.

Doro encourages listeners to visit the foundation's website for more information and to support the research efforts.

Conclusion and Final Thoughts 48:33

Deb thanks the guests for sharing their stories and research, emphasizing the importance of spreading awareness.

Dr. Tedone and Deanna express their gratitude for the opportunity to share their experiences and research findings.

The episode concludes with a call to action for listeners to share the podcast with others who may benefit from the information.

Contact information for the podcast and the foundation is provided for further inquiries and support.

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

THERAPY PRACTICE RESOURCES:

DEB’S RESOURCES

PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

EPISODE TITLE: Winning the Fight Against ALS-Part 1 (with Deanna Tedone and Dr. Vincent Tedone) 

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago. 

In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss:

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

THERAPY PRACTICE RESOURCES:

DEB’S RESOURCES

PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

EPISODE TITLE: ALS: The Classic Medical Perspective

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease. We covered:

      ALS.org

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

THERAPY PRACTICE RESOURCES:

DEB’S RESOURCES

PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

✨Google Podcasts  ✨iTunes    ✨Spotify

EPISODE TITLE: A Battle In The Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb and Doro talk with D’Youville University students Christin Chan and Sophie Turner about the psychosocial impact of stroke and brain injury. We covered:

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

Show References

Faircloth, C. A., Boylstein, C., Rittman, M., & Gubrium, J. F. (2005). Constructing the stroke: Sudden-onset narratives of stroke survivors. Qualitative Health Research, 15(7), 928. doi:10.1177/1049732305277842

Goldfinger, J. Z., edmondson, D., kronish, I. M., fei, K., balakrishnan, R., tuhrim, S., & horowitz, C. R. (2014). Correlates of post-traumatic stress disorder in stroke survivors. The official journal of stroke and cerebrovascular diseases : The official journal of national stroke association, 23(5), 1099–1105. https://Doi.org/10.1016/j.jstrokecerebrovasdis.2013.09.019.

Howlett, J. R., Nelson, L. D., & Stein, M. B. (2022). Mental health consequences of traumatic brain injury. Biological Psychiatry, 91(5), 413–420. https://doi.org/10.1016/j.biopsych.2021.09.024

Kumar, R., Kumar, A., & Singh, A. (2019). Psychosocial impact of Brain Injury: A Review. Indian Journal of Neurosurgery, 08(01), 011–015. https://doi.org/10.1055/s-0039-1687713

Raya-Ruiz, M. A., Rodríguez-Bailón, M., Castaño-Monsalve, B., Vidaña-Moya, L., Fernández-Solano, A. J., & Merchán-Baeza, J. A. (2022). Study protocol for a non-randomised controlled trial: Community-based occupational therapy intervention on mental health for people with acquired brain injury (COT-MHABI). Plos One, 17(10) doi:10.1371/journal.pone.0274193

Ritter, J., Dawson, J., & Singh, R. K. (2021). Functional recovery after brain injury: Independent predictors of psychosocial outcome one year after TBI. Clinical Neurology and Neurosurgery, 203, 106561. https://doi.org/10.1016/j.clineuro.2021.106561

Simpson, E. K., Ramirez, N. M., Branstetter, B., Reed, A., & Lines, E. (2018). Occupational therapy practitioners’ perspectives of mental health practices with clients in stroke rehabilitation. OTJR: Occupational Therapy Journal of Research, 38(3), 181. doi:10.1177/1539449218759627

Terrill, A. L., Schwartz, J. K., & Belagaje, S. R. (2018). Best practices for the interdisciplinary rehabilitation team: A review of mental health issues in mild stroke survivors. Stroke Research and Treatment, 2018, 1. doi:10.1155/2018/6187328

Tjokrowijoto, P., Kneebone, I., Baker, C., Andrew, N. E., Stolwyk, R. J., & Stolwyk, J. (2023). Supplemental material for mental health support after stroke: A qualitative exploration of lived experience. Rehabilitation Psychology, doi:10.1037/rep0000527.supp

Wenzel, R. A., Zgoda, E. A., St. Clair, M. C., & Knecht-Sabres, L. J. (2021). A qualitative study investigating stroke survivors’ perceptions of their psychosocial needs being met during rehabilitation. The Open Journal of Occupational Therapy, 9(2), 1. doi:10.15453/2168-6408.1691

Wiart, L., Luauté, J., Stefan, A., Plantier, D., & Hamonet, J. (2016). Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Annals of Physical and Rehabilitation Medicine, 59(1), 31–41. https://doi.org/10.1016/j.rehab.2015.12.001

THERAPY PRACTICE RESOURCES:

DEB’S RESOURCES

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

✨Google Podcasts  ✨iTunes    ✨Spotify

EPISODE TITLE: A Battle on the Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb and Doro talk with D’Youville University students Christin Chan and Sophie Turner  about the psychosocial impact of stroke and brain injury. We covered:

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

Show References

Faircloth, C. A., Boylstein, C., Rittman, M., & Gubrium, J. F. (2005). Constructing the stroke: Sudden-onset narratives of stroke survivors. Qualitative Health Research, 15(7), 928. doi:10.1177/1049732305277842

Goldfinger, J. Z., edmondson, D., kronish, I. M., fei, K., balakrishnan, R., tuhrim, S., & horowitz, C. R. (2014). Correlates of post-traumatic stress disorder in stroke survivors. The official journal of stroke and cerebrovascular diseases : The official journal of national stroke association, 23(5), 1099–1105. https://Doi.org/10.1016/j.jstrokecerebrovasdis.2013.09.019.

