Navigating the World with Your Aging Loved One

The Power of Early Diagnosis and Advocacy in Caregiving’s Detective Work with Katie Brandt, Director of Caregiver Support Services and Public Relations at the Massachusetts General Hospital Frontotemporal Disorders Unit & Global Advocate


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When her husband was diagnosed with frontotemporal degeneration at just 29, Katie Brandt’s life changed overnight. What began as confusion and heartbreak became a lifelong calling to transform how we see, support, and study dementia. Today, Katie is the Director of Caregiver Support Services and Public Relations at the Massachusetts General Hospital Frontotemporal Disorders Unit, and the Founder & CEO of Katie Brandt Advocacy.

In this conversation, we talk about what it means to become a “caregiver detective”, the quiet observer, the record keeper, the advocate who pieces together the truth when something feels off. We explore how early and accurate diagnosis brings dignity, how research becomes more human when it includes caregiver voices, and why supporting caregivers isn’t just compassionate, it’s strategic. Katie shares the lessons she’s learned through love, loss, and leadership, and how her belief that “love will end FTD” continues to guide her work and the families she serves.

 

To buys tickets and learn more about A Night with the Arts for FTD, an annual gala featuring the Sermos Memorial Art Show, benefitting the clinical research program in the MGH Frontotemporal Disorders Unit. Visit HERE.

The MGH Frontotemporal Disorders Unit hosts From Care to Cure podcast. Listen HERE.

Thank you to our Sponsor

Zinnia TV is a therapeutic dementia care platform that supports caregivers.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

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For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

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Navigating the World with Your Aging Loved OneBy willGather, Nicole Will

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