Expecting to see answers on an MRI and bloodwork

Asking for help from a provider that doesn’t “believe” in PANDAS or denies that it is real, even when there are positive tests for an infection with no typical signs of an infection

Providers still denying it, even when the antibiotics they prescribed getting rid of all symptoms

Finding out a cough was a tic

Never ending referrals to more specialists who don’t have answers but won’t talk about PANDAS

Never ending antibiotics that have diminishing returns

Jody feeling like maybe she is crazy and nothing was wrong, especially as doctors kept offering her excuses for why these sudden changes in her daughter were normal

Tonsils and adenoids and whether to remove them

Being told she didn’t have PANDAS even when strep was found and titers were elevated

Deciding to do the Cunningham panel (more details in the next episode!)

The frustration of seeing all the different providers and treating everything as if they were separate issues even though they came on all together

The challenge of taking a kid who could “hold it together” in the doctor’s office, making it look like Jody was crazy or making things up and getting accused of Munchausen-by-proxy