Living with hidradenitis suppurativa (HS) can mean navigating a long and often complicated treatment journey, but finding the right care and support can make all the difference. What happens when your regimen stops working or new symptoms appear? We spoke with Christopher Sayed, MD, professor of dermatology at the UNC Department of Dermatology, to discuss when it’s time to talk to your doctor about escalating treatment, why switching therapies or care teams isn’t a setback, and how HS support groups can provide vital expertise and advocacy. We also hear from Katie, a patient advocate with Hope for HS, who shares her story of diagnosis, experiences with flare-ups and stigma, and how she ultimately found the right care.

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