In this episode, Hsien and Sammy talk with RN and project director Kira Goodman and pediatric palliative care physician Dr. Dave Lysecki about what makes pediatric palliative care unique, why it’s not “too sad,” and how early, family-centered support can transform the journey for children with serious illness. They also explore the creation of Canada’s Pediatric Palliative Care Alliance and its efforts to build a unified, equitable approach to care across the country. Learn more about the Alliance here: https://www.pediatricpalliativecare.ca/ 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien and Sammy chat with Sunny Brouse. Sunny was diagnosed with ALS over a decade ago and leads a global community of young women with ALS. We talk about her long, disorienting road to diagnosis, what clinicians miss when they focus on function over quality of life and how dark humor, planning ahead and honest talk can protect hope. Learn more about Sunny's journey here: https://sunnystrong.com/ 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien and Sammy sit down with Barbara MacLean, Executive Director of Family Caregivers of British Columbia and a leading voice for caregivers in Canada. Barbara shares her powerful origin story from supporting children with disabilities in grade six to becoming a national change agent for family and friend caregivers. We also chat all things caregivers, including visibility and distress and ways to combat both. To learn more about Barbara's work visit: https://www.familycaregiversbc.ca 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien chats with Ella Tan, an Employment and Family Support Worker and Caregiver Advocate. They chat about the hidden realities of paid care providers in Canada including immigration hurdles, debt, family separation, and the blurred boundaries of working in employers’ homes. Ella shares how community networks, settlement supports, and policy change can transform not only caregivers’ lives but the quality and dignity of care for everyone. Check out Ella's podcast here: https://open.spotify.com/show/3FjXuS9QV9zxyEI4lhHYHT 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien and Sammy chat with Dr. Myles Sargeant, family physician and planetary health expert. We chat about how healthcare can reduce its environmental footprint with delivering better care, heat islands and why home based palliative care is one of the greenest things we can do. Learn more about Myles work here: https://greenhealthcare.ca/ 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode Pierre and Sherrie Marchand share how a rare, terminal uveal melanoma upended their retirement and reshaped their lives. They reflect on vision loss, caregiving, family impact, and how The Waiting Room Revolution helped them find clarity, voice, and a way to balance hope with planning ahead.

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien speaks with Canadian dementia advocates Christine Aiken and Myrna Norman, who share how they moved from isolation and fear after diagnosis to lives filled with purpose, community, and hope. They debunk common myths about dementia, describe simple but powerful person-centered practices families and communities can adopt right away, and show how support groups, creativity, and inclusion help people with dementia continue to live well and thrive.

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this  Hsien talks with Dr. Chetna Malhotra, a leading palliative care and health services researcher in Singapore. They explore the gap between what people say they want at the end of life and the care they actually receive, especially in hospital-heavy systems. Together, they unpack how culture, family, and religion shape decisions, and why advanced care planning should focus less on fixed choices and more on preparing families for real-time decisions. Dr. Malhotra also shares how digital tools and caregiver support innovations like the Care Buddy app are helping patients and families navigate serious illness.

To learn more about Chetnas work visit: https://www.duke-nus.edu.sg/directory/detail/chetna-malhotra

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, Hsien chats with Ontario Funeral Director Sarah Sunnucks about what really happens after someone dies and why funeral pre‑planning is one of the greatest gifts you can give your family. Sarah shares the hidden legal and administrative burdens families face, powerful stories of when planning was (and wasn’t) done, and emerging options like green burial. 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0

In this episode, we chat with grief therapist and thanatologist Andrea Warnick. We discuss the importance of including children in conversations about serious illness and death. Andrea shares her experiences and strategies for helping children cope with loss and shares some free and low-barrier resources you can use.

Resources to help children with grief:

https://kidsgrief.ca/

https://youthgrief.ca/ 

https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Final+Days/Children+at+the+Bedside+of+a+Dying+Family+Member+or+Friend.aspx 

Visit Andreas website for more information: https://awcgrief.com/ 

Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ 

Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0