In this special Rare Disease Day episode, five parents share ways they have been changed by the rare disease journey, as experienced from the parent-perspective. They also share a few of their favorite things about their child.

This episode is a celebration of the beauty of being parent to medically-complex children and the important lessons we pick up along the way.

Links:

Book “Mighty Me” by Analy Navarro

Book “Special” by Melanie Dimmitt

Join the Facebook group Parents of Children with Rare Conditions.

Rayel Lockhart on Instagram: https://www.instagram.com/itsalockhartlife/

Lexie Emory on Instagram: https://www.instagram.com/lexie_be_cheesin/

Heather Cox on Instagram: https://www.instagram.com/ariannasarmy1/

Analy Navarro on Instagram: https://www.instagram.com/the_a_navarro/

Roya Malaekeh on Instagram: https://www.instagram.com/the_destroya/

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