The Skies We’re Under

The Skies We’re Under

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The Skies We’re Under episodes

  • The Cracks that Let the Light In | S2 | E12

    This is everything I love about podcasts; it’s funny, real, useful and has the most tender conversations brimming with love. In this podcast recorded in December 2022, Jessica Moxham, mother and architect, talks about her book ‘The Cracks that Let the Light In’ on bringing up her disabled son; How complicated it is when our children are in hospital, making homes accessible and doing the best we can. 

    You can buy her book anywhere that sells good books but beware! As well as being beautifully written, it might just challenge your perspective on disability, ableism and if you’re listening on Audible, make you pull over in the car to ugly cry. It’s crammed with the complexity, beauty and power of a mother’s heart with a side helping of smashing the patriarchy.  

    You can find everything Jess across social media 

    Instagram @jessmoxham

    Facebook @sonstoriesblog

    Twitter @jessmoxham

    You can also listen to her on women’s hour:

    https://www.bbc.co.uk/programmes/m000tlty  

    It would make our day if you could like, follow and review the podcast wherever you listen.  Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.   

    Head to www.bornattherighttime.com to book into one of The Skies We’re Under live events (our next one is 8pm (GMT) Thursday 18th May), find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

     

    45 min
  • Was This in the Plan? | S2 | E11

    Foofighters, Don’t Call me Mum and planning a funeral for your child - it can only be ‘The Skies We’re Under’ podcast.  

    Listen to this great interview with Steph Nimmo who talks about incredibly hard topics with honesty, humour and gentleness. She shares:

    • having to hold it all together when your world falls apart
  • how grief can wait a couple of years before it comes pounding at your door
  • talking about death and loss with children who have disabilities and autism
  • You can find out more about Steph at https://www.wasthisintheplan.co.uk/ and read her books Goodbye Daisy and Was this in the Plan? wherever you usually buy your books. 

    It would make our day if you could like, follow and review the podcast wherever you listen. Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.   

    Head to www.bornattherighttime.com to book into one of ‘The Skies We’re Under live events’ (our next one is 8pm (GMT) Thursday 18th May), find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

    49 min
  • Deep Breath: Wellbeing and Trauma | S2 | E10

    Dr Joanna Griffin is a parent carer and counselling psychologist. She has the brilliant blend of lived experience and a brain full of useful and important information which we can use to make this parenting lark a little easier.  

    In this episode we talk about; 

    • how finding it hard is normal and doesn’t mean we are doing it wrong 
  • the complexity of telling our story and our children’s story  
  • listening to our bodies 
  • the difference between difficult emotional responses and trauma 
  • Plus, Jo has some super helpful information about trauma. 

    Find some great parent/carer resources at www.affinityhub.com and all things Dr Jo at on social media. Facebook @Joanna Griffin Instagram @griffinpsychology Twitter @Griffinpsych Linked In Dr Joanna Griffin

    The well-being conference is sold out but you can join a waiting list [Parent Carer Well-being Day] The research Jo refers to can be found here.

    Trigger warning – just talking about trauma can be traumatic for people with trauma. 

    It would make our day if you could like, follow and review the podcast wherever you listen.  Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.   

    Head to www.bornattherighttime.com to book into one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

    51 min
  • Stories About Autism | S2 | E9

    James Hunt is the single dad of two autistic boys and the curator of Stories About Autism. With hundreds of thousands of followers across social media, James has created an amazing community – a community, he says, that help him just as much his stories help others.  

     

    In this conversation we delve into:

    • Autism, adaptation and acceptance
  • Changing relationships and siblings
  • Co-parenting well and being a single parent
  • Parent's aging and being a sandwich carer (which sadly has nothing to do with cheese & pickle)
  • You can find James across social media as Stories About Autism and on his website www.storiesaboutautism.com. All enquiries (to give him a book deal) can be emailed to [email protected]  

    To join in with the podcast, email your stories, comments and questions to [email protected] or follow us on Instagram @BornatRightTime. It would make our day if you could like, follow and review the podcast wherever you listen.   

    Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

    #podcastswelistento #complexneeds #complexneedsfamily #carers #parentingpodcast #parentalsupport #disabilityinclusion #theskieswereunder #tswu #TSWUpodcast #valueofeveryone  #disabilityawareness #inclusion #podcast #teamaroundthechild  #pmld  #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience  #coproduction #swearing #laughingisthebestmedicine #singleparent #singleparenting #dadofboys #autism #autismpodcast #autismsupport #coparenting #sandwichcarer

     

    43 min
  • It’s a Complex Night | S2 | E8

    As well as being joined by Sarah Clayton, we have the pleasure of Jane Hamer’s company. Jane is a physiotherapist in New Zealand who has recently completed research with parents of children who have disabilities and who are introducing night-time positioning equipment.  

    We talk about just how hard news can sometimes be and the important steps which can make 'hard' just a little easier. If you’re a parent of someone with limited movement or a practitioner – we think you’ll find this episode super helpful. 

    You can read Jane’s research here https://ourarchive.otago.ac.nz/handle/10523/13716 

    We're referring to this podcast episode as our first edition of The Skies We're Under practitioner series. Are there any professionals you would like us to talk to on the podcast? We'd love you to email [email protected] to suggest who you would like to hear from. Similarly you can also email your stories, comments and questions to the same address or follow us on Instagram @BornatRightTime. 

    It would also make our day if you could like, follow and review the podcast wherever you listen.   

    Head to www.bornattherighttime.com to book onto one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

     

    #TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine #physiotherapy #posturalcare #positioningequipment 

     

    45 min
  • I just want to eat chocolate, watch a movie and cry ... | S2 | E7
    Are you and your partner on the same emotional wavelength when it comes to processing change or caring responsibilities?
     
    Are one of you more practical and the other emotional? Does it wind you up at all?
     
    Can caring and logistics ever be shared out equally?

    Kenny and Tutu Popoola are husband and wife founders of Black Special Needs Parents (BSNP). BSNP provides a haven for black parents of children living with disabilities to express themselves and get the support they need to thrive while raising their children. It also serves as a great source of information as well as a signposting service to resources.  

    Having been brought up in Nigeria, Kenny and Tutu are now raising two children in the UK, one with complex disabilities. Kenny was slightly outnumbered during our chat but we covered how Dads are often underrepresented and women are more advanced – Kenny actually said it himself.  

    We unpick a bit of the typical male and female response to things and discuss the sense of joy (and loss) when a child develops typically and reaches milestones which seem effortless.  

    It’s a really comforting conversation which raises some important differences brought about by culture, privilege and faith, but also many similarities in our shared complex emotions. 

    Check out their brilliant website https://www.bsnpsn.org/ for more information or follow @blackspecialneedsparentsuk. The church with SEN provision that Kenny and Tutu are part of is https://citygates.london/get-connected/special-needs/  

     

    It would make our day if you could like, follow and review the podcast wherever you listen.   

      Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.   

      Head to www.bornattherighttime.com to book into one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

     

    #TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine  #blackspecialneeds #kennyandtutu #SEN #senpodcast #complexneeds #complexdisabilities #podcastswelistento

    55 min
  • Heart-Stopping Moments |S2 | E6

    Marian Selby-Boothroyd is the Director of Development at Certitude (an adult social care provider) and the parent of three boys who have a remarkable array of complexities and awesomeness - Autism, Down Syndrome, rare and life-threatening heart condition and worse of all, for one son – being just like his mum. 

    In this brilliant conversation we touch on tough topics such as: 

    • Adjusting to being the parent of a child with Down syndrome and how it can be more about us adjusting to the system than the baby. 
  • Do not resuscitate orders. 
  • Your child needing CPR and learning how to live in the moment every day. 
  • How you can have all the right qualifications as a professional and still miss things as a parent. 
  • TRIGGER warning, this episode covers topics of cardiac arrest and CPR.


    It would make our day if you could like, follow and review the podcast wherever you listen.   

     Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.   