Howlett, J. R., Nelson, L. D., & Stein, M. B. (2022). Mental health consequences of traumatic brain injury. Biological Psychiatry, 91(5), 413–420. https://doi.org/10.1016/j.biopsych.2021.09.024

Kumar, R., Kumar, A., & Singh, A. (2019). Psychosocial impact of Brain Injury: A Review. Indian Journal of Neurosurgery, 08(01), 011–015. https://doi.org/10.1055/s-0039-1687713

Raya-Ruiz, M. A., Rodríguez-Bailón, M., Castaño-Monsalve, B., Vidaña-Moya, L., Fernández-Solano, A. J., & Merchán-Baeza, J. A. (2022). Study protocol for a non-randomised controlled trial: Community-based occupational therapy intervention on mental health for people with acquired brain injury (COT-MHABI). Plos One, 17(10) doi:10.1371/journal.pone.0274193

Ritter, J., Dawson, J., & Singh, R. K. (2021). Functional recovery after brain injury: Independent predictors of psychosocial outcome one year after TBI. Clinical Neurology and Neurosurgery, 203, 106561. https://doi.org/10.1016/j.clineuro.2021.106561

Simpson, E. K., Ramirez, N. M., Branstetter, B., Reed, A., & Lines, E. (2018). Occupational therapy practitioners’ perspectives of mental health practices with clients in stroke rehabilitation. OTJR: Occupational Therapy Journal of Research, 38(3), 181. doi:10.1177/1539449218759627

Terrill, A. L., Schwartz, J. K., & Belagaje, S. R. (2018). Best practices for the interdisciplinary rehabilitation team: A review of mental health issues in mild stroke survivors. Stroke Research and Treatment, 2018, 1. doi:10.1155/2018/6187328

Tjokrowijoto, P., Kneebone, I., Baker, C., Andrew, N. E., Stolwyk, R. J., & Stolwyk, J. (2023). Supplemental material for mental health support after stroke: A qualitative exploration of lived experience. Rehabilitation Psychology, doi:10.1037/rep0000527.supp

Wenzel, R. A., Zgoda, E. A., St. Clair, M. C., & Knecht-Sabres, L. J. (2021). A qualitative study investigating stroke survivors’ perceptions of their psychosocial needs being met during rehabilitation. The Open Journal of Occupational Therapy, 9(2), 1. doi:10.15453/2168-6408.1691

Wiart, L., Luauté, J., Stefan, A., Plantier, D., & Hamonet, J. (2016). Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Annals of Physical and Rehabilitation Medicine, 59(1), 31–41. https://doi.org/10.1016/j.rehab.2015.12.001

THERAPY PRACTICE RESOURCES:

DEB’S RESOURCES

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

✨Google Podcasts  ✨iTunes    ✨Spotify

EPISODE TITLE: Harnessing Motivation: Unleashing Recovery Potential

What really drives someone to keep going after a stroke — even when it’s hard?

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb dive deep into the heart of recovery: motivation. Whether you're a survivor, clinician, or care partner, this conversation is packed with insights to help you light (and maintain) that motivational fire. We explore:

If you’ve ever felt stuck, unmotivated, or unsure how to keep yourself or someone you love moving forward, this episode will give you a fresh perspective and real-world strategies.

🎙️ Tune in and let’s turn the recovery spark into a flame.

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

Show References

Research Articles

Argent, R., Daly, A., & Caulfield, B. (2018). Patient Involvement With Home-Based Exercise Programs: Can Connected Health Interventions Influence Adherence?. JMIR mHealth and uHealth, 6(3), e47. https://doi.org/10.2196/mhealth.8518

Driscoll, R., Fitzpatrick, L., Karsten, J., Scott, S., & Winters, E. (2021). Care Partner Carryover Day: A Formalized Training Program to Improve Care Partner Preparedness for Pt’s. with ABI Prior to D/C home. Archives of Physical Medicine and Rehabilitation, 102(10), e52

Ghorbani, S. (2019). Motivational effects of enhancing expectancies and autonomy for motor learning: An examination of the OPTIMAL theory. The Journal of General Psychology, 146(1), 79-92.

Rolls, E.T. (2023). Emotion, motivation, decision-making, the orbitofrontal cortex, anterior cingulate cortex, and the amygdala. Brain Structure and Function, 228, 1201-1257. https://doi.org/10.1007/s00429-023-02644-9

Siegle, F. (2024). The role of synaptic plasticity in learning and memory: A neurophysiological perspective. The Cognitive Neuroscience Journal, (7)4.

