In this episode, Sean and Kyle discuss the importance of maintaining discipline and focus, particularly in the face of distractions and competing priorities.

The conversation delves into the concept of knowing what one wants and being clear about goals to stay motivated and driven. They reflect on the significance of surrounding oneself with supportive people who encourage and uplift in the pursuit of those goals.

Also in this episode:

• Kyle exercises a principle he learned in a past 2DD episode
• Newsworthy - International Day for Social Inclusion & Official Release of the Overjoyed Accessible Controller on the Microsoft Store!
• Thank you notes: Kyle's bike mechanic and the Vertiball massager

Links and resources:

• Download the Overjoyed accessible gaming software
• Newsworthy music courtesy of Zapsplat.com

In this episode, we discuss the groundbreaking work of Roll Mobility, a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants, destinations, and sightseeing locations. By ranking establishments based on their accessibility features, Roll Mobility empowers individuals to plan ahead and ensure a smooth experience without unexpected barriers.

Our guests, and Roll Co-Founders, Rachel Zoller & Joe Foster, delve into the personal connections driving Roll Mobility's mission, highlighting the challenges faced by individuals with disabilities in navigating public spaces. Rachel emphasizes the importance of community-driven data in shaping the app's functionality.

The conversation also delves into the broader societal implications of accessibility, emphasizing the benefits that inclusive design offers everyone. By advocating for accessibility, Roll Mobility aims to foster social awareness and create a more inclusive society.

Listeners are encouraged to support Roll Mobility by downloading the app, sharing it with others, and contributing reviews to help expand its reach. Additionally, if you’re in the Denver area, we encourage you to consider attending an event hosted by Roll Mobility and Dateability, inviting Denver residents to join the Denver Pub Crawl Spring Fling April 27, 2024 to celebrate inclusion and accessibility in their community.

Also in this episode:

• The airline snapped the arm off Kyle's wheelchair
• Newsworthy - Secretary Buttigieg Announces Proposed Rule to Ensure Passengers Who Use Wheelchairs Can Fly with Dignity
• Thank you notes: Michelle and her glass art, and Dawn the personable travel agent from Altour

Links and resources:

• RollMobility Instagram
• Denver Spring Fling Pub Crawl hosted by Roll and Dateability - April 27
• Sign open letter to improve accessibility on Airlines (GlobalGenes)
• Newsworthy music courtesy of Zapsplat.com

The Dudes talk about life changes and the significance of pursuing growth and opportunities, even in the face of uncertainty. Reflecting on personal anecdotes and advice, they underscore the value of acceptance, adaptation, and gratitude in embracing life's journey.

Also in his episode:

• Kyle's most recent challenging experience with airline travel
• Newsworthy - 'Go On, Be Brave' documentary captures perseverance in face of ALS
• Thank you notes: Kyle's driving instructor and Sean's friend in Miami

Links and resources:

• Watch 'Go On, Be Brave' documentary
• The clip Sean mentioned: Making a hard decision? WATCH THIS | Dr. Ellen Langer
• Newsworthy music courtesy of Zapsplat.com

In Episode 244, the Dudes delve into the topic of change and consistency, particularly in the context of living with progressive diseases like Friedreich's ataxia (FA). They discuss the challenges of navigating constant change, setting expectations, and managing the desire for both fast and slow change.

Also in this episode:

• Emergency haircuts and curbcut confusion
• Newsworthy: FOX 5 Las Vegas Surprise Squad
• Thank you notes: A vacation buddy and fake plants

Links and resources:

• Sean's column: The progressive nature of FA taught me to appreciate gradual change
• Newsworthy music courtesy of Zapsplat.com

In this episode, Dr. David Fajgenbaum shares his journey of discovering a drug that saved his own life. He emphasizes the importance of repurposing existing drugs for new uses and highlights the potential of artificial intelligence in identifying such opportunities.

Dr. Fajgenbaum discusses his nonprofit organization, EveryCure, which aims to unlock new uses for existing FDA-approved drugs. The organization utilizes biomedical knowledge and AI algorithms to analyze connections between drugs, genes, proteins, pathways, and diseases. The goal is to find potential treatments for various diseases by evaluating existing drugs.

