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When Melissa knew something was up with her infant-son Christopher nine years ago, she reassured herself that as long as his brain was ok, they would be ok.
So, when his neurologist told her about his rare disorder and the way it affected his brain, everything crumbled around them. After years of navigating all the sub diagnoses that come along with his syndrome, Melissa has come to a place of radical acceptance of her son’s disabilities.
In this episode, Melissa shares this and more.
Links:
Check out NAPA Center and their resources.
Get info about NAPA Center’s new Chicago Clinic.
Fill out an interest form for NAPA Center's new Chicago clinic.
Listen to Ep. 77: To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way”
Follow Melissa on Instagram
Follow Melissa on Facebook
Follow me on Instagram.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Donate to the podcast via Buy Me a Coffee.
Check out our appointment day merch.
Check out our affiliate BetterHelp for online licensed therapy.
Access the transcript on the website here.
By Madeline Cheney5
147147 ratings
When Melissa knew something was up with her infant-son Christopher nine years ago, she reassured herself that as long as his brain was ok, they would be ok.
So, when his neurologist told her about his rare disorder and the way it affected his brain, everything crumbled around them. After years of navigating all the sub diagnoses that come along with his syndrome, Melissa has come to a place of radical acceptance of her son’s disabilities.
In this episode, Melissa shares this and more.
Links:
Check out NAPA Center and their resources.
Get info about NAPA Center’s new Chicago Clinic.
Fill out an interest form for NAPA Center's new Chicago clinic.
Listen to Ep. 77: To Those Who Cannot Say, “I Wouldn’t Have Them Any Other Way”
Follow Melissa on Instagram
Follow Melissa on Facebook
Follow me on Instagram.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Donate to the podcast via Buy Me a Coffee.
Check out our appointment day merch.
Check out our affiliate BetterHelp for online licensed therapy.
Access the transcript on the website here.

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