Yoshida, T., Otaka, Y., Osu, R., Kumagai, M, Kitamura, S., & Yaeda, J. (2021). Motivation for rehabilitation in patients with subacute stroke: A qualitative study. Frontiers in Rehabilitation, 2:664758. doi: 10.3389/fresc.2021.664758

Assessments:

Heart Rate Variability YouTube Videos:

Scientific Explanation

The Science of Heart Rate Variability (HRV): Health, Wellness & Performance by Dr Cailbhe Doherty

Guided HRV Breathing Exercise

Heart Coherence Breathing Exercise | HRV Resonant Cardiac Breathwork by Take A Deep Breath

Previous Episodes Referenced

Resources Mentioned in This Episode

THERAPY PRACTICE RESOURCES:

DEB’S RESOURCES

PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

✨Google Podcasts  ✨iTunes    ✨Spotify

EPISODE TITLE: Tackling Spasticity Part 2

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about spasticity. We covered:

We hope you enjoyed this episode of Noggins And Neurons and found the information shared helpful. As always, we want to hear from you! Email us at [email protected]

Show References

Almufarah, Kausar, Humayun, & Tehsin (2023). Leveraging motor imagery rehabilitation for individuals with disabilities: A review. Healthcare, 11, 1-17. https://doi.org/10.3390/healthcare11192653. https://www.mdpi.com/journal/healthcare

Bavikatte, Subramanian, Ashford, Allison & Hicklan (2021). Early identification and management of post-stroke spasticity: Expert consensus recommendations. Journal of Central Nervous System Disease, 13, 1-8.

Brusola*, Garcia, Albosta, Daly, Kafes & Furtado (2023). Effectiveness of physical therapy interventions on post-stroke spasticity: An umbrella review.

Guo, Hai & Ma (2022). Application of extracorporeal shockwave therapy in nervous system diseases: A review. Frontiers in Neurology DOI 10.3389/fneur.2022.963849

Guo, Gao, Zhao, Sun, Wang & Li (2017). Positive effects of extracorporeal shock wave therapy on spasticity in post stroke patients: A meta-analysis. Journal of Stroke and Cerebrovascular Diseases, Vol. 26, No. 11 (November), 2017: pp 2470–2476

Li (2017). Spasticity, motor recovery, and neural plasticity after stroke. Frontiers in Neurology, 8, 120; 1-7. doi: 10.3389/fneur.2017.00120.

Martinez, Sempere-Rubio, Navarro & Faubel (2021). Effectiveness of shock wave therapy as a treatment for spasticity: A systematic review. Brain Sciences, 11, 15-18. https://dx.doi.org/10.3390/brainsci11010015.

Poveda-Garcia, Moret-Tatay & Gomez-Martinez (2021). The association between mental motor imagery and real movement in stroke. Healthcare, 9, 1568; 1-11. https://doi.org/10.3390/healthcare9111568

Spasticity: Can Anything Be Done. Blog article by Peter G. Levine

Suputtitada, Chatromyen, Chen & Simpson (2024). Best practice guidelines for the management of patients with post-stroke spasticity: A modified scoping review. Toxins, 16, 98. https://doi.org/10.3390/toxins16020098

THERAPY PRACTICE RESOURCES:

NEW RESOURCES

DEB’S RESOURCES

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

✨Google Podcasts  ✨iTunes    ✨Spotify

EPISODE TITLE: Tackling Spasticity Part 1

 EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about spasticity. We covered:

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

Show References

Crow, J. L. & Harmeling-van der Wel, B. C. (2008). Hierarchical properties of the motor function sections of the Fugl-Meyer Assessment Scale for people after stroke: A retrospective study. Physical Therapy, 88(12): 1554-67. DOI:10.2522/ptj.20070186 Source-PubMed https://www.researchgate.net/publication/23389179

Li, S. (2017). Spasticity, Motor Recovery, and Neural Plasticity after Stroke. Frontiers in Neurology; April 3:8:120.  DOI: 10.3389/fneur.2017.00120

THERAPY PRACTICE RESOURCES:

NEW RESOURCES

DEB’S RESOURCES

PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

                                   ✨Google Podcasts  ✨iTunes    ✨Spotify

NogginsAndNeurons: The Website

EPISODE TITLE: Seeing Clearly Again: Occupational Therapy’s Impact After Mild TBI-Part 2

EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk with returning guest, Suzanne Briggs about vision rehab for individuals who’ve experienced mild TBI. We covered a lot of ground in the second half of our conversation. We discussed:

We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at [email protected]

Show References

THERAPY PRACTICE RESOURCES

DEB’S RESOURCES

PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:

DORO’S OT PRACTICE – The Neuro Hub

REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!

✨Google Podcasts  ✨iTunes    ✨Spotify