The Rare Life

200: Facing End of Life Choices + The Way Life Changes After Child Loss w/ Stephanie Stanley


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When your life has revolved around caring for your medically complex child, their absence changes everything: your routines, your identity, your relationships, and evenyour purpose in life.

In this tender conversation, Stephanie Stanley shares what it’s like to live through end of life decisions for your medically complex child and to continue on after the caregiving ends. We cover the isolation that follows, the way grief changed her relationships and community, and the small ways she’s keeping Payton close.

She also opens up about the support that helped her most, her advice for those walking alongside grieving parents, and what she wishes others understood about the grievingprocess after child loss.

Just a note: this episode covers themes of grief,child loss, end of life decisions, and more. Please listen with care.

If you have lost a child, may face child loss in the future, or simply care for someone who has been in a similar position, this is an episode you can’t miss.

Links:

Listen to Ep 152: Stephanie’s Story.

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Fill out our contact form to joinupcoming discussion groups!

Follow us on Instagram @the_rare_life!

Connect with Stephanie on Instagram @steph_stanley12

Donateto the podcast or Contactme about sponsoring an episode.

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Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave usa rating or review in your favorite podcast app!

 

 

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The Rare LifeBy Madeline Cheney

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