    Head to www.bornattherighttime.com to book onto one of The Skies We’re Under live events, find a parent workshop or CPD-certified training for practitioners in Communication, Collaboration & Personalised Care with Parents/Carers.  

     

    #TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine  #complexneeds #complexdisabilities #podcastswelistento #downsyndrome #cpr #dnr #donotresuscitate #autism #heartcondition

      

    47 min
  • Love is Love | S2 | E5

    Paul and Michael Atwal-Brice in conversation with Rachel Wright.  High profile campaigners and fathers to two sets of identical twin boys.

    In this wonderful conversation we talk about  

    • How the best Rom Coms start in Cleethorpes. 
  • How Paul and Michael fell in love with their boys. 
  • How little things can make a big difference (for example a form saying Parent 1 and Parent 2 rather than Mum and Dad).
  • How medical trauma impacts parents.  
  • The importance of humour and beige food to get us through the day.
  • TRIGGER WARNING - we talk about epilepsy and ventilation.  

    You can find all things Atwal-Brice and more about their beautiful family at www.atwalbricefamily.co.uk (@atwalbricefamily on socials) and as well as links to all the great organisations they work with.

    It would make our day if you could like, follow and review the podcast wherever you listen.  

    Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.  

    Head to www.bornattherighttime.com to book onto one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

     

    #TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine #complexneeds #complexdisabilities #podcastswelistento #dadsofboys #mydads

     

     

    54 min
  • A Nodding Dog to the System | S2 | E4

    This great interview with Tracey Huggins looks at; 

    • Mental health (ours not our children’s) 
  • Her sex life (that bit’s quite quick) 
  • Being a nodding dog to the system  
  • Having a child who doesn’t have a diagnosis. 
  • You can find out about all things Tracey at @SENDaccordingtome and www.sendworldaccordingtome.co.uk She has stacks of useful information about all the practitioners who support families of children with disabilities. If you’re a parent new to this gig, it’s a helpful resource.  

     Tracey’s book ‘Sendin Mam round the bend’ is also available from Amazon. 

     It would make our day if you could like, follow and review the podcast wherever you listen.  

    Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.  

    Head to www.bornattherighttime.com to book onto one of 'The Skies We’re Under' live events, find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

     

    #TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine  #SEN #senpodcast #complexneeds #complexdisabilities #podcastswelistento

     

    51 min
  • Hijacked by Parenthood | S2 | E3

    Rachel talks to Lucy and Sarah about how being the parents of people with complex needs has taken over – well ... everything. How we have changed and transitioned through seasons of our life and our child’s life. We cover; 

    • The emotional phases we go through – rage, resignation and resolve. 
  • Deputyship and power of attorney – who needs it and why? 
  • Realising there isn’t such a thing as ‘it’ll be easier when...’ 
  • How none of us is Mother Teresa incarnate. 
  • One of our biggest roles as parents is to enable our children to have fun and feel safe without us. 
  • We talk about how we might try and shift the idea of motherhood being at its best when we are frantically doing everything for our children, to one where we celebrate and share stories of our children loving life without us. #FunWithoutMum 

    It would make our day if you could like, follow and review the podcast wherever you listen.  

    Email your stories, comments and questions to [email protected] to join in or follow us on Instagram @BornatRightTime.  

    Head to www.bornattherighttime.com to book into one of The Skies We’re Under live events (our first one is on 16th March), find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers. 

     

    #TSWUpodcast #theskieswereunder #valueofeveryone #parenting #disability #disabilityawareness #inclusion #podcast #teamaroundthechild #OT #Physiotherapy #complexneeds #pmld #nursing #specialneeds #specialneedsparenting #autism #learningdisability #cerebralpalsy #epilepsy #livedexperience #communication #coproduction #podcastswelistento #laughingisthebestmedicine #powerofattorney #disabilitytransition

    57 min

About The Skies We’re Under

From the publisher's feed

Nurse, author and Director of Born at the Right Time, Rachel Wright talks to fellow parents of people with disabilities and others in their community. With the power of story telling, laughter, swearing and useful information they create solace in knowing the warts and all truth of this off piste version of parenting.

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