VIEW THIS INTERVIEW ON YOUTUBE

Also in this episode:

• Sean abandons his principles
• Newsworthy: Here's what the starbucks of the future looks like. Starbucks has opened its first cafe designed to give customers with disabilities a more accessible store experience.
• Thank you notes: Make a Hole Stranger and Gas Station Jeep Guy

Links and Resources:

• EveryCure
• EveryCure Announces Arpa-H Funding at the White House!
• Castleman Disease Collaborative Network (CDCN)
• Chasing My Cure
• 2DD Ep. 019 - Dr. David Fajgenbaum, Conquering Castleman Disease
• 2DD Ep. 091 - Chasing our Cure with Dr. David Fajgenbaum
• 2DD Ep. 092 - Why Humor is Important with Dr. David Fajgenbaum
• Newsworthy music courtesy of Zapsplat.com

Dave (Dr. Lynch), a seasoned clinician and researcher specializing in Friedreich's ataxia (FA), sheds light on his nearly three-decade journey at the forefront of FA care. Throughout the conversation, Dave emphasizes the indispensable role of patient participation in research, underscoring the collaborative spirit driving advancements in FA drug development.

Also in this episode:

• Sean's Sleep-talking escapades.
• Kyle Finally took his road test for his driver's license.
• Newsworthy: Light Up For Rare comes to a monument near you!

Links and Resources:

• Light Up For Rare
• Newsworthy music courtesy of Zapsplat.com

For Rare Disease Patients, the drug development process can feel huge and overwhelming.  It seems like everyone has a role to play; Doctors, researchers, advocacy organizations, pharma industry...we can see how they all fit in the process. What about the patient's role?  Listen as The Dudes discuss 4 of the many ways patients can have an impact.

Also in this episode: 

• Ever received a mysterious text from an unknown number? 
• Kyle talks about receiving a letter regarding his DMV situation and the challenges he faces in navigating bureaucratic systems.
• Newsworthy from Esquire: Four Years After a Crash Left Him Paralyzed, BMX Star Paul Basagoitia Enjoys Riding More Than Ever
• Thank you notes: Sean - A curious coworker. Kyle - Mike and Diane Bryant (Dad and Mom)

Links and Resources:

• Any One of Us documentary trailer
• Paul Basagotia Instagram
• Newsworthy music courtesy of Zapsplat.com

Adapting to changes is a big part of life for everyone. Listen as The Dudes discuss their approach to adapting.

In this episode:

• Kyle uses a voided ID to get past TSA on his way to North Carolina and back.
• Newsworthy from Instagram: Young man paralyzed from the shoulders down after a spinal cord injury in 2020 
• The Dudes get into a discussion about adaptation strategies for living with disabilities, emphasizing the importance of planning ahead and being flexible. They also reflect on their upcoming changes to the podcast production schedule, aiming for a more manageable approach. 
• Thank you notes: Sean: Football season's effect on crowds at the gym. Kyle's friend Joy, for planning an awesome game day party

Links and Resources:

• Newsworthy music courtesy of Zapsplat.com

Listener Brian lets the Dudes know that Kyle has in fact been driving illegally for 10 years.  Does Kyle have a plan to address this dilema?

In the Season 11 premiere, Kyle and Sean dive into the challenges and triumphs of pursuing dreams, overcoming fears, and embracing new opportunities. The Dudes also discuss the power of setting goals, the fear of failure, and the importance of discipline in achieving success. With inspiring stories and candid reflections, this episode offers listeners a blend of motivation, encouragement, and real-life insights.

Links and resources:

• Benedict Cumberbatch: "Do"
• Aaron Wheelz Instagram
• Newsworthy music courtesy of Zapsplat.com

In episode 238, The Dudes delve into the theme of friendship, highlighting the significance of chosen family and exploring the dynamics of their own unique bond. They draw inspiration from questions curated by MindPath Health, leading to an unscripted and genuine conversation. From childhood influences like movies to bucket list aspirations, The Dudes share personal stories, providing insight into their lives. The episode also touches on life's challenges, frustrations, and coping mechanisms, offering a candid look. In the spirit of National Family Caregivers Month, Sean and Kyle discuss how they prefer to receive care, emphasizing the importance of understanding and genuine support. The episode weaves together laughter, reflection, and wisdom, creating a connection with listeners through shared experiences and open conversation.

The Dudes will be back with new episodes in February.  In the meantime, check out past episodes.

Links and Resources

• Mindpath Health - 80 fun questions to ask your friends to get to know them on a deeper level