Multispective

041 From Muscles to Bones: An Unstoppable Genetic Disorder


Listen Later

In this episode, we explore the story of Joe Sooch, who shares his heartbreaking story of living with a rare condition called "Fibrodysplasia Ossificans Progressiva" (FOP), where the body’s muscles slowly and progressively turn into bones. In contrast to our previous episodes this time it's impossible to overcome this condition but still Joe offers a glimpse into his extraordinary life, showcasing unwavering strength in the face of adversity. We delve deep into this story from what it means medically, all the complications that come with FOP, and his general view on life; his story brings to light the indomitable spirit that defines Joe's journey with FOP.

Link to Joe's podcast: Spotify

Send a text

Support the show

Additionally, you can now also watch the full video version of your favourite episode here on YouTube. Please subscribe, like or drop a comment letting us know your thoughts on the episode and if you'd like more stories going forward!

If you would like to offer any feedback on our show or get in touch with us, you can also contact us on the following platforms:

  • Website: www.multispective.org
  • Email: [email protected]
  • Instagram: www.instagram.com/multispectivepodcast
  • Facebook: www.facebook.com/multispectiveorg
  • Reddit: www.reddit.com/r/multispective

Support the show: https://www.patreon.com/multispective

Producer & Host: Jennica Sadhwani
Editing: Stephan Menzel
Marketing: Lucas Phiri

Fatty15 promotes healthy metabolism, balanced immunity, and heart health. 2 out of 3 customers report near-term benefits, including calmer mood, deeper sleep or less snacking, within 6 weeks. 20% off on purchases link and code: ...

...more
View all episodesView all episodes
Download on the App Store

MultispectiveBy Jennica Sadhwani

  • 5
  • 5
  • 5
  • 5
  • 5

5

22 ratings


More shows like Multispective

View all
This Is Actually Happening by Audible

This Is Actually Happening

10,415 Listeners

The Secret Room | True Stories by Ben Hamm

The Secret Room | True Stories

2,820 Listeners

MURDERISH by Cloud10

MURDERISH

3,432 Listeners

What Was That Like - True Stories. Real People. by Scott Johnson & Glassbox Media.

What Was That Like - True Stories. Real People.

1,919 Listeners

Family Secrets by iHeartPodcasts

Family Secrets

5,010 Listeners

Something Was Wrong by Broken Cycle Media

Something Was Wrong

25,717 Listeners

Music City 911 by Music City 911

Music City 911

927 Listeners

Strictly Stalking by Strictly Stalking

Strictly Stalking

2,543 Listeners

I Survived by A&E / PodcastOne

I Survived

5,881 Listeners

WHEN DATING HURTS by Evergreen Podcasts

WHEN DATING HURTS

347 Listeners

Killer Psyche by Audible | Treefort Media

Killer Psyche

4,701 Listeners

Nobody Should Believe Me by True Story Media

Nobody Should Believe Me

3,022 Listeners

Betrayal Season 5 by iHeartPodcasts | Glass Podcasts

Betrayal Season 5

8,301 Listeners

What Came Next by Broken Cycle Media

What Came Next

658 Listeners

What It Was Like by Superreal

What It Was Like

448 Listeners