Welcome back into the PICKLE JAR....Jill dives back into the pickle jar to answer some questions and highlight some key features of using an INFUSION PUMP to manage her Addison's Disease.
Jill has been using a 'diabetic insulin infusion pump for over 6 years. Instead of insulin, the pump is using SOLU-CORTEF to give Jill a 24-hour CONTINUOUS infusion of hydrocortisone. Developed by Professor Hindmarsh in the UK, he translated the DIABETIC "INSULIN UNIT" language of the pump into mg for use with ADREnAL INSUFFICIENCY.
Jill uses 100 mg vials of solu-cortef in her infusion pump which means she needs to program it at a 2:1 ratio. The pump 'speaks' in INSULIN UNITS so for every mg of hydrocortisone she wants to receive she needs to communicate a 2:1 ratio to the pump. For example, for a 5 mg HC dose, the pump needs to be programmed for 10 IU.
Key features include multiple basal rates (basal meaning the 24-hour pattern of hydrocortisone infusion), bolus function (giving an updose/extra hydrocortisone) and preset programs that can increase/decrease your dose by a desired percentage over the course of the day. Having better control of HC infusion and dramatically eliminating/minimizing spikes in hydrocortisone and minimizing long-term effects.
The pump can be programmed in 30 min and hourly intervals to best mimic the normal adrenal function and is precise to 0.025 mg of HC.
The infusion pump does not detect low blood cortisol levels.
Jill's Pump is a Medtronic 630 G INFUSION PUMP - waterproof, uses a 3 ml reservoir which Jill fills every 2-3 days with SOLU-CORTEF, site change every 2-3 days, and the pump is "WIRED" to Jill through a small subcutaneous needle. Takes 5 minutes to change her pump and although she was very apprehensive about having a device "WIRED" to her body, the pump transition for Jill was extremely easy.
HYDROCORTISONE PUMP THERAPY - PROF. HINDMARSH
https://staging.cahisus.co.uk/wp-content/uploads/2020/12/HYDROCORTISONE-PUMP-THERAPY-LEAFLET.pdf
More questions about the pump. Message Jill at [email protected]
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DISCLAIMER: The information from THE PICKLE JAR represents the experiences of the host Jill Battle and the individual experiences of each guest. No information is intended to provide or replace the medical advice of a medical professional. The host or guests are not liable for any negative consequences from any treatment, action, application or preparation, to any person following the information from the podcast.