The Rare Life

97: Melissa Schlemmer’s Story | A Rare Disorder Affecting the Brain + Radical Acceptance


Listen Later

When Melissa knew something was up with her infant-son Christopher nine years ago, she reassured herself that as long as his brain was ok, they would be ok.

So, when his neurologist told her about his rare disorder and the way it affected his brain, everything crumbled around them. After years of navigating all the sub diagnoses that come along with his syndrome, Melissa has come to a place of radical acceptance of her son’s disabilities.

In this episode, Melissa shares this and more.

Links:

Check out NAPA Center and their resources.

Get info about NAPA Center’s new Chicago Clinic.

Fill out an interest form for NAPA Center's new Chicago clinic.

Listen to Ep. 77: To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way”

Follow Melissa on Instagram

Follow Melissa on Facebook

Follow me on Instagram.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Donate to the podcast via Buy Me a Coffee.

Check out our appointment day merch.

Check out our affiliate BetterHelp for online licensed therapy.

Access the transcript on the website here.

...more
View all episodesView all episodes
Download on the App Store

The Rare LifeBy Madeline Cheney

  • 5
  • 5
  • 5
  • 5
  • 5

5

147 ratings


More shows like The Rare Life

View all
The Popcast With Knox and Jamie by Knox McCoy and Jamie Golden

The Popcast With Knox and Jamie

7,034 Listeners

That Sounds Fun with Annie F. Downs by That Sounds Fun Network

That Sounds Fun with Annie F. Downs

10,418 Listeners

The Lazy Genius Podcast by Kendra, The Lazy Genius

The Lazy Genius Podcast

6,686 Listeners

The Girl Next Door Podcast by Kelsey Wharton and Erica Ladd

The Girl Next Door Podcast

746 Listeners

The Next Right Thing by with Emily P. Freeman

The Next Right Thing

5,401 Listeners

Laugh Lines with Kim & Penn Holderness by Kim & Penn Holderness

Laugh Lines with Kim & Penn Holderness

3,377 Listeners

The Jennie Allen Podcast by Jennie Allen

The Jennie Allen Podcast

6,608 Listeners

Once Upon A Gene by Effie Parks

Once Upon A Gene

277 Listeners

A Beautiful Mess Podcast by Elsie Larson and Emma Chapman

A Beautiful Mess Podcast

2,110 Listeners

HERself by Abby and Amy

HERself

1,732 Listeners

The Dr. John Delony Show by Ramsey Network

The Dr. John Delony Show

7,528 Listeners

The Carpool with Kelly and Lizz by The Car Mom LLC / tentwentytwo Projects

The Carpool with Kelly and Lizz

3,676 Listeners

Confessions of a Rare Disease Mama by Jillian Arnold

Confessions of a Rare Disease Mama

50 Listeners

Caffeinated Caregivers by Erica Stearns & Alyssa Nutile

Caffeinated Caregivers

16 Listeners

UNPLUGGED with Nicki Marie by nickimarieinc

UNPLUGGED with Nicki Marie

360 Listeners